Epilepsy Talk

New Epilepsy Diagnosis — Now What?

February 6, 2020
23 Comments

You’re scared. Who wouldn’t be? 
The docs. There are lots of terrific ones. 
The tests. They can actually help to correctly diagnose your epilepsy.
I’ll die. Not very likely. 
My life is over. No, it’s not, but it will change…


Traumatic and Post Traumatic Stress — Online Support Groups

April 19, 2014
10 Comments

It’s incredible. When I researched resources for Traumatic Stress and Post Traumatic Stress Disorders, there weren’t many.

An embarrassing shortage, considering the magnitude of need.

That’s the sad news.

The good news is that I found loads of all kinds of different stress disorder support groups online.

This is just a small sampling of different Traumatic Stress and Post Traumatic Stress support groups.

To find more, simply type in your subject and look for forums or support groups.

There’s a wealth of wonderful resources for those who have shared whatever trauma you’ve suffered.


Hooray for Forums!

July 28, 2011
9 Comments

I never met anyone with epilepsy until I was 29. And that was a best friend of my husband’s. (Which may explain why my husband didn’t freak out when I had a seizure on our first date!)

That was it. Beginning and end. Until 2009, when I began participating in other forums (I didn’t even know what a “forum” was!) and started EpilepsyTalk.com.


Great Epilepsy Resources

September 28, 2009
4 Comments

Below are some helpful epilepsy links — websites for support, awareness and useful information.


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

    View Full Profile →

    Enter your email address to follow this blog and receive free notifications of new posts by email.

    Join 2,896 other followers

    Follow Epilepsy Talk on WordPress.com