Epilepsy Talk

Syncope or Seizure?

May 16, 2018
18 Comments

Studies have now confirmed what some doctors have long suspected — many young people who are given the diagnosis of epilepsy (or seizure disorder) apparently don’t have epilepsy at all.

Instead, they have a condition known as syncope.

Syncope (sing’-koe-pee), the medical term for fainting, is the sudden loss of consciousness and physical collapse due to lack of blood and oxygen to the brain. It can occur with or without warning — as an isolated event — or frequently, over time.

Since syncope can mimic the symptoms of some epileptic seizures — such as muscle twitching, shaking, convulsions and physical collapse — the confusion begins.


The Trouble with AEDs

May 9, 2018
14 Comments

At the very best, finding the right anti-epilepsy drug is a crap shoot. There’s always the hope that this one will do it.

Or maybe adjunct therapy will work. Or, sigh, the side-effects derail you and you’re on to the next.

Is asking for seizure control too much?


Epilepsy and Diabetes — Confusion or Common Cure?

April 10, 2018
16 Comments

You might be surprised to hear it, but according to recent research, epilepsy and diabetes have more in common than we thought.

The key commonality is fluctuating blood sugar.

People with hyperglycemia tend to have focal or local seizures. 

And those who are hypoglycemic, tend to have tonic-clonic seizures…


What’s Sweeter than Sugar and Good for You Too?

March 25, 2018
12 Comments

For many, high sugar intake can cause seizures…along with emotional instability…dizziness…depression…food allergies…diabetes…and osteoporosis…to name just a few.

Even worse, aspartame interacts with anti-seizure medication.

And over the years, various reports have implicated aspartame in headaches, memory loss, seizures, vision loss, coma, and cancer.

It also appears to worsen or mimic the symptoms of such conditions as fibromyalgia, MS, lupus, diabetes, Alzheimer’s, chronic fatigue, and depression.

And, after receiving some 10,000 consumer complaints, the FDA compiled a list of 92 symptoms linked to aspartame — including death.

But there are two healthy alternatives…


Sodium and Seizures

March 10, 2018
24 Comments

You may think that sodium is a “bad guy” to be avoided or reduced at all cost, because too much is linked to high blood pressure.

But sodium is actually an essential electrolyte, and a deficiency can trigger seizures.


Hormonal Imbalances and Seizures in Women

December 9, 2017
14 Comments

Many women with epilepsy have asked their doctors about the connection between seizures and hormones, but not every woman has seen her concerns given the attention she’d hoped for.

Although it is not very well understood at this point, there are scientifically documented connections between seizures and hormones that not all physicians are educated about…


Updated — 40+ Different Kinds of Epilepsy

September 13, 2017
27 Comments

When I was first diagnosed with epilepsy, there were two kinds of seizures. Grand Mal and Petit Mal. (Can you guess how old I am?)

Now, things are much more different and difficult. No more cut and dried.

So, please, if you have any additions, subtractions or corrections, feel free to chime in.

Because I don’t pretend to be an expert. In fact, this has certainly been a learning experience, from start to finish.

Here, to the best of my knowledge, are the 40+ different types of seizures.


What Most Offends YOU About How People Treat Epilepsy?

August 28, 2017
93 Comments

I call epilepsy the “stealth disease,” because most people don’t actually witness a seizure. Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


Is Epilepsy Inherited?

August 23, 2017
22 Comments

Just because you have a parent, sibling, cousin or aunt who has epilepsy doesn’t necessarily mean you’ll have it also.

In fact, if you have a close relative with epilepsy, the chance of you having epilepsy is only about 2-5%, depending on the specific type of epilepsy.

The risk in the general population is about 1-2%.

On the other hand, there is a 92-98% chance for the close relative of someone with epilepsy to NOT have the same condition!


Domestic Violence — When Love Goes Wrong

May 16, 2017
22 Comments

Carol found herself in a cycle of violence from the time she was a child. By adulthood, she had already experienced multiple beatings and hospitalizations.

In the most recent attack, her husband beat her with a board, leaving her with permanent brain damage and a life-long disability.

As a result of her injury, she now has frequent seizures, difficulty with balance, and is terrified to leave her home for fear of having a seizure or falling.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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