Epilepsy Talk

Gratitude is the Attitude

November 26, 2020
20 Comments

We have so much to be grateful for, especially me:


Seizure Provoking Conditions…

November 22, 2020
14 Comments

Few of these conditions will cause epilepsy itself…but many can lead to seizures. So consider this a definition of the possibilities…


Seizures won’t wait — even during COVID-19

November 20, 2020
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COVID-19 seems to be knocking on everybody’s door. Along with the peril and the terror.

And the possibility of seeing your doctor during these dangerous times seems risky, at best.

So, you can’t see the doctor and they can’t see you.

Except in a hospital setting, critical care or a clinic.

That could means more exposure. More jeopardy. Is it really worth the exposure?


Epilepsy Studies: True or False?

November 15, 2020
12 Comments

There’s a “Golden Rule” which says: “He who has the most gold makes the rules.”

And who might that be? And what are the methods used?

Some are simply amazing. (Or at least I thought so.)

But they all follow the “Golden Rule.”


Advance Health Care Directives and Living Wills

November 13, 2020
6 Comments

Most people don’t want to think about death and dying — so they don’t.

Until they have to.

Unfortunately, that often means that families are left struggling with difficult decisions about important matters, such as whether or not Mom would like to be kept alive using a ventilator, or who should be in charge of managing Dad’s financial affairs, because Mom or Dad never made clear what they wanted for themselves.


Damaged Goods

November 9, 2020
10 Comments

There’s something liberating in being expected to fail. No expectations, no explanations.

After all, “you’ll never amount to anything.” You’re damaged goods.

So you’re free to fall on your face. Or reach for the stars. I did both.


It’s YOUR Turn!

November 5, 2020
57 Comments

Need advice?  Want to vent?  This is the place for you…


The Stigma of Epilepsy…

November 1, 2020
47 Comments

The stigma is ancient and it still remains today.

Laws in the United States and Great Britain that prohibited epileptic people to marry were just repealed in the late 1980s and early 1990s.

Until the late 1970s, legislations in the United States also prevented epileptic people from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]

Although these laws are no longer in effect, the underlying social divisions that they have created in the past thirty years are still present today.


Ode to a Doctor’s Visit…

October 29, 2020
12 Comments

They forget that we live 365 days or 8,760 hours a year with our illness…

We see them for four 30 minute visits or 2 hours in that year while we’re struggling…

We spend time planning in anticipation of this precious, important moment…


Who’s at Fault?

October 26, 2020
18 Comments

Instead of humane and compassionate treatment, doctors, hospitals and the legal system are treating epilepsy patients with little or no regard for their condition.

Here are some chilling examples:


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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