Epilepsy Talk

Calcium – Friend or Foe?

July 1, 2022
10 Comments

After talking to a famous epileptologist, I learned that calcium is really a two-edged sword. Which surprised (and scared) me.

I’ve always read that calcium was imperative if you were taking anti-epilepsy drugs — especially Dilantin. Even if your doc “forgot” to tell you!


MSG: Dangerous or Deadly?

June 26, 2022
1 Comment

MSG can be responsible for long term neurological damage.

It’s been linked to diabetes, stroke, epilepsy, multiple sclerosis, stomach disorders, fatigue, depression, headaches and migraines, grand mal seizures, irregular or rapid heartbeat, nausea and vomiting, numbness in the fingertips, autism, ADHD, asthma-like symptoms, fibromyalgia type pain, disorientation and confusion, and degenerative disorders such as Parkinson’s and Alzheimer’s.


Hooray for Forums! 

June 5, 2022
10 Comments

I never met anyone with epilepsy until I was 29. And that was a best friend of my husband’s. (Which may explain why my husband didn’t freak out when I had a seizure on our first date!)

That was it. Beginning and end…


Antidepressants and epilepsy…

May 22, 2022
7 Comments

For a long time, depression has been thought to be a complication of epilepsy.

“People with a history of depression have a 3 to 7 times higher risk of developing epilepsy. This kind of information is forcing us to take a second look at the interaction between depression and epilepsy” said Dr. Andres Kanner, a Professor of Clinical Neurology and Director of the Comprehensive Epilepsy Center of the University of Miami, Miller School of Medicine.


What Part of Your Epilepsy Do You Hate Most?

May 16, 2022
29 Comments

Compared to others, I know I’m very lucky, but the concussions really stink.

And the anxiety never goes away.


Say good-bye to the miserable world of migraines…

May 11, 2022
3 Comments

Your head is throbbing, pulsing, pounding, light is blinding, you want to puke, you can’t think straight. Sound familiar?

Welcome to the miserable world of migraines.


Epilepsy & Migraines — Kissing Cousins

May 7, 2022
6 Comments

A strong relationship between migraines and epilepsy has long been suspected.

But now it is fact, according to extensive research cited by Steven Karceski, MD in Practical Neurology Magazine.


Dilantin – What People Are Saying…

May 4, 2022
7 Comments

When I was first diagnosed with epilepsy back in 1969, the availability of AEDs was limited.

Phenobarbital or Dilantin.

Pick your poison.

I chose Dilantin. It was not a pretty picture.

I was a walking zombie, constantly keeling over, and the final insult was when I went into a coma because of toxic blood levels. (No brain, no pain?)

But many have their own serious tales to tell. Here are some of their experiences. And some advice…


What would you do if you knew you couldn’t fail?

April 26, 2022
2 Comments

All of us have dreams. Some become reality…and some stay in our imaginations forever.


Who was your greatest inspiration?

April 14, 2022
7 Comments

For me, quite simply, it was my grandfather.

After all, I was a pariah. A leper. (No one would say the “E” word.)

I’d never achieve anything. My life was over.

Even though it had just begun.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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