Epilepsy Talk

TNS vs. VNS – NO SURGERY!

September 15, 2021
10 Comments

The first Vagus Nerve Stimulator (VNS) was implanted in 1988, as a therapeutic option for medically intractable epilepsy, when elective epilepsy surgery was not appropriate.

As the number of implanted vagus nerve stimulators grows, so does the need to remove or revise the devices.

Which is a little tricky, because of the spiral stimulating electrodes, wrapped around the nerve.


Vagus Nerve Stimulation…Is it for YOU?

September 12, 2021
8 Comments

Having a Vagus Nerve Stimulator implanted can be a tough decision. Is it right for you? Will it work? What are the side effects and consequences?

I did some research and got the low-down on what it is, how it works and some interesting statistics.


Buyer beware!

August 27, 2021
11 Comments

It’s amazing — and scary — how wildly drug prices can vary between pharmacies. And between name brand drugs and generics, especially when you don’t have insurance.

Here are some comparisons:


When it’s not “just” epilepsy…

August 4, 2021
4 Comments

At least 50 percent of adults with active epilepsy are also living with other health conditions say experts at a leading epilepsy medical research charity.


Your Medical Chart — What’s On It?

August 1, 2021
14 Comments

When asked if they’d like to see their doctor’s notes, patients in two new studies overwhelmingly said yes. But doctors weren’t nearly as enthusiastic.


Why would a psychiatrist be embarrassed?

July 23, 2021
7 Comments

Pills. Medication. They’re a sign of mental illness.

Even if you take them for depression, stability, anxiety.

There must be something inherently wrong with you.

What does it mean if you do need medication?

Are you’re crazy? Mentally ill? Unstable? Unreliable?

What if you ARE a psychiatrist AND take medication?


Depressing news about popular painkillers

July 19, 2021
11 Comments

If you thought you were depressed before, wait till you finish this paragraph.

Researchers say popular painkillers could block the effects of antidepressants like Celexa, Zoloft, Paxil, Prozac or Lexapro…


$112 billion new Alzheimer’s drug in question

July 13, 2021
4 Comments

Getting the FDA to retract a decision is like getting the toothpaste back in the tub, after it’s been squeezed out…

Whether it’s “yes” or “no,” there is no “maybe so”.

A good example is the new all star Alzheimer’s drug aducanumab.


Epilepsy Without Vaccinations — The Risks

July 11, 2021
7 Comments

I started this article assured that vaccinations of children with epilepsy was a definite no-no.

And boy, was I surprised.

Basically, medical research has proved me wrong. Real wrong. Including COVID-19 vaccinations.


The Perils of Discontinuing Your Meds

July 9, 2021
18 Comments

One of the most common questions is “when can I stop taking my meds?”

Especially for those whose seizures have been under good control.

It makes sense. Because if you’re doing well, you start to wonder: “Why do I need these meds anymore”?


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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