Epilepsy Talk

Doctors Distracted by Electronic Devices…

February 18, 2017
6 Comments

Do you know what happens during surgery? Cut…open…correct…sew. Maybe some background music. Hip if the doctor likes that. Or classical.

Well, not exactly. You might be surprised. Or horrified to learn the truth.


Possible Causes of Epilepsy

February 15, 2017
20 Comments

While there are about 40 different types of epilepsy, there are probably even more types of seizure disorders — caused by a number of internal and external events.

However, most doctors and publications agree on a number of possible or even probable reasons for these seizures. Here are just a few of them…


Exactly what IS Neuropsychology?

February 10, 2017
15 Comments

I never had a clue what neuropsychology was all about. Although it sounded like a good idea.

Then a while ago, I had an assessment. (Mercifully, it was the two-hour test and not the 8-hour version.)

The neuropsychologist I went to had all the records of my last 12 years from my neurologist and it was clear he had done his homework.

The question was, did my deficit in memory come from my history of seizures, my previous concussions (one of which was only a month ago) or even age itself? (I thought to myself, geeze, I’m only 63!)

Here’s basically what happened…


Epilepsy Related Conditions

February 2, 2017
6 Comments

In chronic conditions, such as epilepsy, the coexistence of more than one illness in a patient is the rule rather than the exception…

Men and women with epilepsy have a two-to five-fold increase in the occurrence of conditions, such as migraine, cerebrovascular and cardiovascular disorders, along with gastrointestinal disorders, pulmonary disorders, dementia, chronic fatigue, mood disorders, anxiety, and personality disorders.


Clinical Tests and Trials — Hope for Tomorrow

January 28, 2017
4 Comments

I have a friend who’s tried virtually everything. Surgeries, all the appropriate meds on the market. You name it — she’s been there.

Now she’s enrolling in a program that will hopefully help her, as well as many others.


Clinical Trials — International Database

January 28, 2017
4 Comments

There’s a whole treasure trove of clinical trials information now available as a free service of the National Institutes of Health, developed by the National Library of Medicine (NLM).

ClinicalTrials.gov is a web-based resource that provides patients, family members, health care professionals, researchers, and the public with easy access to information on publicly and privately supported clinical studies on a wide range of diseases and conditions.

Presently, there are 131,167 studies with locations in 179 countries, including the U.S. Studies are easy to search for by topic and location.


2017 Top-Ranked Pediatric Hospitals for Neurology & Neurosurgery

January 25, 2017
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The U.S. News & World Report’s annual survey of hospitals is considered the pre-eminent source for excellence.

For the 2017 evaluations, 50 pediatric centers were ranked for serious neurological problems…


2017 Top-Rated Hospitals for Neurology and Neurosurgery

January 22, 2017
2 Comments

Every year, patients and potential patients alike, look forward to the U.S. News & World Report’s list of top- ranking hospitals.

Attached is a link to their most current list for Neurology and Neurosurgery.

You can find information here about 1,349 hospitals in Neurology and Neurosurgery. All treat significant numbers of difficult patients…


2017 Patient Recommendations for TOP Neurologists…Epileptologists… Neurosurgeons…and Pediatric Doctors

January 14, 2017
33 Comments

Below is a compilation by website forum members who have had positive personal experiences with docs over the years.

This list is based on recommendations and, of course, is purely subjective. But it might be helpful for anyone looking for a good Neurologist…Epileptologist…Neurosurgeon…or Pediatric Doctor.


Responsive Neurostimulation (RNS) Shown to Reduce “Untreatable” Seizures

January 12, 2017
14 Comments

The idea that we can implant a Star Trek-type device that will detect seizures and interrupt them without causing injury is entirely new. And exciting. And scary.

Especially for those people with epilepsy that have seizures that begin at one focal point in the brain, but aren’t appropriate for epilepsy surgery.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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