It’s amazing — and scary — how wildly drug prices can vary between pharmacies, especially when you don’t have insurance.
Here are some comparisons:
Posted in
Epilepsy,
Medication Issues,
TipsTags:
Canada,
Costco,
CVS,
discounts,
Duane Reade,
generics,
GoodRx,
Medication Issues,
name brand drugs,
no insurance,
Prescription Hope,
prescriptions,
retail,
Target,
Walgreen's
You’re scared. Who wouldn’t be?
The docs. There are lots of terrific ones.
The tests. They can actually help to correctly diagnose your epilepsy.
I’ll die. Not very likely.
My life is over. No, it’s not, but it will change…
Please understand, I am NOT saying that these supplements will cure, treat or prevent epilepsy — but I am saying that we folks with epilepsy have to do everything we can for our brain health.
And these supplements can help a lot with that.
In fact, the nutrients they contain are so important for your brain cells, you really should seriously consider them. That’s how strongly I feel. And the science backs me up.
Posted in
Epilepsy,
Medication Issues,
TipsTags:
Acetyl-L-Carnitine,
B Complex Vitamins,
B12,
B6,
brain health,
Calcium,
CoQ10,
fish oil,
Folic Acid,
magnesium,
potassium,
supplements,
Vitamin D,
Vitamin E,
vitamins,
zinc
“No one is in control of your happiness but you; therefore you have the power to change anything about yourself or your life that you want to change.” — Barbara de Angelis
We all know that epilepsy is no day at the beach. You may feel depression, anxiety, fear, isolation, anger, or a whole host of other things, too may to mention.
But, if you dig deep into yourself, perhaps there’s a few things you can do to relieve those feelings.
Here are some ideas…
Posted in
Epilepsy,
TipsTags:
dream,
EEGs,
Epilepsy,
equalizing brain waves,
gratitude,
happiness,
laugh,
music,
positive thinking,
read,
self-esteem,
socialize,
soothe tension,
talk
It’s called “burn out.”
Because, let’s face it, being a caregiver is exhausting.
You may feel guilt, resentment, anger, anxiety or helplessness.
You may have to give up your income and career prospects to care for someone.
Even if you love the person very deeply, it can feel as though the focus is always on them and your needs and wishes go unnoticed.
Often you deal with the situation alone and feel very isolated. (My mother-in-law didn’t leave the house for two years when my father-in-law was dying.)
But you can’t do anything to help another person if you’re a basket case yourself.
We all know that stress is a super trigger for seizures. Whether it’s family, friends, frustrations, conflict, work, school, fear, anger, anxiety, depression. The list is almost endless.
While nobody can say there’s a magic formula for de-stressing, you might give Progressive Muscle Relaxation a try. It’s a pretty powerful tool.
I have a confession to make.
I was the queen of “Post-Its”. I had Post-Its on tables, counters, walls, doors. I don’t know how I lived without them.
I guess, in the “old” days, I was the same with lists. Many lists. And way too much Scotch Tape.
Factoid: The man who invented Post-Its was an employee at 3M (also the maker of Scotch Tape) who went to his boss with a bright new idea.
I don’t know if he got a raise, but he gets no royalties. Just my undying admiration and thanks.
Anyway, short of taking stock in 3M, here are some other suggestions…
Posted in
Epilepsy,
TipsTags:
addresses,
alarm,
appointment books,
appointments,
automatic shut-off,
“don’t-lose-it basket",
calendar,
copies,
devices,
GPS,
LastPass,
light and sound,
memo pads,
memory,
navigation systems,
numbers,
passwords,
PDAs,
pillbox,
security codes,
smart phone,
smart watch,
tape recorder,
technology,
texts
When I was on vacation, I was so relaxed that I kept on forgetting to take my meds. More than once. So when I got home (when I was less relaxed), I looked into some things that might help.
Because, let’s face it. We all forget to take our meds. One time or another. No matter what we have to take or when we have to take them. No matter how hard we try.
When you go to see a doctor, often the visit seems to be over in a flash and you leave wondering exactly what it was the doctor wanted you to do.
Doctors are often quite busy and may not present you with all the necessary information so it is your responsibility to take steps to get the most out of your visit.
If regular visits with your neurologist seem short, and taken up with medical details like seizure control and medication issues, ask in advance for a longer time to be scheduled to deal with other issues that are important to you.
Be prepared…
Posted in
Epilepsy,
TipsTags:
be prepared,
better care,
contact number,
doctor,
emergency,
list questions,
partners,
relationship,
share concerns,
take notes,
understand
Below is a compilation by website forum members who have had positive personal experiences with docs over the years.
This list is based on recommendations and, of course, is purely subjective. But it might be helpful for anyone looking for a good Neurologist…Epileptologist…Neurosurgeon…or Pediatric Doctor.
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