Epilepsy Talk

Epilepsy and Exercise

September 24, 2020
27 Comments

Many people with epilepsy, especially those with uncontrolled seizures, live a sedentary life and have low physical fitness.

Because they’ve been told that exercise can trigger seizures. 

Not necessarily so. At least for a large population of those with epilepsy.

Clinical and experimental studies have analyzed the effect of physical exercise on epilepsy.

The result? Exercise can be beneficial.


21 Praises of Wisdom to Pass On…

August 24, 2020
17 Comments

Everyone has a mantra that they live by. Here are some on mine.

Feel free to add to the list.


12 Recipes For Happiness — Even If You Have Epilepsy!

August 14, 2020
8 Comments

No one is in control of your happiness but you; therefore you have the power to change anything about yourself or your life that you want to change.” — Barbara de Angelis

We all know that epilepsy is no day at the beach. You may feel depression, anxiety, fear, isolation, anger, or a whole host of other things, too may to mention.

But, if you dig deep into yourself, perhaps there’s a few things you can do to relieve those feelings.

Here are some ideas…


Doctors behaving badly…

July 16, 2020
24 Comments

We all have had at least one experience when a doctor either behaved badly or treated us in a way we didn’t feel we deserved.

“He could have spoken in a nicer tone,” you might mumble to your husband.

But what do you do when the experience with a doctor takes a sharper turn?

What if he doesn’t believe your symptoms or validate your experience?

What if he doesn’t take into account your pain before beginning an in-office procedure?

The shock, fear, and disappointment of having a bad doctor experience can be daunting.

What can you do?


Heat Is Not Our Friend…

July 3, 2020
26 Comments

And it can trigger some pretty awful consequences.

Like the time I was gardening at high noon. (What was I thinking about?) I fell backwards, hitting my head on the walkway. And I couldn’t ask for help because I was out cold. Baking in the sun.

And I’m sure you have your own stories. About passing out, puking or just feeling like you’re as dizzy as if you were on a roller coaster ride.

An epileptologist explained that heat can trigger a seizure for some people because it’s firing up the neurons in the brain which can cause a seizure.

Some examples:


10 Ways to Cope with Your Stress and Anxiety

June 24, 2020
24 Comments

You’re choking. You’re drowning. You’re going down for the count. How many times have we all been there?

I’m sure everyone has their own way of coping — or else we wouldn’t be here.

Nonetheless, here are some helpful tips to get you over that hump…


CBT — When you feel that you’ve hit rock bottom…

June 13, 2020
7 Comments

Sara had a brain surgery gone wrong. She spent all of her savings and all of her resources on rehab. One year later, she went home, only to be able to toilet herself and say “dog”. She was lost.

Both physically and mentally. You might say she was “a basket case”.  

Sandy was in a near fatal car accident. She survived, but just barely. After her physical healing, she said she couldn’t put two sentences together.

Then she heard about CBT.


Epilepsy And Complementary Medicine…

June 11, 2020
9 Comments

Complementary Alternative Medicine (CAM) is just what it sounds like. Something to complement the AED regimen you’re already on. And perhaps take an extra step (with your doctor’s go-ahead) to alleviate seizures.

There are lots of alternatives, so I’ll touch on the most popular ones here. (Somehow, I don’t think you’re going to be turning to stones or amulets for relief!)


12 Things Your Doctor Won’t Tell You…

May 29, 2020
13 Comments

Modern medicine can do miraculous things — but every test and treatment has a downside.

And your doctor may not disclose the dangers without prompting, a new survey finds.

Researchers surveyed 2,700 patients who’d recently decided whether or not to have surgery, take a medication, or undergo cancer screening.

Most reported their physician spent far more time talking up the benefits of each choice than explaining the risks.


Breathing Your Stress Away…

May 10, 2020
34 Comments

A little while ago, when I went to my doc, I told him I felt like I was jumping out of my skin.  I’m already maxed out on meds, so he suggested breathing exercises as a complimentary addition to my regimen.

I’ve started them and already, I feel better!


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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