Epilepsy Talk

Bullied Because of Epilepsy… 

November 19, 2021
18 Comments

Like lions, they smell the difference…

Like hawks, they sweep down on you…

And like hyenas, they laugh and eat your heart out.


Doctors Distracted by Electronic Devices…

June 22, 2021
4 Comments

Do you know what happens during surgery?

Cut…open…correct…sew.

Maybe some background music. Hip if the doctor likes that. Or classical.

Well, not exactly.

You might be surprised. Or horrified to learn the truth.


Brag a little! What’s been your greatest success?

May 11, 2021
38 Comments

For me, it’s living.

There was a time when I truly wanted to die.

Life was so out of control and I was so desperate, I saw death as the only way out.

Death was my siren song…whispering to me every day.


Doctors Distracted by Electronic Devices…

December 15, 2020
5 Comments

Do you know what happens during surgery? Cut…open…correct…sew. Maybe some background music. Hip if the doctor likes that. Or classical.

Well, not exactly.

You might be surprised. Or horrified to learn the truth.

How about your technician who’s running the bypass machine texting during the procedure…

Or the nurse checking airfares…

And your neurosurgeon chatting away on a personal phone call?


Who’s at Fault?

October 26, 2020
18 Comments

Instead of humane and compassionate treatment, doctors, hospitals and the legal system are treating epilepsy patients with little or no regard for their condition.

Here are some chilling examples:


Sodium — How Much Does Your Body Need?

November 22, 2019
13 Comments

You may think that sodium is a “bad guy” to be avoided or reduced at all cost, because too much is linked to high blood pressure.

But sodium is actually an essential electrolyte, and a deficiency can trigger seizures.

Seizures from low sodium levels are most likely to occur from a serious disease, acute infection or because you tried to run a marathon on a hot day.

One-time or isolated seizures from these causes don’t warrant a diagnosis of epilepsy.

However, epilepsy is sometimes misdiagnosed and you may have an underlying health condition that’s causing an electrolyte problem.


What’s Sweeter than Sugar and Good for You Too?

March 25, 2018
28 Comments

For many, high sugar intake can cause seizures…along with emotional instability…dizziness…depression…food allergies…diabetes…and osteoporosis…to name just a few.

Even worse, aspartame interacts with anti-seizure medication.

And over the years, various reports have implicated aspartame in headaches, memory loss, seizures, vision loss, coma, and cancer.

It also appears to worsen or mimic the symptoms of such conditions as fibromyalgia, MS, lupus, diabetes, Alzheimer’s, chronic fatigue, and depression.

And, after receiving some 10,000 consumer complaints, the FDA compiled a list of 92 symptoms linked to aspartame — including death.

But there are two healthy alternatives…


MEG — Could It CURE Your epilepsy?

February 18, 2011
2 Comments

Regardless of your age or epilepsy syndrome, all patients of all ages deserve the possibility of living seizure-free. And for those with intractable seizures, surgery is often the answer. But it’s a scary and risky proposition.

But, now there’s new hope when all else fails. A powerful new brain scanning tool which could make all the difference between successful and unsuccessful surgery. Even for those whose surgery has failed before.

Called the MEG (Magnetoencephalography), this powerful scanner acts as a real-time brain mapping and imaging device to determine where the epicenters of seizures are in the brain. It can detect changes in brain waves that occur on the order of milliseconds, as opposed to a second or more with magnetic resonance imaging (MRI). And for a select few patients, those extra milliseconds can mean the difference between life and death.


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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