Epilepsy Talk

The Isolation of Epilepsy 

November 15, 2023
4 Comments

You’re reluctant to go out.

Because having a seizure can be so unpredictable and embarrassing.

You think: “What if I have a seizure?

What will people do? What will they think of me?”

Those and many other self doubting questions run through your mind.

Even if you’ve only had a few seizures, there’s always the fear that silent (or not so silent) enemy may strike again.

So why chance it?


Return from Hell…

October 2, 2023
6 Comments

Whoever said “no pain, no gain,” was disillusioned.

Or out of this world.

For I’ve discovered pain is not only a sensation. Pain is a place.


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What Part of Your Epilepsy Do You Hate Most?

May 16, 2022
33 Comments

Compared to others, I know I’m very lucky, but the concussions really stink.

And the anxiety never goes away.


Some Stress and Anxiety Solutions… 

March 17, 2022
10 Comments

Sometimes my hands shake so much, I look like I’m leading a symphony. (Without a baton.) Legs too, I have to sit down.

Maybe you panic before a test, the very fear of having a seizure, social rejection, job anxieties, debt, fear of failure, an anticipated argument, holidays, fear of flying.

Or the daunting prospect of being alone without any support system. Or even death itself.

There are probably as many kinds of stress and panic attacks as there are those of us who suffer from them.


Ode to a Doctor’s Visit…

October 29, 2020
15 Comments

They forget that we live 365 days or 8,760 hours a year with our illness…

We see them for four 30 minute visits or 2 hours in that year while we’re struggling…

We spend time planning in anticipation of this precious, important moment…


What Part of Your Epilepsy Do You Hate Most?

May 16, 2020
172 Comments

Compared to others, I know I’m very lucky, but the concussions really stink.

And the anxiety never goes away.


Children’s Brain Surgery…Preparing YOUR Child…

April 22, 2012
2 Comments

There is no “welcome” sign to the world of childhood brain surgery. And the resulting combination of fear, shock, and pain is almost too much to bear.

No amount of preparation or knowledge can help to ease or minimize the situation.

But preparing a child for surgery emotionally, is one of the most important things you can do. Surgery, without proper explanations and preparation, can traumatize a child…


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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