Epilepsy Talk

The Stigma of Epilepsy…

May 5, 2021
34 Comments

The stigma is ancient and it still remains today.

Laws in the United States and Great Britain that prohibited epileptic people to marry were just repealed in the late 1980s and early 1990s.

Until the late 1970s, legislations in the United States also prevented epileptic people from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]

Although these laws are no longer in effect, the underlying social divisions that they have created in the past thirty years are still present today.


Catamenial Epilepsy – Do You Have It?

May 2, 2021
9 Comments

Do you notice that your seizures worsen just before your period…or during the first few days…or at mid-cycle?

You could have “catamenial epilepsy,” or hormone sensitive seizures, a tendency for increased seizures related to your menstrual cycle.

The causes of catamenial epilepsy are not totally understood.


How are your meds affecting you?

April 29, 2021
23 Comments

They’re necessary, but not necessarily nice.

And every med has its own side-effect. Just as different people experience different difficulties.

Here’s the low-down on the possible side-effects of your drugs and others.

Some might sound painfully familiar…


When Your Meds Cost More Than You Can Afford — AED Drug Assistance Programs

April 27, 2021
9 Comments

Today, things are constantly changing.

Especially when it comes to epilepsy medications and resources.

Some companies have expanded their programs or even offer new ones.

Others have cut their funds, and sadly others have ceased to exist.

Here’s a new and comprehensive list…


2021 Top Ranked Hospitals for Neurology & Neurosurgery

April 25, 2021
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For the 2021 evaluations, fifty neurological centers were ranked for their ability to deal with serious neurological problems. Included were epilepsy, head trauma and brain tumors.

The 50 top-scoring hospitals are listed below, followed by other high performing hospitals, including details of each hospital’s performance.


2021 Patient Recommendations for TOP Neurologists…Epileptologists…Neurosurgeons…and Pediatric Doctors

April 22, 2021
6 Comments

Below is a compilation by website forum members who have had positive personal experiences with docs over the years.

This list is based on recommendations and, of course, is purely subjective. But it might be helpful for anyone looking for a good Neurologist…Epileptologist…Neurosurgeon…or Pediatric Doctor.


Sleep and Seizures. How Much Is It Costing You?

April 21, 2021
15 Comments

Sleepless nights. Exhausted afternoons. Confusion. Memory loss. Trouble with concentration, mood swings and of course, seizures.

Which may increase in frequency or severity. Or even contribute to intractable seizures.

It seems like an endless cycle.


Monday 4/19 — Time out for Cataract Surgery #2!

April 18, 2021
17 Comments

WHEE! I’ll finally be able to SEE!

With BOTH eyes.


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Marijuana has won…

April 17, 2021
22 Comments

In the span of two decades, marijuana legalization has gone from a fringe issue to one the vast majority of Americans embrace.

In 2000, just 31 percent of the country backed legalization while 64 percent opposed it, according to Gallup’s public surveys.

By 2020, the numbers flipped: The most recent Gallup poll on the topic showed that 68 percent supported legalization and 32 percent were against it.


Poetry Is Music To The Soul…

April 15, 2021
16 Comments

And we souls with epilepsy could use a little music.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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