Epilepsy Talk

Epilepsy and Melatonin – Yes? No? Or Maybe So?

October 20, 2021
5 Comments

Most of us are familiar with melatonin and it’s purpose: To help you sleep. Or at least to help you get to sleep.

In fact, melatonin is one of the most commonly used supplements in the United States. (Lots of sleepless people out there!)


Tell us about your first seizure…

October 14, 2021
27 Comments

All of a sudden, it felt like my blood was rushing out of my toes. As all of my energy drained out of me, I thought: “I’m going to drown.” Then, as I fought with the locked door handle to get out, I realized: “I’m going to die.”


Seizure Free – A Hope or a Promise?

September 25, 2021
18 Comments

Is it a reality…a hope…or a promise?

Have you been there once for a visit?

And then come back, to the land of falling down, shaking, quaking and blackouts.

We all know, the only thing that remains the same is change.

Everything is in a state of flux.

Drugs, science, our bodies, our brains.

From that you can choose hopelessness. Or hope.


What Most Offends YOU About How People Treat Epilepsy?

September 20, 2021
31 Comments

I call epilepsy the “stealth condition,” because most people don’t actually witness a seizure.

Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


TNS vs. VNS – NO SURGERY!

September 15, 2021
10 Comments

The first Vagus Nerve Stimulator (VNS) was implanted in 1988, as a therapeutic option for medically intractable epilepsy, when elective epilepsy surgery was not appropriate.

As the number of implanted vagus nerve stimulators grows, so does the need to remove or revise the devices.

Which is a little tricky, because of the spiral stimulating electrodes, wrapped around the nerve.


12 Recipes For Happiness — Even If You Have Epilepsy!

August 18, 2021
10 Comments

“No one is in control of your happiness but you; therefore you have the power to change anything about yourself or your life that you want to change.” — Barbara de Angelis

We all know that epilepsy is no day at the beach. You may feel depression, anxiety, fear, isolation, anger, or a whole host of other things, too may to mention.

But, if you dig deep into yourself, perhaps there’s a few things you can do to relieve those feelings.

Here are some ideas…


The Isolation of Epilepsy

August 6, 2021
27 Comments

You’re reluctant to go out. Because having a seizure can be so unpredictable and embarrassing.

You think: “What if I have a seizure? What will people do? What will they think of me?”


Epilepsy: Meditation vs. Medication

August 3, 2021
2 Comments

You can have medication without meditation. Most of us do.

You can do meditation without medication. Most of us wouldn’t and shouldn’t take that risk.

But together, they can enhance one another.


Epilepsy Without Vaccinations — The Risks

July 11, 2021
7 Comments

I started this article assured that vaccinations of children with epilepsy was a definite no-no.

And boy, was I surprised.

Basically, medical research has proved me wrong. Real wrong. Including COVID-19 vaccinations.


I Am Not a Camel … but I Do Have Epilepsy

June 30, 2021
1 Comment

On the topics-that-are-fun-to-disclose-in-the-workplace-o-meter, epilepsy ranks somewhere between ‘I’ve been embezzling candy from the vending machine for the past 15 years’ and ‘I am actually a camel.’


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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