Epilepsy Talk

“Vaccine Angels” Make it Easier to Find COVID-19 Vaccination Appointments

March 2, 2021
36 Comments

They’re here…they’re there…they’re nowhere.

Anyone stay up to till midnight trying to get a slot on the Rite Aid spot?

Arthur has three times. Yes, hope springs eternal.

Here’s how it works:

Applications for the next day begin at midnight. So, at the opening gong, you get on the phone.

Eureka! there’s a spot available. Fill out the necessary information. Submit it. The slot is gone.

Try tomorrow night sucker.


Foods That Fight Stress…

March 2, 2021
11 Comments

I worked as a writer in the health and wellness field for more than ten years.

So I know a thing or two about this stuff.  (And stress!)

But I also know from personal experience that epilepsy is a very unique condition.

Between all the different types of seizures, and triggers, and meds…there is no one-size-fits-all solution.

The same goes for de-stressing your diet.

What works for one might not work for another.

And it certainly doesn’t take the place of meds.

However, I do believe that although living a healthy lifestyle won’t cure you…it can certainly help you.

So, here’s some information for sensible stress-busting eating…


A New Life – From Epilepsy to Brain Surgery

February 26, 2021
11 Comments

Leanne Chilton, triumphant author of “Seizure-Free: From Epilepsy to Brain Surgery, I Survived and You Can, Too!” is a proud survivor and has a wealth of wisdom to share.

“We can’t control the future,” she says. “But we can make every attempt to improve the quality of our lives.”

With a seizure disorder, you are condemned to fearing a life without either freedom or control…


Anti-Epilepsy Drugs and Osteoporosis – It’s Not Just a Women’s Disease

February 24, 2021
14 Comments

A research team consisting of epilepsy specialists and epidemiologists (persons who study the causes and control of diseases) reports on a study that answered an important but simple question:

Do anti-seizure drugs cause reductions in bone density?

Why ask this question?


The Perils of Discontinuing Your Meds

February 21, 2021
20 Comments

One of the most common questions is “when can I stop taking my meds?”

Especially for those whose seizures have been under good control.

It makes sense. Because if you’re doing well, you start to wonder: “why do I need these meds anymore”?


Why Won’t You Play With Me?

February 19, 2021
9 Comments

Once upon a time there was this girl named Ellen.

She had epilepsy and she hated the world.

So the world hated her back.

She had no friends and didn’t speak to anybody.

In turn, nobody spoke to her. Except the occasional bully.


32% of Epilepsy Cases are Secretly Caused by This…

February 16, 2021
21 Comments

Touch your neck, right above your collarbone, and you’ll find a little gland called your thyroid. 

It only weighs an ounce, yet this thyroid’s hormones control your metabolism.

When those hormones are balanced, everything is fine.

But if your thyroid makes just a little less or more than you need…it could cause havoc, both with how you function and the effectiveness of your AEDs.


Ever Had a Seizure in Your Sleep?

February 13, 2021
22 Comments

According to an article in Journal of Neurology, Neurosurgery & Psychiatry, if more than 90 percent of your seizures occur while sleeping, you are said to have sleep seizures.

The article also notes that an estimated 7.5 percent to 45 percent of people who have epilepsy have some form of sleep seizures.


Brave New Cures for the Future — Epilepsy and Neuroengineering

February 8, 2021
5 Comments

It’s only recently that Neuroengineering first appeared.

Neuroengineering is a discipline at the frontier between neuroscience and engineering.

It encompasses experimental, computational, theoretical, clinical and applied aspects of research areas at the molecular, cellular and systems levels.

The emergence of this new field focuses on a multi-science combination of engineers, neuroscientists and clinicians using their combined knowledge and talent, working co-operatively to address the complexity of the brain and nervous system.


Dating Disasters and Epilepsy

February 5, 2021
15 Comments

When I was a teen I fell down, walked into walls, bumped into virtually everything in my path, and almost drowned in the shower.

So, you can imagine what a disaster dating was.

Of course, in my infinite wisdom, I would never tell my dates that I had epilepsy. 

My parents wouldn’t even utter the word, so rather than become a pariah, I kept my mouth shut.

Bad idea…


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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