Epilepsy Talk
A neurologist talks about his own epilepsy… | April 16, 2024
In this eye-opening article from the New York Times, a neurologist talks about his own journey with epilepsy: his perceptions, other people’s reactions (not good) and how he decided to become a neurologist.
A wonderful account of the doctor as patient and “must” reading for anyone who has epilepsy…
http://well.blogs.nytimes.com/2011/06/23/seeing-epilepsy-from-the-patients-point-of-view/?emc=eta1
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I would think it to be extremely difficult to practice medicine, Neurology!, after having your left temporal lobe removed. The man was obviously a genius.
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Comment by Paul — April 16, 2024 @ 11:24 AM
Thank you for sharing this! Amazing story & very inspirational!
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Comment by Kristi Russo — April 16, 2024 @ 2:44 PM
I put this on seizuremamaandrose.org.
We never can have enough insight into the impact epilepsy has on the folks who have it.
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Comment by Flower Roberts — April 16, 2024 @ 5:23 PM
OMG Rose! I just finished your book and LOVED it.
I’m complimented to be part of anything you say and do.
You are a (human) angel to me.
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Comment by Phylis Feiner Johnson — April 16, 2024 @ 9:09 PM
This resonates with me.
I WAS an Oncology Nurse Specialist with a Masters Degree in Palliative medicine.
After many happy married years and working in medicine for 22 years, I fell pregnant at age 39 and took a hiatus from my job to have my son at age 40.
I had five blissful years with my young son.
I was fit and healthy and had just completed a half marathon for charity.
My son had started school when I had a severe car wreck, a TBI and was diagnosed with Encephalitis.
I’ve since had seven years that nothing could have prepared me for.
I have all sorts of cognitive impairments, generalised tonic-clonic seizures that have never been controlled, have forfeited all independence out with the home (to stay safe for my son and husband) and have a very poor quality of life.
I’ve had 29 emergency admissions to the hospital within that time, culminating in a terrifying ICU stay, ventilation and almost died due to an untreated UTI.
I am no longer proud of my profession.
I have watched whilst errors, poor care, appalling communication, and complete lack of any understanding of this illness have impacted every single aspect of my life.
It is not a “sexy” illness, it’s misunderstood, surrounded by stigma and for most, there is no happy ending.
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Comment by kiltiegirl — April 22, 2024 @ 7:50 PM
My heart goes out to you.
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Comment by Phylis Feiner Johnson — April 23, 2024 @ 10:22 AM