Epilepsy Talk

SUDEP – Who’s at Risk?

September 27, 2020
21 Comments

When people with epilepsy are told about Sudden Unexpected Death, they naturally wonder “Will it happen to me?”

But actually, the chances of dying from SUDEP are remote.

Though it is still difficult to know exactly how many people with epilepsy die each year due to SUDEP, estimates range from 7–17% (according to the National Institute of Health) and perhaps 50% among patients with refractory epilepsy.


Epilepsy: Meditation vs. Medication

September 18, 2020
23 Comments

Neither is mutually exclusive.

You can have medication without meditation. Most of us do.

You can do meditation without medication. Most of us wouldn’t and shouldn’t take that risk.

But together, they can enhance one another.


Exactly what IS Neuropsychology?

September 6, 2020
26 Comments

I never had a clue what neuropsychology was all about. Although it sounded like a good idea.

Then a while ago, I had an assessment. (Mercifully, it was the two-hour test and not the 8-hour version.)

The neuropsychologist I went to had all the records from my last 12 years with my neurologist and it was clear he had done his homework.

The question was, did my deficit in memory come from my history of seizures, my previous concussions (one of which had only been a month ago) or even age itself? (I thought to myself, geeze, I’m only 67!)

Here’s basically what happened…


Epilepsy Studies: True or False?

August 3, 2020
21 Comments

There’s a “Golden Rule” which says: “He who has the most gold makes the rules.”

And who might that be? And what are the methods used?

Some are simply amazing. (Or at least I thought so.)

But they all follow the “Golden Rule.”

Did you know about the “The Foreign Factor”?


Epilepsy Related Conditions

July 29, 2020
77 Comments

In chronic conditions, such as epilepsy, the coexistence of more than one illness in a patient is the rule rather than the exception…

Men and women with epilepsy have a two-to five-fold increase in the occurrence of conditions, such as migraine, cerebrovascular and cardiovascular disorders. Along with gastrointestinal disorders, pulmonary disorders, dementia, chronic fatigue, mood disorders, anxiety, and personality disorders.

The type and prevalence of conditions is largely age dependent. 

For example, among epilepsy patients, asthma is common among the young, while cardiovascular diseases and stroke are prevalent in older individuals—but both occur more frequently than in the general population.

Below is a sampling of some of the conditions which are related (but not necessarily caused) by epilepsy…


Will that antidepressant work for you?

July 26, 2020
11 Comments

The answer may be in your brain waves.

“Scientists have taken a small step toward personalizing treatment for depression.


People Talk About Their Out-Of-Body Experiences

July 22, 2020
11 Comments

People speak of their own experiences:

“The best way I can describe it is that it was like watching television in your mind.”


New Data Back Use of Medical Cannabis for Epilepsy, Pain, Anxiety

July 7, 2020
15 Comments

Two new studies offer positive news about medical cannabis — suggesting that marijuana products improve physical and cognitive symptoms, boost quality of life, and rarely produce signs of problematic use.


Is it ADHD…Epilepsy…or Both?

June 30, 2020
8 Comments

ADHD is the current term for the neurological condition formerly known as ADD (Attention Deficit Disorder), Hyperactivity, Hyperkinesis, Organic Brain Syndrome, Minimal Brain Dysfunction, and Minimal Brain Damage.

About 5% of children in the general population have ADHD.  However, about 30-40% of children with epilepsy may have ADHD or attention problems. Also, ADHD is seen more often in boys than in girls (some medical professionals claim this ratio to be as high 4 to 1).


Treating Seizures — 7 Amazing New Breakthroughs

June 27, 2020
10 Comments

What if you could predict an oncoming seizure in time for you stop it? Or even prevent it?

That day may be coming sooner than you think, thanks to these seven new technologies.

You’ll learn what they are, how they work and how far along they are.

There’s a lot of new and exciting research going on — all over the world — about predicting and preventing seizures. 


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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