Epilepsy Talk

Hormonal Imbalances and Seizures in Women

December 9, 2017
8 Comments

Many women with epilepsy have asked their doctors about the connection between seizures and hormones, but not every woman has seen her concerns given the attention she’d hoped for.

Although it is not very well understood at this point, there are scientifically documented connections between seizures and hormones that not all physicians are educated about…


The Perils of Discontinuing Your Meds

November 25, 2017
14 Comments

One of the most common questions is “when can I stop taking my meds?”

Especially for those whose seizures have been under good control.

It makes sense. Because if you’re doing well, you start to wonder “why do I need these meds anymore”?


Anti-Epilepsy Drugs and Their Side-Effects…

October 24, 2017
12 Comments

For people with epilepsy, Anti Epilepsy Drugs (AEDs) are the most common method used to control seizures. Although there are more than 40 different types of epilepsy, the right medication or combination of medications can usually control seizures.  However 30% of people are drug resistant, owing to either their gene factors or biological makeup.

The most important consideration in your treatment is identifying the exact type of epilepsy you have, therefore you may want to consult more than one doctor.

Medications prescribed will also depend on factors such as which side-effects you can actually tolerate, other illnesses you may have, and how the drug should be taken.

It may take several months before the best drug and dosage are determined for you. After all, medicine is more of an art than a science.  And finding the right combination can literally be a crap shoot.  I know for me and many others, it took many months to get it “right.”


Anti-Epilepsy Drugs and Osteoporosis – It’s Not Just a Women’s Disease

October 22, 2017
32 Comments

A research team consisting of epilepsy specialists and epidemiologists (persons who study the causes and control of diseases) reports on a study that answered an important but simple question:

Do anti-seizure drugs cause reductions in bone density?


Seizure Provoking Conditions

October 18, 2017
6 Comments

Few of these conditions will cause epilepsy itself…but many can lead to seizures. So consider this a definition of the possibilities…


Anti-Epilepsy Drugs Lose Effectiveness Over Time…

October 10, 2017
20 Comments

It may be the dose prescribed…the type of epilepsy you have…even something as simple as your age or weight. But research shows that, over time, the effectiveness of your anti-epilepsy drug may decline.


Your Thyroid…What Everyone with Epilepsy Should Know

September 3, 2017
9 Comments

Touch your neck, right above your collarbone, and you’ll find a little gland called your thyroid.  It only weighs an ounce, yet this thyroid’s hormones control your metabolism.

When those hormones are balanced, everything is fine.

But if your thyroid makes just a little less or more than you need…it could cause havoc, both with how you function and the effectiveness of your AEDs.


Prescription Switching. Do You Know What You’re REALLY Getting?

August 14, 2017
25 Comments

How many times have you had a prescription switched without your knowledge or permission?

Not just switched to a generic version of the prescribed drug, but to a different drug altogether.

Yet the practice of swapping out medications is perfectly legal in most states…


7 Myths About Medication — and the Facts Behind Them

August 10, 2017
16 Comments

From The Cleveland Clinic: By Family Health Team

Misconceptions about medicine are as common as pills on a pharmacy shelf.

We could all use a healthy dose of the truth.

Cleveland Clinic drug information pharmacist Katie Stabi, PharmD, BCPS, debunks seven of the most common myths about medications below:


Rewiring the Brain with Cell Transplantation

August 9, 2017
5 Comments

Cell transplantation is an emerging approach for treating drug resistant epilepsy.

Regenerative medicine such as this, is a relatively “simple” process in that stem cells are often cultured from the patient’s own tissue, then processed and transfused back into the body.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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