Epilepsy Talk

Seizure-free…a hope or a promise?

August 13, 2022
12 Comments

Is it a reality…a hope…or a promise?

Have you been there once for a visit? And then come back, to the land of falling down, shaking, quaking and blackouts.

We all know, the only thing that remains the same is change.

Everything is in a state of flux. Drugs, science, our bodies, our brains.

From that you can choose hopelessness. Or hope.


Domestic violence — when love goes wrong

August 6, 2022
7 Comments

Carol found herself in a cycle of violence from the time she was a child. By adulthood, she had already experienced multiple beatings and hospitalizations.

In the most recent attack, her husband beat her with a board, leaving her with permanent brain damage and a life-long disability.

As a result of her injury, she now has frequent seizures, difficulty with balance, and is terrified to leave her home for fear of having a seizure or falling.


Can you get seizures after vaping?

August 3, 2022
2 Comments

Reports of people who have seizures after vaping have raised serious questions about the safety of electronic cigarettes, which have grown in popularity in recent years.


Posted in Epilepsy, News
Tags: , ,

Why won’t you play with me?

July 28, 2022
5 Comments

Once upon a time there was this girl named Ellen.

She had epilepsy and she hated the world.

So the world hated her back.


Dilantin – Hero or Horror?

May 1, 2022
28 Comments

Since it first came out, Dilantin has always had its fans and its detractors.

Who can forget Jack Nicholson’s out-of-control behavior as the “crazy” in Ken Kesey’s “One Flew Over the Cuckoo’s Nest”!


Exactly what IS Neuropsychology?

February 13, 2022
13 Comments

I never had a clue what neuropsychology was all about. Although it sounded like a good idea.

Then a while ago, I had an assessment. (Mercifully, it was the two-hour test and not the 8-hour version.)

The neuropsychologist I went to had all the records from my last 12 years with my neurologist and it was clear he had done his homework.

The question was, did my deficit in memory come from my history of seizures, my previous concussions (one of which had been only a month ago) or even age itself? (I thought to myself, geeze, I’m only 68!)

Here’s basically what happened…


Seizure Free – A Hope or a Promise?

September 25, 2021
19 Comments

Is it a reality…a hope…or a promise?

Have you been there once for a visit?

And then come back, to the land of falling down, shaking, quaking and blackouts.

We all know, the only thing that remains the same is change.

Everything is in a state of flux.

Drugs, science, our bodies, our brains.

From that you can choose hopelessness. Or hope.


What Most Offends YOU About How People Treat Epilepsy?

September 20, 2021
33 Comments

I call epilepsy the “stealth condition,” because most people don’t actually witness a seizure.

Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


Epilepsy: Meditation vs. Medication

August 3, 2021
2 Comments

You can have medication without meditation. Most of us do.

You can do meditation without medication. Most of us wouldn’t and shouldn’t take that risk.

But together, they can enhance one another.


Other Voices…Other Lives…

July 17, 2021
14 Comments

“There were times I asked myself,
‘Is life really worth living?’
Suicide, now there’s a thought,
But would God be forgiving?”

Ed L.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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