Epilepsy Talk

Catamenial epilepsy — do you have it?

March 20, 2023
3 Comments

Do you notice that your seizures worsen just before your period…or during the first few days…or at mid-cycle?

You could have “catamenial epilepsy,” or hormone sensitive seizures, a tendency for increased seizures related to your menstrual cycle.


How are your meds affecting you? 

March 10, 2023
4 Comments

They’re necessary, but not necessarily nice. And every med has its own side-effects. Just as different people experience different difficulties.

Here‘s the low-down on the possible side-effects of your drugs and the secrets they may hold.

Some might sound painfully familiar…


Anti-epilepsy drugs lose effectiveness over time…

March 7, 2023
3 Comments

It may be the dose prescribed…the type of epilepsy you have…even something as simple as your age or weight.

But research shows that, over time, the effectiveness of your anti-epilepsy drug may decline.


The Trouble with AEDs… 

February 19, 2023
4 Comments

At the very best, finding the right anti-epilepsy drug is a crap shoot. There’s always the hope that this one will do it.

Or maybe adjunct therapy will work. Or, sigh, the side-effects derail you and you’re on to the next.

Is asking for seizure control too much to ask?


Why you should AVOID going to the hospital… (If You Can!)

January 30, 2023
5 Comments

Medical mistakes are the third leading cause of death in the United States, after heart disease and cancer.

A recent Johns Hopkins study claims more than 250,000 people in the U.S. die every year from medical errors.

Other reports claim the numbers to be as high as 440,000.


Combined Meds — What They Are Doing to Your Body

January 27, 2023
7 Comments

For many of us, monotherapy just doesn’t work.

However adjunct therapy has its dangers.

For example, some seizure medicines can lower or raise the levels of other types of medicines in your blood.

Some combinations cause the levels of both medications to fall.

Some cause one level to fall and one level to rise.

And some cause unpredictable side-effects.

So I hunkered down to discover the unhappy marriages between anti-seizure meds.


Epilepsy and sleep apnea — a dangerous duo

January 10, 2023
5 Comments

Almost a third of people with epilepsy may suffer with undiagnosed sleep apnea, a sleep disorder which is dangerous because of  the possible serious consequences.

Basically (as you probably already know), sleep apnea is characterized by abnormal pauses in breathing or instances of abnormally low breathing during sleep.

Each pause in breathing, called an apnea, can last from at least ten seconds to minutes, and may occur 5 to 30 times or more an hour, causing partial airway obstruction.

As sleep deepens, your airway becomes blocked.


Wrong diagnosis?

December 16, 2022
2 Comments

There are many ways that your medical care can go wrong. All of the phases from diagnosis to treatment can have some type of error.

Studies of error types: An Institute of Medical Report attempted to quantify the types of medical errors that occur in healthcare settings.

One cited study lists causes of errors as follows:


Prevent medication changes…

December 3, 2022
6 Comments

This letter has been created by the Epilepsy Foundation to make explicitly sure that no substitutions are made to your prescription without full consent by you and your doctor.

You might want to make a copy of it for your files.


Mail-Order Meds — Savings and Service

November 20, 2022
6 Comments

For some people, accessing the pharmacy remains one of the biggest barriers to retrieving prescriptions.

A lack of social support, time constraints and limited access to convenient transportation are commonly cited as reasons users cannot get their medication, according to the Centers for Disease Control and Prevention.

But it’s not just patients who have difficulty getting to the pharmacy who benefit from mail-order pharmacies: These programs offer flexibility, time and cost-savings to all enrolled.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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