Epilepsy Talk

Conversion Disorder and Epilepsy

September 5, 2016
4 Comments

Is it epilepsy or conversion disorder?

The term “conversion” comes from the idea that psychological distress is being converted into a physical symptom.

The cause is not known.


Autoimmune Epilepsy — Cause of Previously Unexplained Seizures?

August 5, 2016
6 Comments

Some patients with unexplained partial seizures which are medication resistant may have “autoimmune epilepsy” — epilepsy characterized by of autoimmune antibodies.

Although autoimmune epilepsy is still rare, it’s become an increasingly recognized cause of epilepsy, which might have been previously thought to be of unknown cause.


Syncope or Seizure?

July 9, 2016
8 Comments

Studies have now confirmed what some doctors have long suspected — many young people who are given the diagnosis of epilepsy (or seizure disorder) apparently don’t have epilepsy at all.

Instead, they have a condition known as syncope…

Syncope (sing’-koe-pee), the medical term for fainting, is the sudden loss of consciousness and physical collapse due to lack of blood and oxygen to the brain.


Where’s The Funding? Epilepsy As An Orphan

June 19, 2016
10 Comments

Here are the facts, unhappy though they may be…


For those of you who have been wondering…

June 8, 2016
28 Comments

What is epilepsytalk.com and who is that masked lady behind it?

Epilepsytalk.com is a website that I created after 35 years of being a copywriter. And decades of having epilepsy myself.


What Was Your First Seizure Like?

May 22, 2016
49 Comments

All of a sudden, it felt like my blood was rushing out of my toes. As all my energy drained out of me, I thought: “I’m going to drown.” Then as I fought with the locked door handle to get out, I realized: “I’m going to die.”


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Clinical Trials Explained

May 7, 2016
8 Comments

New therapies, including medications, medical devices and surgical procedures, are evaluated in research studies known as clinical trials.

Often these new therapies are investigational, which means they are not yet approved by the U.S. Food and Drug Administration for general use.

Participation in clinical trials offers the potential for new treatment options and allows patients to participate with researchers in driving the discovery of effective therapies for epilepsy…


“Pseudo Seizures” AND Epilepsy – Yes You CAN Have BOTH!

May 2, 2016
16 Comments

Some know it as non-epileptic seizures (NES), psychogenic non-epileptic seizures (PNES), or pseudoseizures. And then there’s epilepsy. Which is what?

What seizures all have in common is that they are usually sudden, short, and cause a change in the person’s awareness of where they are, what they are doing, what they are thinking or what they are feeling.

Some people have more than one type of seizure. For example, around 15 in every 100 people with non-epileptic seizures (NES) also have epilepsy.


Antidepressants and Epilepsy

April 24, 2016
18 Comments

For a long time, depression was thought to be a complication of epilepsy.

“People with a history of depression have a 3 to 7 times higher risk of developing epilepsy,” said Dr. Andres Kanner, a specialist on epilepsy at Rush University Medical Center in Chicago. “This kind of information is forcing us to take a second look at the interaction between depression and epilepsy.”


Epilepsy, Employment and the Law

April 18, 2016
28 Comments

Everyone knows that it’s hard to get a job these days. And if you have epilepsy, it’s twice as difficult.

But here are some tips if you DO land an interview and also your legal rights…


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I've also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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