A newly-released report from Pharmaceutical Research and Manufacturers of America (PhRMA) has revealed that 28 new medications are in development to treat epilepsy and seizures.
But that’s just the tip of the iceberg.
These 28 new drugs are among nearly 420 new ground-breaking medicines in progress to treat neurological disorders.
There are 200,000 new cases of epilepsy each year, and a total of more than 3 million Americans are affected by it.
Yet, public and private funding for epilepsy research lags far behind other neurological afflictions, at $35 a patient (compared, for instance, with $129 for Alzheimer’s and $280 for multiple sclerosis).
“It’s not brain surgery.” And it doesn’t have to be.
There are a host of epilepsy procedures that are minimally invasive.
With drugs costs and insurance costs rising every day, it’s often difficult to get the meds you need. Below is a guide to no-cost or low-cost prescription programs. Pass the word along…
This article is not for those with a weak stomach. Because Stevens-Johnson Syndrome is an ugly and sometimes deadly disease.
But if you are on Dilantin or Lamictal, I urge you to read this information.
How many of us have heard: “Your EEG is normal. You’re fine..”(“It’s all in your head?”)
I know of people who have had 5 EEGs, only to be properly diagnosed when they finally had Video EEG Monitoring.
So if someone is trying to pass you off or is ignoring your symptoms, perhaps you should become a little more familiar with your diagnostic options…
There’s a whole treasure trove of clinical trials information now available as a free service of the National Institutes of Health, developed by the National Library of Medicine (NLM).
ClinicalTrials.gov is a web-based resource that provides patients, family members, health care professionals, researchers, and the public with easy access to information on publicly and privately supported clinical studies on a wide range of diseases and conditions.
Presently, there are 131,167 studies with locations in 179 countries, including the U.S. Studies are easy to search for by topic and location.
The idea that we can implant a Star Trek-type device that will detect seizures and interrupt them without causing injury is entirely new. And exciting. And scary.
Especially for those people with epilepsy that have seizures that begin at one focal point in the brain, but aren’t appropriate for epilepsy surgery.
In this eye-opening article from the New York Times, a neurologist talks about his own journey with epilepsy: his perceptions, other people’s reactions (not good) and how he decided to become a neurologist.
A wonderful account of the doctor as patient and “must” reading for anyone who has epilepsy…
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