Epilepsy Talk

Seizure-free…a hope or a promise?

August 13, 2022
12 Comments

Is it a reality…a hope…or a promise?

Have you been there once for a visit? And then come back, to the land of falling down, shaking, quaking and blackouts.

We all know, the only thing that remains the same is change.

Everything is in a state of flux. Drugs, science, our bodies, our brains.

From that you can choose hopelessness. Or hope.


Domestic violence — when love goes wrong

August 6, 2022
7 Comments

Carol found herself in a cycle of violence from the time she was a child. By adulthood, she had already experienced multiple beatings and hospitalizations.

In the most recent attack, her husband beat her with a board, leaving her with permanent brain damage and a life-long disability.

As a result of her injury, she now has frequent seizures, difficulty with balance, and is terrified to leave her home for fear of having a seizure or falling.


Bullied because of epilepsy…

July 14, 2022
20 Comments

Like lions, they smell the difference…

Like hawks, they sweep down on you…

And like hyenas, they laugh and eat your heart out.


Depression is quiet

October 26, 2021
11 Comments

You would be surprised with how many people in your life could be going through depression at this very moment.

People hide it like a paper bag over their heads, out of fear of being judged, made fun of, seen as weak, or just not taken seriously.


Seizure Free – A Hope or a Promise?

September 25, 2021
19 Comments

Is it a reality…a hope…or a promise?

Have you been there once for a visit?

And then come back, to the land of falling down, shaking, quaking and blackouts.

We all know, the only thing that remains the same is change.

Everything is in a state of flux.

Drugs, science, our bodies, our brains.

From that you can choose hopelessness. Or hope.


Post Traumatic Stress Disorder and Epilepsy

September 2, 2021
12 Comments

What was once known as “shell shock” is now called Post-Traumatic Stress Disorder. (PTSD).

PTSD affects about 7.7 million American adults, and while it’s impossible to predict who will develop PTSD in response to trauma, there are certain risk factors that increase your vulnerability.

Of course, the first thought is of veterans. But anyone can get PTSD at any age.

Going through trauma is not rare. About 6 out of every 10 (or 60%) of men and 5 of every 10 (or 50%) of women experience at least one trauma in their lives.


Gaslighting — What to Do When It Happens To You

July 25, 2021
11 Comments

Is your doctor making you feel crazy? Like it’s all in your head? Could you be a hypochondriac?

You must be imagining your symptoms. Or maybe you’re just in a panic.

“Go home and take two Advil. Or maybe two Xanax. You’ll feel fine when this blows over. I assure you.”


Domestic Violence — When Love Goes Wrong

October 21, 2020
22 Comments

Carol found herself in a cycle of violence from the time she was a child. By adulthood, she had already experienced multiple beatings and hospitalizations.

In the most recent attack, her husband beat her with a board, leaving her with permanent brain damage and a life-long disability.

As a result of her injury, she now has frequent seizures, difficulty with balance, and is terrified to leave her home for fear of having a seizure or falling.


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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