Epilepsy Talk

Dating Disasters and Epilepsy

May 7, 2019
12 Comments

When I was a teen I fell down, walked into walls, bumped into virtually everything in my path, and almost drowned in the shower.

So, you can imagine what a disaster dating was.

Of course, in my infinite wisdom, I would never tell my dates that I had epilepsy. 

My parents wouldn’t even utter the word, so rather than become a pariah, I kept my mouth shut.

Bad idea…


Who’s at Fault?

April 13, 2019
59 Comments

Instead of humane and compassionate treatment, doctors, hospitals and the legal system are treating epilepsy patients with little or no regard for their condition.

Here are some chilling examples:


The Isolation of Epilepsy

April 4, 2019
27 Comments

You’re reluctant to go out.  Because having a seizure can be so unpredictable and embarrassing.

You think: “What if I have a seizure?  What will people do?  What will they think of me?”

Those and many other self doubting questions run through your mind.


Epilepsy & Migraines — Kissing Cousins

March 18, 2019
17 Comments

A strong relationship between migraines and epilepsy has long been suspected.

But now it is fact, according to extensive research cited by Steven Karceski, MD in Practical Neurology Magazine.

The International Headache Society (IHS) criteria divides headache disorders into two main groups, with similarities to groups of epilepsies:


Why Won’t You Play With Me?

March 2, 2019
22 Comments

Once upon a time there was this girl named Ellen.

She had epilepsy and she hated the world.

So the world hated her back.

She had no friends and didn’t speak to anybody.

In turn, nobody spoke to her. Except the occasional bully.


Epilepsy, Employment and the Law

February 20, 2019
10 Comments

Here are some tips for interviewing, work and also your legal rights.


Epilepsy Support Groups

January 28, 2019
10 Comments

One thing I’ve discovered is the search for support groups is endless — and seldom successful. Unless you live in a metropolitan area.

But, if you do find a support group, you’ll find an amazing wealth of camaraderie, compassion and caring.

Not every group does the same things. Even groups with similar activities may have different results because of the individuals involved…but think of it as a learning and bonding experience.

You’re interacting with people who share a similar illness, but perhaps different solutions. You can share your feelings, fears, concerns and perhaps get answers.

But most importantly, you can join a community of caring and know that you’re not alone.


Is Epilepsy Inherited?

January 12, 2019
12 Comments

Just because you have a parent, sibling, cousin or aunt who has epilepsy doesn’t necessarily mean you’ll have it also.

In fact, if you have a close relative with epilepsy, the chance of you having epilepsy is only about 2-5%, depending on the specific type of epilepsy.


Epilepsy Quotes to Inspire You…

December 31, 2018
14 Comments

With the new year upon us, I thought you might enjoy some positivity to carry you through the year.

Wishing you a new year of health and happiness, love and light, every day of 2019.

Here are some quotes that have inspired me:


Epilepsy and Romance — Getting Personal

December 19, 2018
16 Comments

Romance is so many different things to different people.

But to me, intimacy requires acceptance, faith and loyalty.

The question is; how do you get there?

Especially when you have epilepsy?

Well for me, it was a very rocky road.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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