Epilepsy Talk

Gratitude is the Attitude | November 26, 2020

We have so much to be grateful for, especially me:

1. For your support, strength and caring…

2. Your smart, sensitive advice…

3. The compassion you share so generously…

4. All of your kind, wise encouragement…

5. Your never-ending love and dedication…

You are MY godsend…today, tomorrow and always.


  1. Also thanks for the Internet and electricity, making our connection possible; and for literacy, without which, etc.

    Liked by 2 people

    Comment by HoDo — November 26, 2020 @ 8:34 AM

  2. Reblogged this on Epilepsy & Cerebral Palsy.

    Liked by 1 person

    Comment by Kenneth Ratcliffe — November 26, 2020 @ 8:56 AM

  3. For the advance in control of seizures…

    For finding an epileptologist who treated me like family…

    For everyone who has shown me their support and everyone I have been able to give support…

    For having no fear of being alone with my grandchildren…

    For the last 20 years being the recipient of a second chance at life…

    Liked by 2 people

    Comment by Ed Lugge — November 26, 2020 @ 9:04 AM

  4. But,,, All those things are temporary. Yes, even after 60 years to the day, when you look back at that date on Thanksgiving Day 1960 on NOV 24th. FFWD>>2020 I had another GRAND MAL and why does it continue 60 years later to that day on 11-24-20. Only 1 answer JOB SECURITY for neurologist who do not care to ever stop seizures for anyone who has had them for a lifetime & lives with seizures, before that INNOCENT INFANT keeps having seizures, & ever create a conscience of their own to think for themselves. EXAMPLE,,, VIMPAT is an AED that can cause HEART BLOCKAGES, as I have had chest pain now & then, throughout the summer, & spring, doing all that I do, having been doing outside work. Waiting for my results over 10 days ago from a ECG & a STRESS TESTS being on a treadmill. Been through this before back in 2009 when then I took VIMPAT & I was never told then that VIMPAT causes heart value & artery blockages.


    Comment by James D — November 26, 2020 @ 9:07 AM

    • James,,, One of the world’s celebrated best football/soccer players who led Argentina to world champion in 1980 & 1984, Diego Maradona was born in 1960 & died this week in 2020. He was only 60.
      While I can understand your frustration with the hardships of controlling your seizures, you’re fortunate you beat epilepsy for 60 years & you’re still alive to fight for another day unlike Diego Maradona.
      Therefore, I would advise you to count your blessings & appreciate your victorious struggle to make it this far against all odds.
      I pray for you!

      Liked by 2 people

      Comment by Gerrie — November 27, 2020 @ 11:55 AM

  5. Though I don’t post often, I am grateful for this technology that brings us together. Surely there are some of us who are alone right now on Thanksgiving because of the pandemic. We can come here to be a part of something bigger than ourselves. Thank you, Phylis, for being like the Biblical image of a shepherd who brings the scattered sheep together.

    Liked by 2 people

    Comment by George Choyce — November 26, 2020 @ 9:28 AM

  6. To the brave, persistent folks of the diversity and inclusion movement, gratitude.

    To the public officials and lawmakers who are making things easier, gratitude.

    To every health care worker who takes the time to really listen, thank you.

    To Doctors Schachter and Devinsky, thank you.

    Liked by 2 people

    Comment by HoDo — November 26, 2020 @ 11:49 AM

  7. Devinsky is my hero. And I wrote an article for Steven Schachter’s latest book on epilepsy advocates. I was honored to be asked. Where did he find me?? I don’t know!!!


    Comment by Phylis Feiner Johnson — November 26, 2020 @ 11:58 AM

    • He asked us, and we ratted you out, I mean, recommended you.

      Liked by 1 person

      Comment by HoDo — November 26, 2020 @ 12:02 PM

      • Who is “us”?

        Well, humanoids, thank you for the vote of confidence.

        I was thrilled to be part of the project!

        Liked by 1 person

        Comment by Phylis Feiner Johnson — November 26, 2020 @ 12:24 PM

      • Us your subscribers. If he had actually asked, we would have applauded. Or maybe he read the postings here and we did recommend you, in a way.

        Liked by 1 person

        Comment by HoDo — November 26, 2020 @ 1:26 PM

  8. Especially you. Your advice to everyone. You inspire.


    Liked by 2 people

    Comment by Danny — November 26, 2020 @ 12:59 PM

  9. Thank You for perseverance in giving a format where people can learn and have a voice. You are Blessing for many… Happy Thanksgiving to You…

    Liked by 2 people

    Comment by Doreen — November 26, 2020 @ 1:25 PM

  10. Thank you for your ongoing advocacy, support and new information. Your blog is a breath of fresh air! Happy Thanksgiving!

    Liked by 2 people

    Comment by skolly9 — November 26, 2020 @ 3:55 PM

  11. Erving Goffman, in his book on stigma, says that people who are stigmatized are seen by “normals” as less than human. Here, at least, in this safe space Phylis has made and maintains, we can be human together; for which I am profoundly grateful.

    Liked by 2 people

    Comment by HoDo — November 26, 2020 @ 6:16 PM

    • It’s my dream that people have a safe place where they can express themselves, rant and roar, ask questions, seek advice and be upheld by genuine people who do not judge, they only care.

      Liked by 1 person

      Comment by Phylis Feiner Johnson — November 26, 2020 @ 6:49 PM

      • You’re pretty close to making that dream a reality.

        Liked by 1 person

        Comment by HoDo — November 26, 2020 @ 6:55 PM

  12. I am so grateful I found this site. You are so welcoming and sympathetic to epilepsy sufferers of all stripes and types 😊

    Liked by 2 people

    Comment by Hetty Eliot — November 26, 2020 @ 11:47 PM

  13. Thanks for sacrificing & sharing your precious time, resources & deep understanding of seizures, I learned & managed to live with epilepsy from you & all members of EpilepsyTalk.
    I couldn’t have made it without all of you therefore I’m eternally grateful for your inspiring & informative support to my struggle with epilepsy.
    Happy Holidays!

    Liked by 2 people

    Comment by Gerrie — November 27, 2020 @ 12:19 PM

    • We all learn from each other, that’s the beauty of sharing. And I don’t know what I would do without YOU, Gerrie!


      Comment by Phylis Feiner Johnson — November 27, 2020 @ 2:36 PM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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