Epilepsy Talk

Coronavirus (COVID-19) — How To Get Instant Care

March 30, 2020
6 Comments

You wake up and you’re feeling crummy. You have a fever. You may be coughing. But because of the Coronavirus, your physician isn’t available. You panic. In most states, you cannot even be tested for COVID-19.

It takes between 2 and 14 days for a newly infected person to start showing symptoms.

After symptoms begin to show, it can take more than a week for them to be eligible for testing (many people are not eligible at all).

And then, thanks to backlogs in testing availability, it can take days for them to learn they tested positive.

Maybe you should go to Urgent Care. But they’re so overloaded, they might turn you away.

Emergency rooms won’t accept you unless you’re have a very high temperature and having trouble breathing.

That’s when they will take you and put you on a ventilator. But what happens in between? Panic or medical care from an unexpected source?


Weird Epilepsy Triggers

March 27, 2020
49 Comments

Here’s a list of uncommon epilepsy triggers you may have experienced or know about.

Feel free to add to this list of the weird and the unknown…


Some Stress and Anxiety Solutions…

March 21, 2020
38 Comments

Sometimes my hands shake so much, I look like I’m leading a symphony. (Without a baton.) Legs too, I have to sit down.

Maybe you panic before a test, the very fear of having a seizure, social rejection, job anxieties, debt, fear of failure, an anticipated argument, holidays, fear of flying.

There are probably as many kinds of stress and panic attacks as there are those of us who suffer from them.


Stress and seizures…

March 17, 2020
66 Comments

Let’s be honest, you probably didn’t plan on having epilepsy.

But here we are.

And we all know that stress is #1 in the hit parade of seizure triggers.

Endless surveys prove the fact.


Seniors — Alzheimer’s, Epilepsy or Seizures?

March 13, 2020
6 Comments

The question of whether a person has epilepsy or Alzheimer’s can be a tough one.

Take those “senior moments” — memory lapses, zoning out and other temporary confusion.  These seemingly harmless incidents may actually be a sign of epilepsy.  Roughly 1-2 percent of seniors develop epilepsy — and that rate is rising.

But experts at the U.S. National Council on Aging warn that often epilepsy goes undetected in seniors.


What’s Really In Your Meds?

March 10, 2020
22 Comments

“As Americans become more concerned about quality issues with prescription medications made abroad, one company is trying to offer an additional layer of reassurance — by doing chemical analysis before dispensing drugs to patients…”


Autoimmune Epilepsy — Cause of Previously Unexplained Seizures?

March 10, 2020
10 Comments

Antiepileptic drugs (AEDs) are the mainstay of treatment for epilepsy, but seizures continue in one-third of patients despite appropriate AED therapeutic trials.

Even in the current era, the etiology of epilepsy often remains unclear.

Some patients with unexplained partial seizures which are medication resistant may have “autoimmune epilepsy” — epilepsy characterized by autoimmune antibodies.

Although autoimmune epilepsy is still rare, it’s become an increasingly recognized cause of epilepsy, which might have been previously thought to be of unknown cause.


The Coronavirus — What Does It Mean For You?

March 7, 2020
27 Comments

Did you know that most of the components of our meds come from China and India? 

“Many over-the-counter and generic drugs [PDF] sold in the United States are made in China, including antidepressants, HIV/AIDS medications, birth control pills, chemotherapy treatments, and medicines for Alzheimer’s disease, diabetes, epilepsy, and Parkinson’s disease

Health officials have warned that the coronavirus outbreak could lead to drug shortages.

However, U.S. consumers should not panic. But they have reasons to be vigilant…”


Generics: Important Statement From The American Academy Of Neurology

March 6, 2020
74 Comments

Please read this article. It’s from those who know best and truly have OUR interests at heart!


BIG Pharma’s Outsized Profits and Lobbying Spend

March 4, 2020
11 Comments

You want to talk about putting your money where your mouth is. That’s exactly what BIG Pharma is doing. Egregious price gorging to gain power in the marketplace and politics.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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