Epilepsy Talk

Great Epilepsy Resources | September 28, 2009

Below are some helpful epilepsy links — websites for support, awareness and useful information.

The Epilepsy Foundationhttp://www.epilepsyfoundation.org/

The Foundation’s mission is to raise the public’s awareness of epilepsy through advocacy and education, as well as provide support for those living with epilepsy and their families.

CDC Epilepsy Center http://www.cdc.gov/epilepsy/ 

Get information on epilepsy activities in your state, facts, resources and much more.

Coping with Epilepsy  http://www.coping-with-epilepsy.com/index.php?p=resources

Resources for epilepsy, neurofeedback , non-profit organizations and charities, health directory and forums on peer support and medical issues.


A website specifically designed to address health issues such as epilepsy. The site contains articles written by physicians for patients and consumers. An
information repository sponsored by The Epilepsy Project. There is lots of information here about seizures and treatments.

The Epilepsy Therapy Development Project  http://my.epilepsy.com/node/1

A non-profit organization whose mission is to advance new treatments for people living with epilepsy.

Epilepsyresource.net  http://www.epilepsyresource.net/

General information about epilepsy and seizure disorders,  national database of epilepsy centers, support groups, links to different kinds of epilepsy treatments, organizations ocusing on education and public awareness, as well as fundraising for research organizations.

Healing Well.com  http://www.healingwell.com/epilepsy/

Articles, information, news, message forums, chat rooms, email, books, videos, newsletter and resource directory.


A database of drugs, supplements, and herbal information from the U.S. National Library of Medicine and the National Institutes of Health. Learn all about the AEDs you are taking here.

The Strong Epilepsy Center  http://stronghealth.com/services/neurology/epilepsy/epilepsyhome.cfm

Comprehensive care for people with epilepsy. They strive to improve a patient’s life (including employment, driving and personal well-being) by identifying, in children and adults, their particular type of seizure, so they can develop an individualized medical and/or surgical treatment plan.

Types of Epilepsy  http://www.webmd.com/epilepsy/guide/types-epilepsy

An extensive guide explaining the symptoms and types of different forms of epilepsy.


  1. I looked up Strong Epilepsy Center and I bookmarked the page. I found it very informative. I will be looking up the others. I already have Epilepsy.com and Medline Plus. I am glad that you added Coping With Epilepsy. It is very helpful.


    Comment by Ruth Brown — October 3, 2009 @ 4:44 AM

  2. Thank You for adding WebMD. To anyone reading this: WebMD is a great source of info about everything, including medications, finding DRs, etc. There are numerous support groups for various other illnesses/disorders. Support/advice for Everything from parenting to relationships. Plus, an Epilepsy board (support) for Epilepsy & other medical issues. Our board includes MORE links for info. Feel free to visit & learn more &/or chat w/ us. Questions will be answered by ppl w/ experience w/ coping w/ EP & medications.

    Candi and family


    Comment by Candi — October 6, 2009 @ 3:43 PM

  3. Great links! Thanks for sharing. I am always looking for new resources. I am also an epilepsy advocate for raising awareness. Who knows, raising awareness may lead to a cure.


    Comment by WI Snowflake — December 12, 2010 @ 12:54 AM

  4. I think educating ourselves is the first step. 😉 And as I always say, “Where there’s life, there’s hope!”

    Thanks for the compliment…


    Comment by Phylis Feiner Johnson — December 12, 2010 @ 5:08 AM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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