Epilepsy Talk

Neurotherapy for Epilepsy, Pain, Parkinson’s and More…

October 16, 2016

People with Epilepsy, Parkinson’s Disease, Attention Deficit Disorder (ADD) or addictions may be able to learn how to ‘think themselves better’ by altering their brain waves to improve their symptoms.

A new form of treatment called neurotherapy (also known as neurofeedback) is similar to biofeedback but has a unique focus on controlling brain wave activity rather than skin temperature, heart rate, breathing and muscle tension.

The Stigma of Epilepsy

October 12, 2016

The stigma is ancient and it still remains today.

Laws in the United States and Great Britain that prohibited epileptic people to marry were just repealed in the late 1980s and early 1990s.

Until the late 1970s, legislations in the United States also prevented epileptic people from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]

Although these laws are no longer in effect, the underlying social divisions that they have created in the past thirty years are still present today.

Is Epilepsy Inherited?

October 4, 2016

Just because you have a parent, sibling, cousin or aunt who has epilepsy doesn’t necessarily mean you’ll have it also.

In fact, if you have a close relative with epilepsy, the chance of you having epilepsy is only about 2-8%, depending on the specific type of epilepsy.

The risk in the general population is about 1-2%. On the other hand, there is a 92-98% chance for the close relative of someone with epilepsy to NOT have the same condition!

Conversion Disorder and Epilepsy

September 5, 2016

Is it epilepsy or conversion disorder?

The term “conversion” comes from the idea that psychological distress is being converted into a physical symptom.

The cause is not known.

Autoimmune Epilepsy — Cause of Previously Unexplained Seizures?

August 5, 2016

Some patients with unexplained partial seizures which are medication resistant may have “autoimmune epilepsy” — epilepsy characterized by of autoimmune antibodies.

Although autoimmune epilepsy is still rare, it’s become an increasingly recognized cause of epilepsy, which might have been previously thought to be of unknown cause.

Syncope or Seizure?

July 9, 2016

Studies have now confirmed what some doctors have long suspected — many young people who are given the diagnosis of epilepsy (or seizure disorder) apparently don’t have epilepsy at all.

Instead, they have a condition known as syncope…

Syncope (sing’-koe-pee), the medical term for fainting, is the sudden loss of consciousness and physical collapse due to lack of blood and oxygen to the brain.

Where’s The Funding? Epilepsy As An Orphan

June 19, 2016

Here are the facts, unhappy though they may be…

For those of you who have been wondering…

June 8, 2016

What is epilepsytalk.com and who is that masked lady behind it?

Epilepsytalk.com is a website that I created after 35 years of being a copywriter. And decades of having epilepsy myself.

What Was Your First Seizure Like?

May 22, 2016

All of a sudden, it felt like my blood was rushing out of my toes. As all my energy drained out of me, I thought: “I’m going to drown.” Then as I fought with the locked door handle to get out, I realized: “I’m going to die.”

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Clinical Trials Explained

May 7, 2016

New therapies, including medications, medical devices and surgical procedures, are evaluated in research studies known as clinical trials.

Often these new therapies are investigational, which means they are not yet approved by the U.S. Food and Drug Administration for general use.

Participation in clinical trials offers the potential for new treatment options and allows patients to participate with researchers in driving the discovery of effective therapies for epilepsy…

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I've also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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