Epilepsy Talk
Seizure-free…a hope or a promise?
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Is it a reality…a hope…or a promise?
Have you been there once for a visit? And then come back, to the land of falling down, shaking, quaking and blackouts.
We all know, the only thing that remains the same is change.
Everything is in a state of flux. Drugs, science, our bodies, our brains.
From that you can choose hopelessness. Or hope.
Tags: angry, courage, drugs, Epilepsy, hope, hopelessness, information, perseverence, possibility, promise?, science, seizure-free, seizures, support, surgery, victim, VNS
Seizure Free – A Hope or a Promise?
19 Comments
Is it a reality…a hope…or a promise?
Have you been there once for a visit?
And then come back, to the land of falling down, shaking, quaking and blackouts.
We all know, the only thing that remains the same is change.
Everything is in a state of flux.
Drugs, science, our bodies, our brains.
From that you can choose hopelessness. Or hope.
Tags: angry, courage, drugs, Epilepsy, hope, hopelessness, information, perseverence, possibility, promise?, science, seizure-free, seizures, support, surgery, victim, VNS
The Promise of the New Year…
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The new year falls upon us…
With hopes of health, dreams of joy…
Ode to a Doctor’s Visit…
15 Comments
They forget that we live 365 days or 8,760 hours a year with our illness…
We see them for four 30 minute visits or 2 hours in that year while we’re struggling…
We spend time planning in anticipation of this precious, important moment…
Tags: doctor's visit, endless tests, fear, hope, hours, minutes, our condition, respond with respect
New Hope for Epilepsy Stem Cell Therapy
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About stem cells: “They’ve been called magic seeds. They have the potential to cure disease, regenerate organs, and even prolong life. And they could completely alter the way we practice medicine” – Fortune Magazine
There are many exciting areas in epilepsy research. One topic of great interest is the use of stem cells to treat seizures.
Tags: beneficial effects, chronic epilepsy, cure disease, data, Epilepsy, help memory, hope, medication resistant, neurons, prolong life, promise?, regenerate organs, Research, seizure focus, stem cell
Clinical Trials. YES or NO?
6 Comments
If I was asked to take part in a clinical trial, I’m not sure what I’d say…
First there is the fear factor. Would I be a guinea pig for something dangerous? Would they take away my medicines? Would it hurt me? Would it change something in me?
I asked those very questions to Patient Advocate David Albaugh at Team Epilepsy. http://www.teamepilepsy.org/
Here’s what he had to say…
Tags: clinical trial, Epilepsy, hope, medications, progress
The Sacred Disease. A Movie You Can Not Afford to Miss…
4 Comments
The Sacred Disease is a movie you can not afford to miss…
Motivated by lack of funding and awareness for epilepsy, this film covers the full spectrum of what it’s like to live with this neurological condition by following the lives of three individuals. The Sacred Disease displays an intimate portrayal of the complexities and daily difficulties faced by people with epilepsy.
Tags: complexities, difficulties, Epilepsy, hope, movie, Research, sacred disease
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