Epilepsy Talk

Epilepsy — Top Financial and Medical Assistance Programs

March 19, 2019
1 Comment

With so many people at the end of their resources, we could all use a helping hand.

Below is my attempt to research viable resources for financial and medication aid.


Epilepsy Support Groups

January 28, 2019
10 Comments

One thing I’ve discovered is the search for support groups is endless — and seldom successful. Unless you live in a metropolitan area.

But, if you do find a support group, you’ll find an amazing wealth of camaraderie, compassion and caring.

Not every group does the same things. Even groups with similar activities may have different results because of the individuals involved…but think of it as a learning and bonding experience.

You’re interacting with people who share a similar illness, but perhaps different solutions. You can share your feelings, fears, concerns and perhaps get answers.

But most importantly, you can join a community of caring and know that you’re not alone.


Epilepsy and Education…Coming Out Of The Shadows

December 6, 2018
10 Comments

It starts in the playground.  A kid has a seizure and everybody freaks out. 

Nobody knows what to do.  Maybe not even the school nurse. 

Even though epilepsy first aid is a cinch.

It’s frightening to see a child seize and then, based on that fright, they think:

“I can’t deal with this.”


Health Insurance — No-Cost & Low-Cost

August 17, 2017
10 Comments

These days, health insurance costs an arm and a leg (literally), if you can even get it. But before you lose hope, here are some resources that might just make the impossible become possible…


24/7 Epilepsy Foundation Helpline

July 5, 2017
19 Comments

Do you have questions about seizures or epilepsy?

The Epilepsy Foundation’s Helpline is now available 24 hours a day, 7 days a week.

Trained information specialists are now standing by to answer your questions about epilepsy and seizures.


FREE Prescription Drugs

March 17, 2017
26 Comments

With drugs costs and insurance costs rising every day, it’s often difficult to get the meds you need. Below is a guide to no-cost or low-cost prescription programs. Pass the word along…


Expanded Guide to Epilepsy Books for People of All Ages

August 31, 2014
8 Comments

When I decided to begin an epilepsy library for reference, I was absolutely overwhelmed by the millions of books out there.

So, I went to Amazon, rolled the dice and ended up spending needless money on a lot of duds.

Don’t get me wrong, some were of value, but most were a waste of time.

So, to save you from my disappointing experience, I’ve combed the web, epilepsy foundations, blogs and wherever else I could think of, to find books that would actually inform, explain and even sometimes, entertain.

I hope you’ll find something of use on this list, which is truly a labor of love…


Where to Go When You Need Help — Directory of Epilepsy Resources

November 21, 2013
6 Comments

Here are some wonderfully useful links I’ve found along the way. Some may be familiar and some may be new to you. If you have any additions or suggestions, please, speak out…


Adult Epilepsy Support Groups

November 2, 2013
21 Comments

Here’s a list of Adult Epilepsy Support Groups across the country that I’ve compiled. Hopefully it will be of help.

If you have any additions or suggestions, please, sing out!!!


Special Education — Expectations and the Law

September 8, 2013
16 Comments

Special educational ensures that your child needs are met (legally) if they have learning difficulties that need special help at school.

Technically, it’s called a special education provision.

And there may be a special educational needs coordinator (SENCO) at the school who can look at your child’s needs, alongside the school’s governing body (often the local authority’s education department).


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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