Epilepsy Talk

Other Voices — Other Lives

November 6, 2017
30 Comments

“There were times I asked myself,
‘Is life really worth living?’
Suicide, now there’s a thought,
But would God be forgiving?”


Seizure Provoking Conditions

October 18, 2017
6 Comments

Few of these conditions will cause epilepsy itself…but many can lead to seizures. So consider this a definition of the possibilities…


Epileptic Synesthesia: What Is It?

October 3, 2017
10 Comments

A friend of mine with TLE, told me he had synesthesia and I didn’t have a clue what he was talking about.

And so, I set to find out exactly what this mysterious sounding condition was…


New Hope for Epilepsy Stem Cell Therapy

September 29, 2017
5 Comments

About stem cells: “They’ve been called magic seeds. They have the potential to cure disease, regenerate organs, and even prolong life. And they could completely alter the way we practice medicine” – Fortune Magazine

There are many exciting areas in epilepsy research. One topic of great interest is the use of stem cells to treat seizures.


The Stigma of Epilepsy

September 17, 2017
34 Comments

The stigma is ancient and it still remains today.

Laws in the United States and Great Britain that prohibited epileptic people to marry were just repealed in the late 1980s and early 1990s.

Until the late 1970s, legislations in the United States also prevented epileptic people from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]

Although these laws are no longer in effect, the underlying social divisions that they have created in the past thirty years are still present today.

In most states, having a seizure is technically illegal, and while prosecutions are rare, they do happen.


Conversion Disorder and Epilepsy…

September 10, 2017
12 Comments

What is it?

Is it epilepsy or conversion disorder?

The term “conversion” comes from the idea that psychological distress is being converted into a physical symptom.

The cause is not known…


What Most Offends YOU About How People Treat Epilepsy?

August 28, 2017
93 Comments

I call epilepsy the “stealth disease,” because most people don’t actually witness a seizure. Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


Is Epilepsy Inherited?

August 23, 2017
20 Comments

Just because you have a parent, sibling, cousin or aunt who has epilepsy doesn’t necessarily mean you’ll have it also.

In fact, if you have a close relative with epilepsy, the chance of you having epilepsy is only about 2-5%, depending on the specific type of epilepsy.

The risk in the general population is about 1-2%.

On the other hand, there is a 92-98% chance for the close relative of someone with epilepsy to NOT have the same condition!


Violence and Epilepsy

August 19, 2017
21 Comments

No question about it. Epilepsy’s been the victim of bad press since ancient Greece. There, it was sometimes called the “Herculean Disease” because Hercules was thought to have murdered his family in a fit of uncontrollable rage.

Two thousand years later, Michael Crichton wrote in The Terminal Man, “Epileptics are predisposed to violent, aggressive behavior during their attacks.” Which didn’t exactly help.

In later editions of his novel, Crichton softened his stance with a postscript, but many physicians and laymen still truly believe that those with epilepsy are dangerous and potentially violent people.


7 Myths About Medication — and the Facts Behind Them

August 10, 2017
16 Comments

From The Cleveland Clinic: By Family Health Team

Misconceptions about medicine are as common as pills on a pharmacy shelf.

We could all use a healthy dose of the truth.

Cleveland Clinic drug information pharmacist Katie Stabi, PharmD, BCPS, debunks seven of the most common myths about medications below:


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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