Epilepsy Talk

What Part of Your Epilepsy Do You Hate Most?

June 14, 2017
69 Comments

Compared to others, I know I’m very lucky, but the concussions really stink.

And the anxiety never goes away…


Epilepsy in Movies and TV

May 23, 2017
6 Comments

The portrayal of epilepsy and seizures in films and television usually has negative connotations.

In general, they do nothing but reinforce the stigma that is rampant about the condition.

Other the other hand, TV shows and movies have the potential to educate and begin to address genuine issues in a positive fashion, rather than misusing epilepsy to add tension and drama…


Epilepsy and Romance — Getting Personal

May 12, 2017
14 Comments

Romance is so many different things to different people.

But to me, intimacy requires acceptance, faith and loyalty.

The question is; how do you get there?

Especially when you have epilepsy?


Sex and Epilepsy — The Ultimate Challenge

May 8, 2017
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It’s the $64,000 question.

Can I have sex with epilepsy, all the AEDs, and side-effects?

The answer is yes.

If you’re willing to be flexible.


Epilepsy & Migraines — Kissing Cousins

April 27, 2017
27 Comments

A strong relationship between migraines and epilepsy has long been suspected.

But now it is fact, according to extensive research cited by Steven Karceski, MD in Practical Neurology Magazine.


Is Epilepsy Inherited?

April 23, 2017
21 Comments

Just because you have a parent, sibling, cousin or aunt who has epilepsy doesn’t necessarily mean you’ll have it also.

In fact, if you have a close relative with epilepsy, the chance of you having epilepsy is only about 2-5%, depending on the specific type of epilepsy.

The risk in the general population is about 1-2%.


Where’s The Funding? Epilepsy As An Orphan

April 12, 2017
18 Comments

There are 200,000 new cases of epilepsy each year, and a total of more than 3 million Americans are affected by it.

Yet, public and private funding for epilepsy research lags far behind other neurological afflictions, at $35 a patient (compared, for instance, with $129 for Alzheimer’s and $280 for multiple sclerosis).


Stevens-Johnson Syndrome — a danger for those on Dilantin or Lamictal

March 10, 2017
18 Comments

This article is not for those with a weak stomach. Because Stevens-Johnson Syndrome is an ugly and sometimes deadly disease.

But if you are on Dilantin or Lamictal, I urge you to read this information.


Epilepsy at the Movies – Don’t Believe What You See or Hear!

December 27, 2016
14 Comments

I bet you won’t be surprised to hear that epilepsy is most often depicted in sci-fi and horror films.

Just think of “The Andromeda Strain”, “Crazed”, “Deadwood”, “The Exorcist”, “The Exorcism of Emily Rose”, “Frankenstein”, “The Garden State”, “Lighthouse” and “The Terminal Man” to name a few…


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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