It starts in the playground. A kid has a seizure and everybody freaks out. Nobody knows what to do.
Maybe not even the school nurse. Even though epilepsy first aid is a cinch.
It’s frightening to see a child seize and then, based on that fright, they think:
“I can’t deal with this.”
Today, things are constantly changing.
Especially when it comes to epilepsy medications and resources.
Some companies have expanded their programs or even offer new ones.
Others have cut their funds, and sadly others have ceased to exist.
Here’s a new and comprehensive list…
One thing I’ve discovered is the search for support groups is endless — and seldom successful.
Especially now that charitable contributions are tight and epilepsy centers have had to cut expenses. (Yes, our support is considered an “expense”.)
That’s why I’ve put together this short guide on how to form your own Epilepsy Support Group.
I think that pro bono legal aid is perhaps more difficult to find than almost anything else in this country, except perhaps, FREE medical care.
But here are six resources where you can find FREE legal aid and assistance.
It’s tricky, because each state has its own laws.
But these organizations can help guide you to the resources available in your area. (The other option is to Google your local Legal Aid office.)
With so many people at the end of their resources, we could all use a helping hand.
Below is my attempt to research viable resources for financial and medication aid.
It starts in the playground. A kid has a seizure and everybody freaks out.
Nobody knows what to do. Maybe not even the school nurse.
Even though epilepsy first aid is a cinch.
It’s frightening to see a child seize and then, based on that fright, they think:
“I can’t deal with this.”
These days, health insurance costs an arm and a leg (literally), if you can even get it. But before you lose hope, here are some resources that might just make the impossible become possible…
Do you have questions about seizures or epilepsy?
The Epilepsy Foundation’s Helpline is now available 24 hours a day, 7 days a week.
Trained information specialists are now standing by to answer your questions about epilepsy and seizures.
When I decided to begin an epilepsy library for reference, I was absolutely overwhelmed by the millions of books out there.
So, I went to Amazon, rolled the dice and ended up spending needless money on a lot of duds.
Don’t get me wrong, some were of value, but most were a waste of time.
So, to save you from my disappointing experience, I’ve combed the web, epilepsy foundations, blogs and wherever else I could think of, to find books that would actually inform, explain and even sometimes, entertain.
I hope you’ll find something of use on this list, which is truly a labor of love…
Here are some wonderfully useful links I’ve found along the way. Some may be familiar and some may be new to you. If you have any additions or suggestions, please, speak out…