Epilepsy Talk

A Caregiver’s Guide to Survival…

September 18, 2019
10 Comments

It’s called “burn out.” Because, let’s face it, being a caregiver is exhausting.

You may feel guilt, resentment, anger, anxiety or helplessness.

You may have to give up your income and career prospects to care for someone.

Even if you love the person very deeply, it can feel as though the focus is always on them and your needs and wishes go unnoticed. 

Often you deal with the situation alone and feel very isolated.

(My mother-in-law didn’t leave the house for two years when my father-in-law was dying.)

But you can’t do anything to help another person if you’re a basket case yourself.

To be the best caregiver possible, you need to be physically and emotionally well, yourself.

After all, how effective can you be…


Depression is quiet

July 31, 2019
15 Comments

Depression is quiet.

You would be surprised with how many people in your life could be going through depression at this very moment.

People hide it like a paper bag over their heads, out of fear of being judged, made fun of, seen as weak, or just not taken seriously.

Anyone can fall victim to it.


The perfect fortune…

July 13, 2019
16 Comments

I got these words of wisdom in a fortune cookie last night, after a delicious dinner.

The cookie was pretty good, but the fortune was even better…


Autism — Who Has It?

August 29, 2015
15 Comments

The autism rate has increased — 1 in 68 kids are now identified with the disorder. 20-30% of children with Autism Spectrum Disorder (ASD) develop epilepsy. And children whose language skills regress before they turn 3 have been found to have a higher risk of developing epilepsy.


A Reason to Celebrate!

March 15, 2013
25 Comments

Epilepsy Talk has just surpassed 1,000 visitors a day.

And that’s because of YOU!


New Epilepsy Diagnosis — Now What?

April 30, 2012
14 Comments

You’ve just been diagnosed with epilepsy…

YOU’RE SCARED. Who wouldn’t be? THE DOCS. There are lots of terrific ones. THE TESTS. They can actually help to correctly diagnose your epilepsy. I’LL DIE. Not very likely. MY LIFE IS OVER. No, it’s not, but it will change…


The “SmartPen” –- PERFECT for Struggling Students!

February 10, 2012
18 Comments

For all those struggling students, now there’s this new, incredible device called the “Smartpen”.

Yup. A pen can be smart.

Here is a pen that could transform the life of a learning disabled child. Or a physically challenged person.

How about a pen that might bring up the grades of a college student who finds it difficult to take notes fast enough to record the main points covered by lecturers?

A Smartpen is a computer in a pen that can capture handwriting at the same time as recording speech. Users can tap on their notes to replay what was recorded. Think of it as a digital “touch” pen…


Hooray for Forums!

July 28, 2011
9 Comments

I never met anyone with epilepsy until I was 29. And that was a best friend of my husband’s. (Which may explain why my husband didn’t freak out when I had a seizure on our first date!)

That was it. Beginning and end. Until 2009, when I began participating in other forums (I didn’t even know what a “forum” was!) and started EpilepsyTalk.com.


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

    View Full Profile →