Epilepsy Talk

Epilepsy at the Movies — Don’t Believe What You See or Hear!

July 10, 2019
14 Comments

I bet you won’t be surprised to hear that epilepsy is most often depicted in sci-fi and horror films.

Just think of “The Andromeda Strain”, “Crazed”, “Deadwood”, “The Exorcist”, “The Exorcism of Emily Rose”, “Frankenstein”, “The Garden State”, “Lighthouse” and “The Terminal Man” to name a few.

DEMONIC = EPILEPTIC!


Anti-Epilepsy Medication Side-Effects

June 25, 2019
21 Comments

They’re necessary but not necessarily nice.

And every med has its own side-effects.

Just as different people experience different difficulties.

But here‘s the low-down on the possible side-effects.

I hope you don’t have to suffer any of them. (Or as few as possible.)


Epilepsy Glossary — 100+ Terms Defined

June 22, 2019
11 Comments

Even if you do have epilepsy, it doesn’t necessarily mean you know all the lingo. (I didn’t!) So here are some definitions of medical terms related to epilepsy…


12 Recipes For Happiness — Even If You Have Epilepsy!

June 11, 2019
10 Comments

“No one is in control of your happiness but you; therefore you have the power to change anything about yourself or your life that you want to change.” — Barbara de Angelis

We all know that epilepsy is no day at the beach. You may feel depression, anxiety, fear, isolation, anger, or a whole host of other things, too may to mention.

But, if you dig deep into yourself, perhaps there’s a few things you can do to relieve those feelings.

Here are some ideas…


Epilepsy and Melatonin – Yes? No? Or Maybe So?

June 7, 2019
27 Comments

Most of us are familiar with melatonin and it’s purpose: To help you sleep. Or at least to help you get to sleep.

In fact, melatonin is one of the most commonly used supplements in the United States. (Lots of sleepless people out there!)

Scientifically speaking, melatonin is a hormone synthesized from serotonin, the “feel good” hormone.


Epilepsy Nightmares – WHY?

May 30, 2019
11 Comments

Fear. Screaming. Visions. Bright lights flashing. Hallucinations. Tongue biting. Pain. Paralysis. Pins and needles. Bed wetting.

Do any of these sound familiar?

One person described it as: “During the nightmares, I often get up and run out of the room screaming while still asleep, as if something is chasing me.”

It’s agony. And there’s little to explain it or stop it in its tracks.


Sleep and Seizures

May 26, 2019
24 Comments

Sleepless nights. Exhausted afternoons. Confusion. Memory loss. Trouble with concentration, mood swings and of course, seizures. 

Which may increase in frequency or severity. Or may even contribute to intractable seizures. It seems like an endless cycle.

For people with epilepsy, sleep problems are a double-edged sword; epilepsy disturbs sleep and sleep deprivation aggravates epilepsy. 


Dating Disasters and Epilepsy

May 7, 2019
14 Comments

When I was a teen I fell down, walked into walls, bumped into virtually everything in my path, and almost drowned in the shower.

So, you can imagine what a disaster dating was.

Of course, in my infinite wisdom, I would never tell my dates that I had epilepsy. 

My parents wouldn’t even utter the word, so rather than become a pariah, I kept my mouth shut.

Bad idea…


Who’s at Fault?

April 13, 2019
63 Comments

Instead of humane and compassionate treatment, doctors, hospitals and the legal system are treating epilepsy patients with little or no regard for their condition.

Here are some chilling examples:


The Isolation of Epilepsy

April 4, 2019
29 Comments

You’re reluctant to go out.  Because having a seizure can be so unpredictable and embarrassing.

You think: “What if I have a seizure?  What will people do?  What will they think of me?”

Those and many other self doubting questions run through your mind.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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