Epilepsy Talk

Ode to a Doctor’s Visit…

October 29, 2020
8 Comments

They forget that we live 365 days or 8,760 hours a year with our illness…

We see them for four 30 minute visits or 2 hours in that year while we’re struggling…

We spend time planning in anticipation of this precious, important moment…


Who’s at Fault?

October 26, 2020
10 Comments

Instead of humane and compassionate treatment, doctors, hospitals and the legal system are treating epilepsy patients with little or no regard for their condition.

Here are some chilling examples:


Inspirational thoughts for the day…

October 24, 2020
3 Comments

“If you’re going through hell, keep going…” Winston Churchill


Domestic Violence — When Love Goes Wrong

October 21, 2020
16 Comments

Carol found herself in a cycle of violence from the time she was a child. By adulthood, she had already experienced multiple beatings and hospitalizations.

In the most recent attack, her husband beat her with a board, leaving her with permanent brain damage and a life-long disability.

As a result of her injury, she now has frequent seizures, difficulty with balance, and is terrified to leave her home for fear of having a seizure or falling.


The Isolation of Epilepsy

October 18, 2020
18 Comments

You’re reluctant to go out.  Because having a seizure can be so unpredictable and embarrassing.

You think: “What if I have a seizure?  What will people do?  What will they think of me?”

Those and many other self doubting questions run through your mind.


Gaslighting — What to Do When It Happens To You

October 15, 2020
29 Comments

Is your doctor making you feel crazy? Like it’s all in your head? Could you be a hypochondriac?

You must be imagining your symptoms. Of maybe you’re just in a panic.

“Go home and take two Advil. Or maybe two Xanax. You’ll feel fine when this blows over. I assure you.”

Maybe you should have gone to Google first.


Possible Causes of Epilepsy

October 10, 2020
50 Comments

While there are more than 40 different types of epilepsy, there are probably even more types of seizure disorders — caused by a number of internal and external events.

However, most doctors and publications agree on a number of possible or even probable reasons for these seizures. Here are just a few of them…


Hope for Drug Resistant Epilepsy

October 6, 2020
17 Comments

Drug-resistant epilepsy with uncontrolled severe seizures — despite state-of-the-art medical treatment — continues to be a major problem for up to 30% of patients with epilepsy.

Although drug resistance may fluctuate in the course of treatment, for most patients, drug resistance seems to be continuous.

Unfortunately, traditional antiepileptic drugs (AEDs) don’t seem to prevent or reverse drug resistance in most patients.

However, some new add-on AED therapies have shown as much as 50% in seizure reduction.

This research concerns the structural brain lesions that have been associated with drug resistance in epilepsy.


An Earbud to Predict Seizures?

October 4, 2020
32 Comments

Imagine a tiny, unobtrusive brain monitor — like an earbud or a hearing aid — that could read brainwaves through the ear.

Amazing as it sounds, this tiny device could help predict seizures and track daily seizures in people with uncontrolled epilepsy, according to a small pilot study.

Engineers at Imperial College in London have developed exactly that.

An EEG device that can be worn inside the ear, like a hearing aid.


Anger and Epilepsy: WHY ME?

September 30, 2020
50 Comments

Suddenly, you’re feeling edgy. Lashing out at loved ones for no reason at all. It’s not anybody’s fault. It’s that old familiar enemy. Epilepsy. Again.

Why me? Why now? It’s not fair.

No, it’s not, but it’s part of our physiology. Since the brain is control central, sudden changes – like a seizure – wreak havoc. And you get even angrier, for what seems, like nothing at all. The outbursts, crying, come out of nowhere.


Next Page »

    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

    View Full Profile →

    Enter your email address to follow this blog and receive free notifications of new posts by email.

    Join 2,993 other followers

    Follow Epilepsy Talk on WordPress.com