Epilepsy Talk

Clinical Trials — International Database

January 28, 2017
4 Comments

There’s a whole treasure trove of clinical trials information now available as a free service of the National Institutes of Health, developed by the National Library of Medicine (NLM).

ClinicalTrials.gov is a web-based resource that provides patients, family members, health care professionals, researchers, and the public with easy access to information on publicly and privately supported clinical studies on a wide range of diseases and conditions.

Presently, there are 131,167 studies with locations in 179 countries, including the U.S. Studies are easy to search for by topic and location.


Responsive Neurostimulation (RNS) Shown to Reduce “Untreatable” Seizures

January 12, 2017
14 Comments

The idea that we can implant a Star Trek-type device that will detect seizures and interrupt them without causing injury is entirely new. And exciting. And scary.

Especially for those people with epilepsy that have seizures that begin at one focal point in the brain, but aren’t appropriate for epilepsy surgery.


Seizures and Steroids

December 5, 2016
4 Comments

I always thought that steroids were the kind used by athletes and bodybuilder to pump up their performance. Yes, they do exist and, yes they are quite dangerous, but those aren’t the kind of steroids this article is about.

In fact, anyone who has epilepsy should NOT take anabolic steroids because they may change the level of anti-epileptic drugs (AEDs) in the blood and may make seizures more likely.

The steroids I’m talking about are naturally occurring hormones. Common oral prednisolone or less common/higher risk ACTH — which have a place in the management of severe epilepsies.


Epilepsy and Diabetes — Confusion or Common Cure?

November 23, 2016
9 Comments

You might be surprised to hear it, but according to recent research, epilepsy and diabetes have more in common than we thought.

The key commonality is fluctuating blood sugar. People with hyperglycemia tend to have focal or local seizures. And those who are hypoglycemic, tend to have tonic-clonic seizures…


If You DON’T Have Epilepsy, Then WHAT Is It???

November 13, 2016
18 Comments

You might call them “imitators” of epilepsy, but that’s kind of extreme. You might say “similar” or you might say “confused”, which I think they are.

In a previous article titled “Conditions Commonly Misdiagnosed as Epilepsy,” I thought I had it all covered…


Brain Food for Your Health…

November 3, 2016
20 Comments

Please understand, I am NOT saying that these supplements will cure, treat or prevent epilepsy — but I am saying that we folks with epilepsy have to do everything we can for our brain health.

And these supplements can help a lot with that.

In fact, the nutrients they contain are so important for your brain cells, you really should seriously consider them. That’s how strongly I feel. And the science backs me up.


Beyond EEGs…Diagnostic Tools for Epilepsy

October 19, 2016
4 Comments

How many of us have heard: “Your EEG is normal. You’re fine..”(“It’s all in your head?”)

I know of people who have had 5 EEGs, only to be properly diagnosed when they finally had Video EEG Monitoring. So if someone is trying to pass you off or is ignoring your symptoms, perhaps you should become a little more familiar with your diagnostic options…


The Trouble with AEDs

September 10, 2016
12 Comments

At the very best, finding the right anti-epilepsy drug is a crap shoot. There’s always the hope that this one will do it.

Or maybe adjunct therapy will work. Or, sigh, the side-effects derail you and you’re on to the next.

Is asking for seizure control too much?


The Staggering Costs of Epilepsy

August 27, 2016
20 Comments

The fact that epilepsy is expensive is no secret. The meds, medical care, the doctors’ visits, hospital bills, health costs, the injuries and finally, the lack of self-esteem.

The statistics are sobering but true…

Epilepsy results in an estimated annual cost of $15.5 billion in medical costs and lost or reduced earnings and production.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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