Epilepsy Talk

Prescription switching. Do you know what you’re REALLY getting?

January 27, 2022
2 Comments

How many times have you had a prescription switched without your knowledge or permission?

Not just switched to a generic version of the prescribed drug, but to a different drug altogether.

Yet the practice of swapping out medications is perfectly legal in most states.


Stop the FDA from regulating supplements and nutrients

December 3, 2021
8 Comments

The Dietary Supplement Labeling Act pretends to be consumer-oriented, but instead will give the FDA redundant power that it could easily misuse, restricting your access to nutritional supplements and raising the cost of buying them.

In short, nutritional supplements will be regulated like prescription drugs…


Prevent Medication Changes… 

November 29, 2021
4 Comments

This letter has been created by the Epilepsy Foundation to make explicitly sure that no substitutions are made to your prescription without full consent by you and your doctor. You might want to make a copy of it for your files.


Dilantin — Hero or Horror? 

November 14, 2021
13 Comments

Dilantin (Phenytoin) can be considered the grandfather of all epilepsy medications.

Although it was invented in 1908 as a chemical that could prevent convulsions during electroshock treatment, its popularity grew quickly, and as early as 1940, it was hailed as initiating a whole new epoch of anti-epilepsy drugs, motivating researchers to seek even more effective medications and pharmaceutical companies set up aggressive screening programs.

In the next two decades, a dozen new anticonvulsants were introduced into clinical therapy!

Today, Dilantin remains one of the most widely used drugs in the world.

But not without its risks…


The Mystery of Epilepsy and Celiac Disease

November 4, 2021
10 Comments

The relationship between celiac disease and epilepsy has been documented in medical journals for decades. Yet neurologists rarely consider it as an underlying possibility in cases of idiopathic epilepsy.

It never ceases to amaze me what an impact celiac disease can have on one’s life and quality of life, but there is no routine testing for it. Yet, I‘ve been told (and have read) that very few people with epilepsy are told of the possibility of celiac disease!


$56,000 a year for an unproven drug!

October 30, 2021
Leave a Comment

Getting the FDA to retract a decision, is like getting the toothpaste back in the tube, after it’s been squeezed out…

Whether it’s “yes” or “no,” there is no “maybe so”.

A good example is the new all star Alzheimer’s drug aducanumab.

Whether it’s “yes” or “no,” there is no “maybe so”.


What’s Really In Your Meds?

October 29, 2021
3 Comments

“As Americans become more concerned about quality issues with prescription medications made abroad, one company is trying to offer an additional layer of reassurance — by doing chemical analysis before dispensing drugs to patients.


A BIG Mistake

October 21, 2021
22 Comments

I know it’s happened to many of you, but this is the first time for me.


Epilepsy and Melatonin – Yes? No? Or Maybe So?

October 20, 2021
5 Comments

Most of us are familiar with melatonin and it’s purpose: To help you sleep. Or at least to help you get to sleep.

In fact, melatonin is one of the most commonly used supplements in the United States. (Lots of sleepless people out there!)


BIG Pharma’s Outsized Profits

October 18, 2021
3 Comments

Just how profitable is the pharmaceutical industry?

A study indicates that the profits gained by drug developers outpaced those of other publicly-traded companies by a wide margin over an 18-year period.

Merck & Co., long a standard bearer for the U.S. pharmaceutical industry, earned $10 billion in profits last year. Pfizer, its larger peer, booked even more: $16 billion.


Next Page »

    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

    View Full Profile →

    Enter your email address to follow this blog and receive free notifications of new posts by email.

    Join 3,169 other followers

    Follow Epilepsy Talk on WordPress.com