Epilepsy Talk

What to Know About Telemedicine for Epilepsy…

April 3, 2021
1 Comment

With telemedicine, programs can be designed to enhance patient involvement.

What’s more, telemedicine can be an important factor in follow-up care, and reducing costs!

It can address urgent questions, advise on drug-related adverse effects, and sort out other concerns for optimum remote epilepsy management.

For an excellent article about telemedicine, go to the link below:


Epilepsy Bill Of Rights

March 23, 2021
8 Comments

The Bill of Rights for People Living with Epilepsy was created for people living with epilepsy by people living with epilepsy and was spearheaded by The Epilepsy Foundation in conjunction with many concerned contributors.

If you don’t know about these rights, please read on…


Keppra — What People Are Saying

March 11, 2021
50 Comments

When Keppra was approved as an add-on medicine for partial seizures, including partial seizures with secondary generalization, at the time, it was suggested that Keppra might have a universally positive effect on all seizure types.

That’s all fine and good for researchers who aren’t struggling with epilepsy every day.  But here’s a random sampling of what real people – like you and me – have to say…


Some Stress and Anxiety Solutions…

March 8, 2021
26 Comments

Sometimes my hands shake so much, I look like I’m leading a symphony. (Without a baton.) Legs too, I have to sit down.

Maybe you panic before a test, the very fear of having a seizure, social rejection, job anxieties, debt, fear of failure, an anticipated argument, holidays, fear of flying.

Or the daunting prospect of being alone without any support system. Or even death itself.

There are probably as many kinds of stress and panic attacks as there are those of us who suffer from them.

And behaviors: trembling, sweating, hyperventilating, breathlessness, feeling faint or light-headed, a sense of disorientation, cramping, nausea, your heart pounding like it’s going to explode from your chest, a fear of dying.

Or you’re just plain scared.

I could go on forever. And I’m sure you could, too.


“Vaccine Angels” Make it Easier to Find COVID-19 Vaccination Appointments

March 2, 2021
83 Comments

They’re here…they’re there…they’re nowhere.

Anyone stay up to till midnight trying to get a slot on the Rite Aid spot?

Arthur has three times. Yes, hope springs eternal.

Here’s how it works:

Applications for the next day begin at midnight. So, at the opening gong, you get on the phone.

Eureka! there’s a spot available. Fill out the necessary information. Submit it. The slot is gone.

Try tomorrow night sucker.


Gaslighting — What to Do When It Happens To You

October 15, 2020
55 Comments

Is your doctor making you feel crazy? Like it’s all in your head? Could you be a hypochondriac?

You must be imagining your symptoms. Of maybe you’re just in a panic.

“Go home and take two Advil. Or maybe two Xanax. You’ll feel fine when this blows over. I assure you.”

Maybe you should have gone to Google first.


Epilepsy and Exercise

September 24, 2020
41 Comments

Many people with epilepsy, especially those with uncontrolled seizures, live a sedentary life and have low physical fitness.

Because they’ve been told that exercise can trigger seizures. 

Not necessarily so. At least for a large population of those with epilepsy.

Clinical and experimental studies have analyzed the effect of physical exercise on epilepsy.

The result? Exercise can be beneficial.


21 Praises of Wisdom to Pass On…

August 24, 2020
17 Comments

Everyone has a mantra that they live by. Here are some on mine.

Feel free to add to the list.


12 Recipes For Happiness — Even If You Have Epilepsy!

August 14, 2020
8 Comments

No one is in control of your happiness but you; therefore you have the power to change anything about yourself or your life that you want to change.” — Barbara de Angelis

We all know that epilepsy is no day at the beach. You may feel depression, anxiety, fear, isolation, anger, or a whole host of other things, too may to mention.

But, if you dig deep into yourself, perhaps there’s a few things you can do to relieve those feelings.

Here are some ideas…


Doctors behaving badly…

July 16, 2020
24 Comments

We all have had at least one experience when a doctor either behaved badly or treated us in a way we didn’t feel we deserved.

“He could have spoken in a nicer tone,” you might mumble to your husband.

But what do you do when the experience with a doctor takes a sharper turn?

What if he doesn’t believe your symptoms or validate your experience?

What if he doesn’t take into account your pain before beginning an in-office procedure?

The shock, fear, and disappointment of having a bad doctor experience can be daunting.

What can you do?


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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