Epilepsy Talk

Your Hospital Rights…

November 3, 2019
29 Comments

Did you know?

1. You have the right to be treated with respect, whatever your condition, whatever your reason for being admitted to the hospital…


If You’re Thinking Of Getting Pregnant…

November 3, 2019
3 Comments

Years ago, women who had epilepsy were often discouraged from getting pregnant. Today, that’s no longer the case.

Thanks to early and regular prenatal care, more than 90 percent of pregnant women who have epilepsy deliver healthy babies, according to the Epilepsy Foundation.


Some Stress and Anxiety Solutions…

October 27, 2019
83 Comments

Sometimes my hands shake so much, I look like I’m leading a symphony. (Without a baton.) Legs too, I have to sit down.

Maybe you panic before a test, the very fear of having a seizure, social rejection, job anxieties, debt, fear of failure, an anticipated argument, holidays, fear of flying.

There are probably as many kinds of stress and panic attacks as there are those of us who suffer from them.

And behaviors: trembling, sweating, hyperventilating, breathlessness, feeling faint or light-headed, a sense of disorientation, cramping, nausea, your heart pounding like it’s going to explode from your chest, a fear of dying.

Or you’re just plain scared.


FREE — Attorney’s Advice On Personal Security — No Charge!

October 7, 2019
11 Comments

A corporate attorney sent the following out to the employees in his company.

Read this and make a copy for your files in case you need to refer to it someday.

Maybe we should all take some of his advice!


A Caregiver’s Guide to Survival…

September 18, 2019
10 Comments

It’s called “burn out.” Because, let’s face it, being a caregiver is exhausting.

You may feel guilt, resentment, anger, anxiety or helplessness.

You may have to give up your income and career prospects to care for someone.

Even if you love the person very deeply, it can feel as though the focus is always on them and your needs and wishes go unnoticed. 

Often you deal with the situation alone and feel very isolated.

(My mother-in-law didn’t leave the house for two years when my father-in-law was dying.)

But you can’t do anything to help another person if you’re a basket case yourself.

To be the best caregiver possible, you need to be physically and emotionally well, yourself.

After all, how effective can you be…


The Hill-Burton Act: The Government’s Best-Kept Secret

September 15, 2019
1 Comment

Years ago, two men with the last names of Hill and Burton created a bill which assists people with medical expenses, unable to pay them.

It’s only for people of limited financial means. 

However, if you Google “Hill-Burton Act” or go to https://www.hrsa.gov/get-health-care/affordable/hill-burton/facilities.html you’ll find a gold mine of information about who qualifies, which facilities are obligated to provide free or reduced-cost health care and how to apply.


How to Start Your Own Adult Epilepsy Support Group

August 14, 2019
2 Comments

One thing I’ve discovered is the search for support groups is endless — and seldom successful.

Especially now that charitable contributions are tight and epilepsy centers have had to cut expenses. (Yes, our support is considered an “expense”.)

That’s why I’ve put together this short guide on how to form your own Epilepsy Support Group.


7 Myths About Medication — and the Facts Behind Them

August 11, 2019
10 Comments

Misconceptions about medicine are as common as pills on a pharmacy shelf.

We could all use a healthy dose of the truth.

Cleveland Clinic drug information pharmacist Katie Stabi, PharmD, BCPS, debunks seven of the most common myths about medications below:


Depression is quiet

July 31, 2019
15 Comments

Depression is quiet.

You would be surprised with how many people in your life could be going through depression at this very moment.

People hide it like a paper bag over their heads, out of fear of being judged, made fun of, seen as weak, or just not taken seriously.

Anyone can fall victim to it.


Laugh a little — it’s good for your health!

June 14, 2019
8 Comments

They say that “laughter is the best medicine.”

Well, believe it or not, it could help your EEG results!


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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