Epilepsy Talk

Secrets to Better Care from Your Doctor…

January 9, 2022
2 Comments

When you go to see a doctor, often the visit seems to be over in a flash and you leave wondering exactly what it was the doctor wanted you to do.

Doctors are often quite busy and may not present you with all the necessary information so it is your responsibility to take steps to get the most out of your visit.

If regular visits with your neurologist seem short, and taken up with medical details like seizure control and medication issues, ask in advance for a longer time to be scheduled to deal with other issues that are important to you.

Be prepared…


2022 Patient Recommendations for TOP Neurologists…Epileptologists…Neurosurgeons…and Pediatric Doctors

January 8, 2022
8 Comments

Below is a compilation by website forum members who have had positive personal experiences with docs over the years.

This list is based on recommendations and, of course, is purely subjective. But it might be helpful for anyone looking for a good Neurologist…Epileptologist…Neurosurgeon…or Pediatric Doctor.


Advance Health Care Directives and Living Wills

December 22, 2021
2 Comments

Most people don’t want to think about death and dying — so they don’t. Until they have to.

Unfortunately, that often means that families are left struggling with difficult decisions about important matters, such as whether or not Mom would like to be kept alive using a ventilator, or who should be in charge of managing Dad’s financial affairs.

Because Mom or Dad never made clear what they wanted for themselves…


Even Beginners Can Curb Pain With Meditation

December 6, 2021
1 Comment

Meditation has long been touted as a holistic approach to pain relief. And studies show that long-time meditators can tolerate quite a bit of pain.

Now researchers at Wake Forest Baptist Medical Center have found you don’t have to be a lifelong Buddhist monk to pull it off. Novices were able to tame pain after just a few training sessions.


Stop the FDA from regulating supplements and nutrients

December 3, 2021
8 Comments

The Dietary Supplement Labeling Act pretends to be consumer-oriented, but instead will give the FDA redundant power that it could easily misuse, restricting your access to nutritional supplements and raising the cost of buying them.

In short, nutritional supplements will be regulated like prescription drugs…


Prevent Medication Changes… 

November 29, 2021
4 Comments

This letter has been created by the Epilepsy Foundation to make explicitly sure that no substitutions are made to your prescription without full consent by you and your doctor. You might want to make a copy of it for your files.


Explaining Epilepsy to a Friend… 

November 26, 2021
12 Comments

Explaining epilepsy to a friend is no easy matter. Sometimes they may be scared. Some may be curious. Some may want to help. Some may want to flee.

But, obviously, those who care will want to understand you. For those friends, here are some brief epilepsy facts:


28 Ways to Boost Energy Instantly

November 7, 2021
7 Comments

“I feel like I’m burning the candle at neither end.” All burned out.

Is it epilepsy? Is it chemistry?

It’s more than that. It’s resignation. Depression. No way out.

So, it should be no surprise that studies show:

Fatigue was more frequent in epilepsy patients than controls or general population.

Depression and sleep-related problems affected fatigue in epilepsy patients.

And the frequency of fatigue was 47.1% in adult patients with epilepsy.

WHAT DO I DO?


Super Seizure De-Stressor 

November 7, 2021
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We all know that stress is a super trigger for seizures. Whether it’s family, friends, frustrations, conflict, work, school, fear, anger, anxiety, depression. The list is almost endless.

While nobody can say there’s a magic formula for de-stressing, you might give Progressive Muscle Relaxation a try. It’s a pretty powerful tool.


The Mystery of Epilepsy and Celiac Disease

November 4, 2021
10 Comments

The relationship between celiac disease and epilepsy has been documented in medical journals for decades. Yet neurologists rarely consider it as an underlying possibility in cases of idiopathic epilepsy.

It never ceases to amaze me what an impact celiac disease can have on one’s life and quality of life, but there is no routine testing for it. Yet, I‘ve been told (and have read) that very few people with epilepsy are told of the possibility of celiac disease!


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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