Epilepsy Talk

What Most Offends YOU About How People Treat Epilepsy?

September 1, 2018
52 Comments

I call epilepsy the “stealth disease,” because most people don’t actually witness a seizure. Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


The Isolation of Epilepsy

April 14, 2018
14 Comments

You’re reluctant to go out.  Because having a seizure can be so unpredictable and embarrassing.

You think: “What if I have a seizure?  What will people do?  What will they think of me?”

Those and many other self doubting questions run through your mind.

Even if you’ve only had a few seizures, there’s always the fear that silent (or not so silent) enemy may strike again.  So why chance it?


Epilepsy and Education…Coming Out Of The Shadows

February 2, 2011
31 Comments

It starts in the playground. A kid has a seizure and everybody freaks out. Nobody knows what to do. Maybe not even the school nurse. Even though epilepsy first aid is a cinch.

It’s frightening to see a child seize and then, based on that fright, they think “I can’t deal with this.” Some people still think epilepsy is contagious!


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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