Epilepsy Talk

Good news, there’s a new AED in town!

December 4, 2019
47 Comments

On November 19, 2019, the U.S. Food and Drug Administration approved cenobamate (XCOPRI®) for the treatment of focal epilepsy in adults. This medication will be available in the pharmacy by the spring or summer of 2020.


Blood Tests May Help Diagnose Epilepsy

December 4, 2019
31 Comments

A recent study shows that a simple blood test can determine whether or not someone has had an epileptic seizure.

Doctors at Stanford University, California, reveal that the level of the hormone prolactin may be indicative of the type of seizure and can be measured by this blood test.

The blood test which must be used within 10 to 20 minutes after a seizure, can identify generalized tonic-clonic seizures and complex partial seizures in both adults and older children, because the level of prolactin in the blood goes up.


What would you do if you knew you couldn’t fail?

November 29, 2019
9 Comments

All of us have dreams. Some become reality…and some stay in our imaginations.

For me, writing was my “dream”.  And it became a reality when I discovered a way I could write without starving.


Thanks for the Giving…

November 27, 2019
9 Comments

There’s so very much to be thankful for…


Hormonal Imbalances and Seizures in Women

November 25, 2019
37 Comments

Many women with epilepsy have asked their doctors about the connection between seizures and hormones, but not every woman has seen her concerns given the attention she’d hoped for.

Although it is not very well understood at this point, there are scientifically documented connections between seizures and hormones that not all physicians are educated about.

What are hormones?


Sodium and Seizures

November 22, 2019
11 Comments

You may think that sodium is a “bad guy” to be avoided or reduced at all cost, because too much is linked to high blood pressure.

But sodium is actually an essential electrolyte, and a deficiency can trigger seizures.

Seizures from low sodium levels are most likely to occur from a serious disease, acute infection or because you tried to run a marathon on a hot day.

One-time or isolated seizures from these causes don’t warrant a diagnosis of epilepsy.

However, epilepsy is sometimes misdiagnosed and you may have an underlying health condition that’s causing an electrolyte problem.


My little bundle of love is home…

November 19, 2019
31 Comments

We’re back from Chicago, after getting home at 2:30 in the morning.

Emily is a cute as can be. Right now she looks like a little twig. All brown and a little over two pounds.


Away I go, from Saturday 11/16 through Tuesday 11/19

November 16, 2019
17 Comments

You might remember the piece I wrote called “Prayer for a Cat,” in memory of our two-year old kitty who died of incurable peritonitis. (Who would think a cat could get peritonitis?)

Well her successor is ready to come home and take a place in our house and our hearts…


What Is Your Inspiration?

November 13, 2019
10 Comments

“I want people with epilepsy to know that there are ways in which they can play a role in their own recovery…”


Domestic Violence — When Love Goes Wrong

November 10, 2019
36 Comments

Carol found herself in a cycle of violence from the time she was a child. By adulthood, she had already experienced multiple beatings and hospitalizations.

In the most recent attack, her husband beat her with a board, leaving her with permanent brain damage and a life-long disability.

As a result of her injury, she now has frequent seizures, difficulty with balance, and is terrified to leave her home for fear of having a seizure or falling.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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