Epilepsy Talk

Ode to a Doctor’s Visit…

June 22, 2017
12 Comments

They forget that we live 365 days or 8,760 hours a year with our illness…

We see them for four 30 minute visits or 2 hours in that year while we’re struggling…


What Part of Your Epilepsy Do You Hate Most?

June 14, 2017
130 Comments

Compared to others, I know I’m very lucky, but the concussions really stink.

And the anxiety never goes away…


The Nightmare of Nocturnal Seizures

April 11, 2015
49 Comments

According to an article in Journal of Neurology, Neurosurgery & Psychiatry, if more than 90 percent of your seizures occur while sleeping, you are said to have sleep seizures. The article also notes that an estimated 7.5 percent to 45 percent of people who have epilepsy have some form of sleep seizures.


10 Ways to Cope with Your Stress and Anxiety

May 18, 2012
21 Comments

You’re choking. You’re drowning. You’re going down for the count. How many times have we all been there?

I’m sure everyone has their own way of coping — or else we wouldn’t be here.

Nonetheless, here are some helpful tips to get you over that hump…


New Epilepsy Diagnosis — Now What?

April 30, 2012
14 Comments

You’ve just been diagnosed with epilepsy…

YOU’RE SCARED. Who wouldn’t be? THE DOCS. There are lots of terrific ones. THE TESTS. They can actually help to correctly diagnose your epilepsy. I’LL DIE. Not very likely. MY LIFE IS OVER. No, it’s not, but it will change…


Children’s Brain Surgery…Preparing YOUR Child…

April 22, 2012
2 Comments

There is no “welcome” sign to the world of childhood brain surgery. And the resulting combination of fear, shock, and pain is almost too much to bear.

No amount of preparation or knowledge can help to ease or minimize the situation.

But preparing a child for surgery emotionally, is one of the most important things you can do. Surgery, without proper explanations and preparation, can traumatize a child…


Epilepsy Nightmares – WHY?

February 15, 2012
63 Comments

Fear. Screaming. Visions. Bright lights flashing. Hallucinations. Tongue biting. Pain. Paralysis. Pins and needles. Bed wetting.

Do any of these sound familiar?

One person described it as: “During the nightmares, I often get up and run out of the room screaming while still asleep, as if something is chasing me.”

It’s agony. And there’s little to explain it or stop it in its tracks…


The Isolation of Epilepsy

July 9, 2010
20 Comments

Fear, misunderstanding and the resulting social stigma surrounding epilepsy can result in social, and sometimes even legal, discrimination. All over the world, the social consequences of epilepsy are often the cause of more suffering than the seizures themselves.


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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