Epilepsy Talk

Calcium – Friend or Foe?

July 1, 2022
10 Comments

After talking to a famous epileptologist, I learned that calcium is really a two-edged sword. Which surprised (and scared) me.

I’ve always read that calcium was imperative if you were taking anti-epilepsy drugs — especially Dilantin. Even if your doc “forgot” to tell you!


Xcopri provides long-term seizure control in patients with focal epilepsy

June 26, 2022
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Long-term use of Xcopri was safe and reduced seizures by more than 90% in adults with uncontrolled focal seizures, according to results of an open-label extension study published in Neurology.


MSG: Dangerous or Deadly?

June 26, 2022
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MSG can be responsible for long term neurological damage.

It’s been linked to diabetes, stroke, epilepsy, multiple sclerosis, stomach disorders, fatigue, depression, headaches and migraines, grand mal seizures, irregular or rapid heartbeat, nausea and vomiting, numbness in the fingertips, autism, ADHD, asthma-like symptoms, fibromyalgia type pain, disorientation and confusion, and degenerative disorders such as Parkinson’s and Alzheimer’s.


Epilepsy drug side-effects…

June 19, 2022
14 Comments

They’re necessary, but not necessarily nice.

And every med has its own side-effects.

Just as different people experience different difficulties.

But here‘s the low-down on some possible side-effects.

I hope you don’t have to suffer any of them. (Or as few as possible.)


Brand-Name Epilepsy Drug Prices Jumped 277% Over 11-Year Period

June 17, 2022
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“Compared with 2008, costs for brand-name anti seizure meds (ASMs), rose from approximately $2,800 to $10,700 per year in 2018, while costs for generic brand ASMs dropped $800 to $460. As a result, many generic ASMs cost about 10 times less than their brand-name counterparts…”


Buyer Beware!

June 16, 2022
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It’s amazing — and scary — how wildly drug prices can vary between pharmacies, especially when you don’t have insurance.

Here are some comparisons:


Suicide and epilepsy…

June 14, 2022
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We are in a mental health crisis in this community. And not enough is being done to avert it.

According to a peer-reviewed journal article from Epilepsy and Behavior, statistics concluded that people with epilepsy are 22 times more likely to commit suicide than the general population.


Antidepressants and epilepsy…

May 22, 2022
7 Comments

For a long time, depression has been thought to be a complication of epilepsy.

“People with a history of depression have a 3 to 7 times higher risk of developing epilepsy. This kind of information is forcing us to take a second look at the interaction between depression and epilepsy” said Dr. Andres Kanner, a Professor of Clinical Neurology and Director of the Comprehensive Epilepsy Center of the University of Miami, Miller School of Medicine.


Dilantin – What People Are Saying…

May 4, 2022
7 Comments

When I was first diagnosed with epilepsy back in 1969, the availability of AEDs was limited.

Phenobarbital or Dilantin.

Pick your poison.

I chose Dilantin. It was not a pretty picture.

I was a walking zombie, constantly keeling over, and the final insult was when I went into a coma because of toxic blood levels. (No brain, no pain?)

But many have their own serious tales to tell. Here are some of their experiences. And some advice…


Brain Food For Your Health…

March 31, 2022
2 Comments

Please understand, I am NOT saying that these supplements will cure, treat or prevent epilepsy — but I am saying that we folks with epilepsy have to do everything we can for our brain health.

And these supplements can help a lot with that.

In fact, the nutrients they contain are so important for your brain cells, you really should seriously consider them. That’s how strongly I feel. And the science backs me up.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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