Epilepsy Talk

Epilepsy Fighting Foods

March 16, 2018

They say: “You are what you eat.” Not necessarily.

Here are some suggestions for sensible eating and supplementing your diet.

Of course everyone is different — with different needs — and on different meds.

But there are some rules that hold true…

2018 Patient Recommendations for TOP Neurologists…Epileptologists… Neurosurgeons…and Pediatric Doctors

January 6, 2018

Below is a compilation by website forum members who have had positive personal experiences with docs over the years.

This list is based on recommendations and, of course, is purely subjective. But it might be helpful for anyone looking for a good Neurologist…Epileptologist…Neurosurgeon…or Pediatric Doctor.

It’s YOUR Turn!

November 1, 2017

Need advice? Want to vent? This is the place for you…

Help Line

September 25, 2017

The secret here is the numbers 211.

Go to the website: http://www.211.org/. Where available, 211 allows people to give help and to get help.

211 can also give people who live in rural areas better access to health and human service information.

Posted in Epilepsy, Tips

Epilepsy and Exercise

September 7, 2017

Many people with epilepsy, especially those with uncontrolled seizures, live a sedentary life and have low physical fitness.

Because they’ve been told that exercise can trigger seizures. 

Not necessarily so.  At least for a large population of those with epilepsy.

Clinical and experimental studies have analyzed the effect of physical exercise on epilepsy.

The result? Exercise can be beneficial.

Health Insurance — No-Cost & Low-Cost

August 17, 2017

These days, health insurance costs an arm and a leg (literally), if you can even get it. But before you lose hope, here are some resources that might just make the impossible become possible…

7 Myths About Medication — and the Facts Behind Them

August 10, 2017

From The Cleveland Clinic: By Family Health Team

Misconceptions about medicine are as common as pills on a pharmacy shelf.

We could all use a healthy dose of the truth.

Cleveland Clinic drug information pharmacist Katie Stabi, PharmD, BCPS, debunks seven of the most common myths about medications below:

Epilepsy And Complementary Medicine

July 31, 2017

Complementary Alternative Medicine (CAM) is just what it sounds like. Something to complement the AED regimen you’re already on. And perhaps take an extra step (with your doctor’s go-ahead) to alleviate seizures.

There are lots of alternatives, so I’ll touch on the most popular ones here. (Somehow, I don’t think you’re going to be turning to stones or amulets for relief!)

One third of the patients felt that CAM helped treat their epilepsy better than the AED. However, very few patients considered stopping the AED. Almost all of the patients stated they would feel comfortable informing their physician about CAM use.

“Modern medical therapy often fails, yet modern medical therapy exists because complementary and alternative medicine often fails. Both sides have to recognize each other.”  Dr. Orrin Devinsky

Buyer Beware!

July 11, 2017

It’s amazing — and scary — how wildly drug prices can vary between pharmacies. And between name brand drugs and generics, especially when you don’t have insurance.

Here are some comparisons:

10 Companies Hiring for Jobs You Can Do at Home

July 8, 2017

These companies have remote jobs that may be great for people with chronic illnesses or disabilities.

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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