Epilepsy Talk

Hooray for Forums! 

June 5, 2022
10 Comments

I never met anyone with epilepsy until I was 29. And that was a best friend of my husband’s. (Which may explain why my husband didn’t freak out when I had a seizure on our first date!)

That was it. Beginning and end…


A Caregiver’s Guide to Survival…

February 25, 2022
2 Comments

It’s called “burn out.”

Because, let’s face it, being a caregiver is exhausting.

You may feel guilt, resentment, anger, anxiety or helplessness.

You may have to give up your income and career prospects to care for someone.

Even if you love the person very deeply, it can feel as though the focus is always on them and your needs and wishes go unnoticed.

Often you deal with the situation alone and feel very isolated. (My mother-in-law didn’t leave the house for two years when my father-in-law was dying.)

But you can’t do anything to help another person if you’re a basket case yourself.


A Reason to Celebrate!

May 15, 2021
26 Comments

Epilepsy Talk has just surpassed 3,000 visitors a day.

And that’s because of YOU!


New Epilepsy Diagnosis — Now What?

February 6, 2020
23 Comments

You’re scared. Who wouldn’t be? 
The docs. There are lots of terrific ones. 
The tests. They can actually help to correctly diagnose your epilepsy.
I’ll die. Not very likely. 
My life is over. No, it’s not, but it will change…


A Caregiver’s Guide to Survival…

September 18, 2019
12 Comments

It’s called “burn out.” Because, let’s face it, being a caregiver is exhausting.

You may feel guilt, resentment, anger, anxiety or helplessness.

You may have to give up your income and career prospects to care for someone.

Even if you love the person very deeply, it can feel as though the focus is always on them and your needs and wishes go unnoticed. 

Often you deal with the situation alone and feel very isolated.

(My mother-in-law didn’t leave the house for two years when my father-in-law was dying.)

But you can’t do anything to help another person if you’re a basket case yourself.

To be the best caregiver possible, you need to be physically and emotionally well, yourself.

After all, how effective can you be…


Autism — Who Has It?

August 29, 2015
17 Comments

The autism rate has increased — 1 in 68 kids are now identified with the disorder. 20-30% of children with Autism Spectrum Disorder (ASD) develop epilepsy. And children whose language skills regress before they turn 3 have been found to have a higher risk of developing epilepsy.


A Reason to Celebrate!

March 15, 2013
25 Comments

Epilepsy Talk has just surpassed 1,000 visitors a day.

And that’s because of YOU!


The “SmartPen” –- PERFECT for Struggling Students!

February 10, 2012
18 Comments

For all those struggling students, now there’s this new, incredible device called the “Smartpen”.

Yup. A pen can be smart.

Here is a pen that could transform the life of a learning disabled child. Or a physically challenged person.

How about a pen that might bring up the grades of a college student who finds it difficult to take notes fast enough to record the main points covered by lecturers?

A Smartpen is a computer in a pen that can capture handwriting at the same time as recording speech. Users can tap on their notes to replay what was recorded. Think of it as a digital “touch” pen…


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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