Epilepsy Talk

How to Start Your Own Adult Epilepsy Support Group

August 14, 2019
2 Comments

One thing I’ve discovered is the search for support groups is endless — and seldom successful.

Especially now that charitable contributions are tight and epilepsy centers have had to cut expenses. (Yes, our support is considered an “expense”.)

That’s why I’ve put together this short guide on how to form your own Epilepsy Support Group.


7 Myths About Medication — and the Facts Behind Them

August 11, 2019
10 Comments

Misconceptions about medicine are as common as pills on a pharmacy shelf.

We could all use a healthy dose of the truth.

Cleveland Clinic drug information pharmacist Katie Stabi, PharmD, BCPS, debunks seven of the most common myths about medications below:


Depression is quiet

July 31, 2019
9 Comments

Depression is quiet.

You would be surprised with how many people in your life could be going through depression at this very moment.

People hide it like a paper bag over their heads, out of fear of being judged, made fun of, seen as weak, or just not taken seriously.

Anyone can fall victim to it.


Laugh a little — it’s good for your health!

June 14, 2019
8 Comments

They say that “laughter is the best medicine.”

Well, believe it or not, it could help your EEG results!


12 Recipes For Happiness — Even If You Have Epilepsy!

June 11, 2019
10 Comments

“No one is in control of your happiness but you; therefore you have the power to change anything about yourself or your life that you want to change.” — Barbara de Angelis

We all know that epilepsy is no day at the beach. You may feel depression, anxiety, fear, isolation, anger, or a whole host of other things, too may to mention.

But, if you dig deep into yourself, perhaps there’s a few things you can do to relieve those feelings.

Here are some ideas…


Epilepsy and Melatonin – Yes? No? Or Maybe So?

June 7, 2019
27 Comments

Most of us are familiar with melatonin and it’s purpose: To help you sleep. Or at least to help you get to sleep.

In fact, melatonin is one of the most commonly used supplements in the United States. (Lots of sleepless people out there!)

Scientifically speaking, melatonin is a hormone synthesized from serotonin, the “feel good” hormone.


12 Sleep Tricks

June 4, 2019
8 Comments

We all know that sleep deprivation can trigger seizures.

Some people’s seizures are tied very closely with their sleep. You may have all of your seizures while sleeping, when falling asleep or waking up.

Lot of things can affect your sleep and make you more likely to have seizures. Here are a few factors to consider:


Chicken Soup for the Soul…

May 2, 2019
7 Comments

I’m off to take care of my niece who has ongoing tonsillitis. 

To offer a little comfort and care.

And what better way than a batch of homemade chicken soup?

This recipe is relatively quick and easy to make.

Try it:


Brain Surgery – Questions to Prepare Yourself

April 19, 2019
10 Comments

How many times have you heard: “Well, it isn’t exactly brain surgery.” Well this time it is.

And it’s your brain.

It’s a scary trip into the unknown. Thoughts are swirling around in your head: What will happen to me? Is this the right thing to do? Is this really the best surgeon for the job? What if it doesn’t work? Maybe I should put it off…

It’s really hard to be prepared for something as radical as brain surgery – either physically or emotionally. That’s why it’s important to gather all the information you can, before hand.

Remember: Knowledge is power.


FREE Legal Resources

March 27, 2019
28 Comments

I think that pro bono legal aid is perhaps more difficult to find than almost anything else in this country, except perhaps, FREE medical care. 

But here are six resources where you can find FREE legal aid and assistance.

It’s tricky, because each state has its own laws. 

But these organizations can help guide you to the resources available in your area.  (The other option is to Google your local Legal Aid office.)


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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