Epilepsy Talk

Seizure Provoking Conditions

October 18, 2017
4 Comments

Few of these conditions will cause epilepsy itself…but many can lead to seizures. So consider this a definition of the possibilities…


Anti-Epilepsy Drugs Lose Effectiveness Over Time…

October 10, 2017
17 Comments

It may be the dose prescribed…the type of epilepsy you have…even something as simple as your age or weight. But research shows that, over time, the effectiveness of your anti-epilepsy drug may decline.


Your Thyroid…What Everyone with Epilepsy Should Know

September 3, 2017
8 Comments

Touch your neck, right above your collarbone, and you’ll find a little gland called your thyroid.  It only weighs an ounce, yet this thyroid’s hormones control your metabolism.

When those hormones are balanced, everything is fine.

But if your thyroid makes just a little less or more than you need…it could cause havoc, both with how you function and the effectiveness of your AEDs.


Prescription Switching. Do You Know What You’re REALLY Getting?

August 14, 2017
23 Comments

How many times have you had a prescription switched without your knowledge or permission?

Not just switched to a generic version of the prescribed drug, but to a different drug altogether.

Yet the practice of swapping out medications is perfectly legal in most states…


7 Myths About Medication — and the Facts Behind Them

August 10, 2017
16 Comments

From The Cleveland Clinic: By Family Health Team

Misconceptions about medicine are as common as pills on a pharmacy shelf.

We could all use a healthy dose of the truth.

Cleveland Clinic drug information pharmacist Katie Stabi, PharmD, BCPS, debunks seven of the most common myths about medications below:


Rewiring the Brain with Cell Transplantation

August 9, 2017
5 Comments

Cell transplantation is an emerging approach for treating drug resistant epilepsy.

Regenerative medicine such as this, is a relatively “simple” process in that stem cells are often cultured from the patient’s own tissue, then processed and transfused back into the body.


Epilepsy And Complementary Medicine

July 31, 2017
16 Comments

Complementary Alternative Medicine (CAM) is just what it sounds like. Something to complement the AED regimen you’re already on. And perhaps take an extra step (with your doctor’s go-ahead) to alleviate seizures.

There are lots of alternatives, so I’ll touch on the most popular ones here. (Somehow, I don’t think you’re going to be turning to stones or amulets for relief!)

One third of the patients felt that CAM helped treat their epilepsy better than the AED. However, very few patients considered stopping the AED. Almost all of the patients stated they would feel comfortable informing their physician about CAM use.

“Modern medical therapy often fails, yet modern medical therapy exists because complementary and alternative medicine often fails. Both sides have to recognize each other.”  Dr. Orrin Devinsky


Brain Food for Your Health…

July 28, 2017
16 Comments

Please understand, I am NOT saying that these supplements will cure, treat or prevent epilepsy — but I am saying that we folks with epilepsy have to do everything we can for our brain health.

And these supplements can help a lot with that.

In fact, the nutrients they contain are so important for your brain cells, you really should seriously consider them. That’s how strongly I feel.  And the science backs me up.


28 New Epilepsy Medicines In Development

July 18, 2017
19 Comments

A newly-released report from Pharmaceutical Research and Manufacturers of America (PhRMA) has revealed that 28 new medications are in development to treat epilepsy and seizures.

But that’s just the tip of the iceberg.

These 28 new drugs are among nearly 420 new ground-breaking medicines in progress to treat neurological disorders.


The Staggering Costs of Epilepsy

July 15, 2017
21 Comments

The fact that epilepsy is expensive is no secret. The meds, medical care, the doctors’ visits, hospital bills, health costs, the injuries and finally, the cost of self-esteem.

The statistics are sobering but true…


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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