Epilepsy Talk

Epilepsy: Meditation vs. Medication

September 18, 2020
23 Comments

Neither is mutually exclusive.

You can have medication without meditation. Most of us do.

You can do meditation without medication. Most of us wouldn’t and shouldn’t take that risk.

But together, they can enhance one another.


Violence and Epilepsy

September 10, 2020
31 Comments

No question about it. Epilepsy’s been the victim of bad press since ancient Greece. There, it was sometimes called the “Herculean Disease” because Hercules was thought to have murdered his family in a fit of uncontrollable rage.

Two thousand years later, Michael Crichton wrote in The Terminal Man, “Epileptics are predisposed to violent, aggressive behavior during their attacks.”

Which didn’t exactly help.


Epilepsy – Advice and Insights

September 1, 2020
33 Comments

Whatever age you were when you were diagnosed with epilepsy, I’m sure you have advice and insights to share from your own experiences.


Where’s The Funding? Epilepsy As An Orphan

August 19, 2020
23 Comments

Here are the facts, unhappy though they may be…

Epilepsy is the 4th most common neurological problem – only migraine, stroke, and Alzheimer’s disease occurs more frequently.

Its prevalence is greater than autism spectrum disorder, cerebral palsy, multiple sclerosis and Parkinson’s disease combined.

As many people die from epilepsy as from breast cancer.

There are 150,000 new cases of epilepsy diagnosed each year, and a total of more than 2 million Americans are affected by it.

Yet, public and private funding for epilepsy research lags far behind other neurological afflictions, at $35 a patient (compared, for instance, with $129 for Alzheimer’s and $280 for multiple sclerosis).


12 Recipes For Happiness — Even If You Have Epilepsy!

August 14, 2020
8 Comments

No one is in control of your happiness but you; therefore you have the power to change anything about yourself or your life that you want to change.” — Barbara de Angelis

We all know that epilepsy is no day at the beach. You may feel depression, anxiety, fear, isolation, anger, or a whole host of other things, too may to mention.

But, if you dig deep into yourself, perhaps there’s a few things you can do to relieve those feelings.

Here are some ideas…


What is YOUR story?

August 7, 2020
45 Comments

When did you find out that you had epilepsy?

How?

What did you do after being diagnosed? 

How do you cope with it now?


What were your most formative moments?

July 13, 2020
10 Comments

For me, it was three different stages, ages and issues…


New Data Back Use of Medical Cannabis for Epilepsy, Pain, Anxiety

July 7, 2020
15 Comments

Two new studies offer positive news about medical cannabis — suggesting that marijuana products improve physical and cognitive symptoms, boost quality of life, and rarely produce signs of problematic use.


Treating Seizures — 7 Amazing New Breakthroughs

June 27, 2020
9 Comments

What if you could predict an oncoming seizure in time for you stop it? Or even prevent it?

That day may be coming sooner than you think, thanks to these seven new technologies.

You’ll learn what they are, how they work and how far along they are.

There’s a lot of new and exciting research going on — all over the world — about predicting and preventing seizures. 


TNS vs. VNS – NO SURGERY!

June 18, 2020
10 Comments

The first Vagus Nerve Stimulator (VNS) was implanted in 1988, as a therapeutic option for medically intractable epilepsy, when elective epilepsy surgery was not appropriate.

As the number of implanted vagus nerve stimulators grows, so does the need to remove or revise the devices.

Which is a little tricky, because of the spiral stimulating electrodes, wrapped around the nerve. Especially if the VNS treatment has proven ineffective.

And of course, what goes in, must come out. Anyway you look at it, there’s more surgery involved.

The up side to having a VNS is better seizure control.

The down side is discomfort, headaches, temporary hoarseness and shortness of breath.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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