Epilepsy Talk

Help Line

September 25, 2017
5 Comments

The secret here is the numbers 211.

Go to the website: http://www.211.org/. Where available, 211 allows people to give help and to get help.

211 can also give people who live in rural areas better access to health and human service information.


Posted in Epilepsy, Tips

Epilepsy and Exercise

September 7, 2017
15 Comments

Many people with epilepsy, especially those with uncontrolled seizures, live a sedentary life and have low physical fitness.

Because they’ve been told that exercise can trigger seizures. 

Not necessarily so.  At least for a large population of those with epilepsy.

Clinical and experimental studies have analyzed the effect of physical exercise on epilepsy.

The result? Exercise can be beneficial.


Health Insurance — No-Cost & Low-Cost

August 17, 2017
6 Comments

These days, health insurance costs an arm and a leg (literally), if you can even get it. But before you lose hope, here are some resources that might just make the impossible become possible…


7 Myths About Medication — and the Facts Behind Them

August 10, 2017
16 Comments

From The Cleveland Clinic: By Family Health Team

Misconceptions about medicine are as common as pills on a pharmacy shelf.

We could all use a healthy dose of the truth.

Cleveland Clinic drug information pharmacist Katie Stabi, PharmD, BCPS, debunks seven of the most common myths about medications below:


Epilepsy And Complementary Medicine

July 31, 2017
16 Comments

Complementary Alternative Medicine (CAM) is just what it sounds like. Something to complement the AED regimen you’re already on. And perhaps take an extra step (with your doctor’s go-ahead) to alleviate seizures.

There are lots of alternatives, so I’ll touch on the most popular ones here. (Somehow, I don’t think you’re going to be turning to stones or amulets for relief!)

One third of the patients felt that CAM helped treat their epilepsy better than the AED. However, very few patients considered stopping the AED. Almost all of the patients stated they would feel comfortable informing their physician about CAM use.

“Modern medical therapy often fails, yet modern medical therapy exists because complementary and alternative medicine often fails. Both sides have to recognize each other.”  Dr. Orrin Devinsky


Buyer Beware!

July 11, 2017
8 Comments

It’s amazing — and scary — how wildly drug prices can vary between pharmacies. And between name brand drugs and generics, especially when you don’t have insurance.

Here are some comparisons:


10 Companies Hiring for Jobs You Can Do at Home

July 8, 2017
9 Comments

These companies have remote jobs that may be great for people with chronic illnesses or disabilities.


24/7 Epilepsy Foundation Helpline

July 5, 2017
13 Comments

Do you have questions about seizures or epilepsy?

The Epilepsy Foundation’s Helpline is now available 24 hours a day, 7 days a week.

Trained information specialists are now standing by to answer your questions about epilepsy and seizures.


In Case of Emergency — New Solutions

May 26, 2017
25 Comments

Here are some methods to stop a seizure in its tracks. Or shorten one. And some help relieve you of the dreaded after-effects. Possibilities you might not have known about…especially the new nasal sprays.


I Just Had To Share This…

March 26, 2017
8 Comments

No, this is not an advertisement. Nor is it an endorsement.

But I just read this article about Direct Primary Care by Lydia Ramsey, reporter for the Business Insider’s Science Section and thought you should know about it. Because it’s a real break-through in medical care.

Especially in reference to your choice of a Personal Care Physician.

Perhaps “Direct Primary Care” sounds too general and is not specific enough for those of us who have epilepsy. But for those who have “healthy” family members, it sounds like a real “find”.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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