Epilepsy Talk

Brain Surgery Alternatives

March 24, 2017
1 Comment

“It’s not brain surgery.” And it doesn’t have to be.

There are a host of epilepsy procedures that are minimally invasive.

For example…


FREE Prescription Drugs

March 17, 2017
18 Comments

With drugs costs and insurance costs rising every day, it’s often difficult to get the meds you need. Below is a guide to no-cost or low-cost prescription programs. Pass the word along…


Stevens-Johnson Syndrome — a danger for those on Dilantin or Lamictal

March 10, 2017
18 Comments

This article is not for those with a weak stomach. Because Stevens-Johnson Syndrome is an ugly and sometimes deadly disease.

But if you are on Dilantin or Lamictal, I urge you to read this information.


Anti-Epilepsy Drugs Lose Effectiveness Over Time…

March 2, 2017
13 Comments

It may be the dose prescribed…the type of epilepsy you have…even something as simple as your age or weight. But research shows that, over time, the effectiveness of your anti-epilepsy drug may decline.


Beyond EEGs — Diagnostic Tools for Epilepsy

February 23, 2017
34 Comments

How many of us have heard: “Your EEG is normal. You’re fine..”(“It’s all in your head?”)

I know of people who have had 5 EEGs, only to be properly diagnosed when they finally had Video EEG Monitoring.

So if someone is trying to pass you off or is ignoring your symptoms, perhaps you should become a little more familiar with your diagnostic options…


Clinical Trials — International Database

January 28, 2017
6 Comments

There’s a whole treasure trove of clinical trials information now available as a free service of the National Institutes of Health, developed by the National Library of Medicine (NLM).

ClinicalTrials.gov is a web-based resource that provides patients, family members, health care professionals, researchers, and the public with easy access to information on publicly and privately supported clinical studies on a wide range of diseases and conditions.

Presently, there are 131,167 studies with locations in 179 countries, including the U.S. Studies are easy to search for by topic and location.


Responsive Neurostimulation (RNS) Shown to Reduce “Untreatable” Seizures

January 12, 2017
14 Comments

The idea that we can implant a Star Trek-type device that will detect seizures and interrupt them without causing injury is entirely new. And exciting. And scary.

Especially for those people with epilepsy that have seizures that begin at one focal point in the brain, but aren’t appropriate for epilepsy surgery.


Seizures and Steroids

December 5, 2016
4 Comments

I always thought that steroids were the kind used by athletes and bodybuilder to pump up their performance. Yes, they do exist and, yes they are quite dangerous, but those aren’t the kind of steroids this article is about.

In fact, anyone who has epilepsy should NOT take anabolic steroids because they may change the level of anti-epileptic drugs (AEDs) in the blood and may make seizures more likely.

The steroids I’m talking about are naturally occurring hormones. Common oral prednisolone or less common/higher risk ACTH — which have a place in the management of severe epilepsies.


Epilepsy and Diabetes — Confusion or Common Cure?

November 23, 2016
9 Comments

You might be surprised to hear it, but according to recent research, epilepsy and diabetes have more in common than we thought.

The key commonality is fluctuating blood sugar. People with hyperglycemia tend to have focal or local seizures. And those who are hypoglycemic, tend to have tonic-clonic seizures…


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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