Epilepsy Talk

The Isolation of Epilepsy

April 5, 2022
11 Comments

You’re reluctant to go out. Because having a seizure can be so unpredictable and embarrassing.

You think: “What if I have a seizure? What will people do? What will they think of me?”


What Most Offends YOU About How People Treat Epilepsy?

September 20, 2021
33 Comments

I call epilepsy the “stealth condition,” because most people don’t actually witness a seizure.

Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


Return from the Edge…

July 30, 2021
18 Comments

I almost died.

For a while I couldn’t even read.

My brain needed rebooting.

They told me my heart had stopped and I was lucky to be alive.


Epilepsy and Education…Coming Out Of The Shadows

May 27, 2021
12 Comments

It starts in the playground. A kid has a seizure and everybody freaks out. Nobody knows what to do.

Maybe not even the school nurse. Even though epilepsy first aid is a cinch.

It’s frightening to see a child seize and then, based on that fright, they think:

“I can’t deal with this.”


Epilepsy and Education…Coming Out Of The Shadows

December 6, 2018
10 Comments

It starts in the playground.  A kid has a seizure and everybody freaks out. 

Nobody knows what to do.  Maybe not even the school nurse. 

Even though epilepsy first aid is a cinch.

It’s frightening to see a child seize and then, based on that fright, they think:

“I can’t deal with this.”


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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