Epilepsy Talk

The Stigma of Epilepsy…

May 5, 2021
34 Comments

The stigma is ancient and it still remains today.

Laws in the United States and Great Britain that prohibited epileptic people to marry were just repealed in the late 1980s and early 1990s.

Until the late 1970s, legislations in the United States also prevented epileptic people from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]

Although these laws are no longer in effect, the underlying social divisions that they have created in the past thirty years are still present today.


Sleep and Seizures. How Much Is It Costing You?

April 21, 2021
15 Comments

Sleepless nights. Exhausted afternoons. Confusion. Memory loss. Trouble with concentration, mood swings and of course, seizures.

Which may increase in frequency or severity. Or even contribute to intractable seizures.

It seems like an endless cycle.


Poetry Is Music To The Soul…

April 15, 2021
16 Comments

And we souls with epilepsy could use a little music.


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Combined Meds — What They Are Doing to Your Body

April 9, 2021
20 Comments

For many of us, monotherapy just doesn’t work.

However adjunct therapy has its dangers.

And both treatments carry their own interactive risks – even with things as innocent as aspirin.


Biofeedback for Epilepsy, Pain, Parkinson’s and More…

March 25, 2021
3 Comments

This breakthrough news comes from Bottom Line Health…

“People with Epilepsy, Parkinson’s Disease, Attention Deficit Disorder (ADD) or addictions may be able to learn how to ‘think themselves better’ by altering their brain waves to improve their symptoms.

A new form of treatment called neurofeedback (also known as biofeedback) has a unique focus on controlling brain wave activity rather than skin temperature, heart rate, breathing and muscle tension.

Neurofeedback now is used with a wide scope of health issues, including not only those listed above but also autism, chronic pain, post traumatic stress disorder, depression and anxiety…


Epilepsy Bill Of Rights

March 23, 2021
8 Comments

The Bill of Rights for People Living with Epilepsy was created for people living with epilepsy by people living with epilepsy and was spearheaded by The Epilepsy Foundation in conjunction with many concerned contributors.

If you don’t know about these rights, please read on…


AEDs…Surgery…and Alternative Treatments…

March 21, 2021
6 Comments

The saying “there’s something for everyone” may be true.

But with epilepsy, it’s often a dicey proposition — not to mention frustrating — to determine what that “something” is for you.


Keppra — What People Are Saying

March 11, 2021
50 Comments

When Keppra was approved as an add-on medicine for partial seizures, including partial seizures with secondary generalization, at the time, it was suggested that Keppra might have a universally positive effect on all seizure types.

That’s all fine and good for researchers who aren’t struggling with epilepsy every day.  But here’s a random sampling of what real people – like you and me – have to say…


Some Stress and Anxiety Solutions…

March 8, 2021
26 Comments

Sometimes my hands shake so much, I look like I’m leading a symphony. (Without a baton.) Legs too, I have to sit down.

Maybe you panic before a test, the very fear of having a seizure, social rejection, job anxieties, debt, fear of failure, an anticipated argument, holidays, fear of flying.

Or the daunting prospect of being alone without any support system. Or even death itself.

There are probably as many kinds of stress and panic attacks as there are those of us who suffer from them.

And behaviors: trembling, sweating, hyperventilating, breathlessness, feeling faint or light-headed, a sense of disorientation, cramping, nausea, your heart pounding like it’s going to explode from your chest, a fear of dying.

Or you’re just plain scared.

I could go on forever. And I’m sure you could, too.


Why Won’t You Play With Me?

February 19, 2021
9 Comments

Once upon a time there was this girl named Ellen.

She had epilepsy and she hated the world.

So the world hated her back.

She had no friends and didn’t speak to anybody.

In turn, nobody spoke to her. Except the occasional bully.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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