Epilepsy Talk

Return from the edge…

April 27, 2024
6 Comments

I almost died.

For a while I couldn’t even read.

My brain needed rebooting.

They told me my heart had stopped.

I was lucky to be alive.


The Isolation of Epilepsy 

November 15, 2023
4 Comments

You’re reluctant to go out.

Because having a seizure can be so unpredictable and embarrassing.

You think: “What if I have a seizure?

What will people do? What will they think of me?”

Those and many other self doubting questions run through your mind.

Even if you’ve only had a few seizures, there’s always the fear that silent (or not so silent) enemy may strike again.

So why chance it?


What most offends YOU about how people treat epilepsy?

April 14, 2023
19 Comments

I call epilepsy the “stealth condition,” because most people don’t actually witness a seizure.

Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


Epilepsy and Education…Coming Out Of The Shadows

May 27, 2021
12 Comments

It starts in the playground. A kid has a seizure and everybody freaks out. Nobody knows what to do.

Maybe not even the school nurse. Even though epilepsy first aid is a cinch.

It’s frightening to see a child seize and then, based on that fright, they think:

“I can’t deal with this.”


Epilepsy and Education…Coming Out Of The Shadows

December 6, 2018
10 Comments

It starts in the playground.  A kid has a seizure and everybody freaks out. 

Nobody knows what to do.  Maybe not even the school nurse. 

Even though epilepsy first aid is a cinch.

It’s frightening to see a child seize and then, based on that fright, they think:

“I can’t deal with this.”


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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