Epilepsy Talk

Epilepsy Stigma and Awareness

June 17, 2017
18 Comments

Until the late 1970s, legislation in the United States prevented people with epilepsy from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]

“Most of my life, I have been scared to talk about my epilepsy. Why? Because I was scared what others would think. Society does isolate, even discriminates against people with epilepsy.” — Louis S.


Autism — Who Has It?

August 29, 2015
15 Comments

The autism rate has increased — 1 in 68 kids are now identified with the disorder. 20-30% of children with Autism Spectrum Disorder (ASD) develop epilepsy. And children whose language skills regress before they turn 3 have been found to have a higher risk of developing epilepsy.


What’s been your greatest success?

April 15, 2013
40 Comments

For me, it’s living…


Seizure Free – A Hope or a Promise?

October 23, 2012
4 Comments

Is it a reality…a hope…or a promise?

Have you been there once for a visit? And then come back, to the land of falling down, shaking, quaking and blackouts.

We all know, the only thing that remains the same is change. Everything is in a state of flux. Drugs, science, our bodies, our brains. From that you can choose hopelessness. Or hope…


10 Ways to Cope with Your Stress and Anxiety

May 18, 2012
21 Comments

You’re choking. You’re drowning. You’re going down for the count. How many times have we all been there?

I’m sure everyone has their own way of coping — or else we wouldn’t be here.

Nonetheless, here are some helpful tips to get you over that hump…


Hooray for Forums!

July 28, 2011
9 Comments

I never met anyone with epilepsy until I was 29. And that was a best friend of my husband’s. (Which may explain why my husband didn’t freak out when I had a seizure on our first date!)

That was it. Beginning and end. Until 2009, when I began participating in other forums (I didn’t even know what a “forum” was!) and started EpilepsyTalk.com.


Your Child Has Just Been Diagnosed With Epilepsy…

January 23, 2011
6 Comments

The diagnosis comes in. It’s epilepsy.

Your heart drops to the bottom of your stomach. You may panic…or cry…or call in the troops for support.

Whether your child is an infant, toddler, grade schooler, adolescent or young adult, how you behave now will make a world of difference to their future.

Here are some resources to help you help your child…


Gratitude is the Attitude — Part 4

December 31, 2010
152 Comments

We have so much to be grateful for, especially me:

1. For your support, strength and caring…

2. Your smart, sensitive advice…

3. The compassion you share so generously…

4. Your kind, wise encouragement…

5. Your never-ending support, love and dedication…


Great Epilepsy Resources

September 28, 2009
4 Comments

Below are some helpful epilepsy links — websites for support, awareness and useful information.


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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