Epilepsy Talk

Can You Believe It?

January 20, 2020
13 Comments

Just when you thought the modern world was becoming enlightened, there are still a whole lot of myths and fears about epilepsy — fueled by ignorance and misinformation.

These fears might sound ridiculous to you…but they’re real for those who don’t know better.


Yee-Haa! I’m officially an author

January 15, 2020
45 Comments

You probably remember that my introduction to epilepsy wasn’t a rosy one. (Whose is?)

It really wasn’t until once I was older and came out of the closet that I was willing to share my “dirty little secret”.

And now look where I am…


Epilepsy in Twitter Times

December 17, 2019
14 Comments

Twitter is not our friend.

And the misconceptions and stigma of epilepsy live on.


Epilepsy Foundation Was Targeted in Mass Strobe Cyberattack

December 17, 2019
25 Comments

Hackers sent images of flashing strobe lights to the foundation’s thousands of Twitter followers in several attacks.


Is Epilepsy Inherited?

December 9, 2019
32 Comments

Just because you have a parent, sibling, cousin or aunt who has epilepsy doesn’t necessarily mean you’ll have it also.

In fact, if you have a close relative with epilepsy, the chance of you having epilepsy is only about 2-5%, depending on the specific type of epilepsy.

The risk in the general population is about 1-2%.

On the other hand, there is a 92-98% chance for the close relative of someone with epilepsy to NOT have the same condition!

So, even though the risk in families with epilepsy is higher than in the general population, most people with epilepsy do not have any relatives with seizures, and the great majority of parents with epilepsy do not have children with epilepsy.


What would you do if you knew you couldn’t fail?

November 29, 2019
9 Comments

All of us have dreams. Some become reality…and some stay in our imaginations.

For me, writing was my “dream”.  And it became a reality when I discovered a way I could write without starving.


If You’re Thinking Of Getting Pregnant…

November 3, 2019
3 Comments

Years ago, women who had epilepsy were often discouraged from getting pregnant. Today, that’s no longer the case.

Thanks to early and regular prenatal care, more than 90 percent of pregnant women who have epilepsy deliver healthy babies, according to the Epilepsy Foundation.


Some Stress and Anxiety Solutions…

October 27, 2019
87 Comments

Sometimes my hands shake so much, I look like I’m leading a symphony. (Without a baton.) Legs too, I have to sit down.

Maybe you panic before a test, the very fear of having a seizure, social rejection, job anxieties, debt, fear of failure, an anticipated argument, holidays, fear of flying.

There are probably as many kinds of stress and panic attacks as there are those of us who suffer from them.

And behaviors: trembling, sweating, hyperventilating, breathlessness, feeling faint or light-headed, a sense of disorientation, cramping, nausea, your heart pounding like it’s going to explode from your chest, a fear of dying.

Or you’re just plain scared.


Epilepsy and Electrolytes

September 12, 2019
28 Comments

It’s a situation often mentioned but rarely understood – the effects electrolytes have on seizures.

But a simple blood test can detect the danger of unbalanced electrolytes.

Taking extra doses of certain minerals can help to prevent side-effects that may follow the long-term use of some seizure medicines.

And taking supplements can help protect the brain (as can a B-Vitamin complex), but it’s no guarantee of seizure control, since there are a lot of different factors at play that can trigger a seizure.

But, making sure you have the right nutrients is just as important as having the right balance between all of them, so that proper electrical connections are maintained.


What Most Offends YOU About How People Treat Epilepsy?

August 29, 2019
33 Comments

I call epilepsy the “stealth condition,” because most people don’t actually witness a seizure.

Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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