Epilepsy Talk

Good news, there’s a new AED in town!

December 4, 2019
47 Comments

On November 19, 2019, the U.S. Food and Drug Administration approved cenobamate (XCOPRI®) for the treatment of focal epilepsy in adults. This medication will be available in the pharmacy by the spring or summer of 2020.


Blood Tests May Help Diagnose Epilepsy

December 4, 2019
31 Comments

A recent study shows that a simple blood test can determine whether or not someone has had an epileptic seizure.

Doctors at Stanford University, California, reveal that the level of the hormone prolactin may be indicative of the type of seizure and can be measured by this blood test.

The blood test which must be used within 10 to 20 minutes after a seizure, can identify generalized tonic-clonic seizures and complex partial seizures in both adults and older children, because the level of prolactin in the blood goes up.


Hormonal Imbalances and Seizures in Women

November 25, 2019
37 Comments

Many women with epilepsy have asked their doctors about the connection between seizures and hormones, but not every woman has seen her concerns given the attention she’d hoped for.

Although it is not very well understood at this point, there are scientifically documented connections between seizures and hormones that not all physicians are educated about.

What are hormones?


Sodium and Seizures

November 22, 2019
11 Comments

You may think that sodium is a “bad guy” to be avoided or reduced at all cost, because too much is linked to high blood pressure.

But sodium is actually an essential electrolyte, and a deficiency can trigger seizures.

Seizures from low sodium levels are most likely to occur from a serious disease, acute infection or because you tried to run a marathon on a hot day.

One-time or isolated seizures from these causes don’t warrant a diagnosis of epilepsy.

However, epilepsy is sometimes misdiagnosed and you may have an underlying health condition that’s causing an electrolyte problem.


Drug Resistant Epilepsy News

September 30, 2019
34 Comments

News of this groundbreaking scientific discovery comes from “zarabia” a member of the epilepsy support board at WebMD.com.  It’s very exciting and offers real hope.


Epilepsy and Electrolytes

September 12, 2019
28 Comments

It’s a situation often mentioned but rarely understood – the effects electrolytes have on seizures.

But a simple blood test can detect the danger of unbalanced electrolytes.

Taking extra doses of certain minerals can help to prevent side-effects that may follow the long-term use of some seizure medicines.

And taking supplements can help protect the brain (as can a B-Vitamin complex), but it’s no guarantee of seizure control, since there are a lot of different factors at play that can trigger a seizure.

But, making sure you have the right nutrients is just as important as having the right balance between all of them, so that proper electrical connections are maintained.


Epileptic Synesthesia: What Is It?

September 7, 2019
47 Comments

A friend of mine with TLE, told me he had synesthesia and I didn’t have a clue what he was talking about. And so, I set to find out exactly what this mysterious sounding condition was…

First of all, Epileptic Synesthesia is pretty rare.

It occurs in 4% of temporal lobe seizures and is theoretically caused by the actual electric discharge or abnormal stimulation of the brain in a seizure.

Sight, sound, touch, taste (and, much less often, your sense of smell) sensations can occur simultaneously and also involve involuntary movement.


Suicide and Epilepsy

August 23, 2019
27 Comments

The statistics are depressing. (Which is one of the chief factors in suicide.) But studies say that suicide can happen to anyone at any age.

Statistics

Studies show that newly diagnosed epilepsy patients are five times more likely to commit suicide than patients who had been diagnosed more than six months previously.

And a 29-fold increase in suicide risk was seen in newly diagnosed patients with a history of psychiatric illness.

“Newly diagnosed patients often have many misconceptions about the disease,” researcher Per Sidenius, MD, of Aarhus University says. “They often don’t understand that there are good treatments with few side effects.”


Lefties Unite!

August 17, 2019
17 Comments

So you have epilepsy.  And you’re left-handed.  Is it a curse…a blessing…or a challenge?

Well, you’re not exactly alone.  Between six and sixteen percent of people today are left-handed. And guess what? 

Left-handedness is also associated with a higher incidence of epilepsy. 

Gee, what a surprise!

But, here’s the good news…


How Music Soothes Your Seizures…

August 6, 2019
2 Comments

Music is food for the soul, the mind and the body.

Great music, when carefully selected, can change our moods, energize us, calm us, improve our mental focus, lift us up spiritually, and help us become more healthy.

Not surprisingly, music has also been found to have a profoundly positive effect on people with epilepsy.

In fact, one research study even found that when patients are treated with music therapy as well as conventional anti-seizure meds, as many as eighty percent of seizures were reduced by seventy-five percent!


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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