Epilepsy Talk

Other Voices…Other Lives…

July 17, 2021
11 Comments

“There were times I asked myself,
‘Is life really worth living?’
Suicide, now there’s a thought,
But would God be forgiving?”

Ed L.


Headaches and Seizures: Can You Prevent Getting Them?

June 13, 2021
21 Comments

From RSC Diagnostics, an article for anyone who may have one of the four types of epilepsy headaches:

Headaches can happen before or after a seizure, even acting as a warning sign that a seizure is coming on.

This article examines the four types of headaches that are associated with epilepsy.

And even more importantly, possible treatment options.

http://www.rscdiagnosticservices.com/blog/headaches-and-seizures-can-you-prevent-getting-them

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Epilepsy and Energy Drinks — Think Before You Drink!

June 7, 2021
20 Comments

It feels good and it tastes good, it’s easy to drink and it gives you that extra jolt of energy. But is it really worth it?

Think the death of 18-year-old Irish athlete, Ross Cooney, who died within hours after playing a basketball game and consuming four cans of “Red Bull”.


Sleep and Seizures. How Much Is It Costing You?

April 21, 2021
15 Comments

Sleepless nights. Exhausted afternoons. Confusion. Memory loss. Trouble with concentration, mood swings and of course, seizures.

Which may increase in frequency or severity. Or even contribute to intractable seizures.

It seems like an endless cycle.


Why Won’t You Play With Me?

February 19, 2021
9 Comments

Once upon a time there was this girl named Ellen.

She had epilepsy and she hated the world.

So the world hated her back.

She had no friends and didn’t speak to anybody.

In turn, nobody spoke to her. Except the occasional bully.


Dating Disasters and Epilepsy

February 5, 2021
15 Comments

When I was a teen I fell down, walked into walls, bumped into virtually everything in my path, and almost drowned in the shower.

So, you can imagine what a disaster dating was.

Of course, in my infinite wisdom, I would never tell my dates that I had epilepsy. 

My parents wouldn’t even utter the word, so rather than become a pariah, I kept my mouth shut.

Bad idea…


The Trouble with AEDs…

February 2, 2021
17 Comments

At the very best, finding the right anti-epilepsy drug is a crap shoot. There’s always the hope that this one will do it.

Or maybe adjunct therapy will work. Or, sigh, the side-effects derail you and you’re on to the next.

Is asking for seizure control too much?


Hormones and Epilepsy in Women and Men…

January 28, 2021
12 Comments

There’s a dynamic relationship between hormones, brain function, and seizures.

Whether you’re a woman or a man, sex hormones can influence the excitability of nerve cells in the brain and thus influence seizure control.

Hormones generally don’t cause seizures but can influence if or when they happen.


Syncope or Seizure?

January 21, 2021
2 Comments

Studies have now confirmed what some doctors have long suspected — many young people who are given the diagnosis of epilepsy (or seizure disorder) apparently don’t have epilepsy at all.

Instead, they have a condition known as syncope.


Seizures won’t wait — even during COVID-19

November 20, 2020
12 Comments

COVID-19 seems to be knocking on everybody’s door. Along with the peril and the terror.

And the possibility of seeing your doctor during these dangerous times seems risky, at best.

So, you can’t see the doctor and they can’t see you.

Except in a hospital setting, critical care or a clinic.

That could means more exposure. More jeopardy. Is it really worth the exposure?


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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