Epilepsy Talk

Seizure Free – A Hope or a Promise?

September 25, 2021
16 Comments

Is it a reality…a hope…or a promise?

Have you been there once for a visit?

And then come back, to the land of falling down, shaking, quaking and blackouts.

We all know, the only thing that remains the same is change.

Everything is in a state of flux.

Drugs, science, our bodies, our brains.

From that you can choose hopelessness. Or hope.


Brag a little! What’s been your greatest success?

May 11, 2021
38 Comments

For me, it’s living.

There was a time when I truly wanted to die.

Life was so out of control and I was so desperate, I saw death as the only way out.

Death was my siren song…whispering to me every day.


Some Stress and Anxiety Solutions…

March 8, 2021
26 Comments

Sometimes my hands shake so much, I look like I’m leading a symphony. (Without a baton.) Legs too, I have to sit down.

Maybe you panic before a test, the very fear of having a seizure, social rejection, job anxieties, debt, fear of failure, an anticipated argument, holidays, fear of flying.

Or the daunting prospect of being alone without any support system. Or even death itself.

There are probably as many kinds of stress and panic attacks as there are those of us who suffer from them.

And behaviors: trembling, sweating, hyperventilating, breathlessness, feeling faint or light-headed, a sense of disorientation, cramping, nausea, your heart pounding like it’s going to explode from your chest, a fear of dying.

Or you’re just plain scared.

I could go on forever. And I’m sure you could, too.


Gratitude is the Attitude

November 26, 2020
21 Comments

We have so much to be grateful for, especially me:


Gratitude is the Attitude

July 28, 2019
7 Comments

A wise woman once told me:

“When you wake up in the morning — before you get out of bed — think of 5 (or 10!) things that you’re really grateful for.”

(I think 10 is a bit of a stretch.)

That simple advice, changed my attitude. And my life.


Autism — Who Has It?

August 29, 2015
17 Comments

The autism rate has increased — 1 in 68 kids are now identified with the disorder. 20-30% of children with Autism Spectrum Disorder (ASD) develop epilepsy. And children whose language skills regress before they turn 3 have been found to have a higher risk of developing epilepsy.


Hooray for Forums!

July 28, 2011
9 Comments

I never met anyone with epilepsy until I was 29. And that was a best friend of my husband’s. (Which may explain why my husband didn’t freak out when I had a seizure on our first date!)

That was it. Beginning and end. Until 2009, when I began participating in other forums (I didn’t even know what a “forum” was!) and started EpilepsyTalk.com.


Your Child Has Just Been Diagnosed With Epilepsy…

January 23, 2011
8 Comments

The diagnosis comes in. It’s epilepsy.

Your heart drops to the bottom of your stomach. You may panic…or cry…or call in the troops for support.

Whether your child is an infant, toddler, grade schooler, adolescent or young adult, how you behave now will make a world of difference to their future.

Here are some resources to help you help your child…


Great Epilepsy Resources

September 28, 2009
4 Comments

Below are some helpful epilepsy links — websites for support, awareness and useful information.


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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