Epilepsy Talk

What Most Offends YOU About How People Treat Epilepsy?

September 20, 2021
31 Comments

I call epilepsy the “stealth condition,” because most people don’t actually witness a seizure.

Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


The Isolation of Epilepsy

August 6, 2021
27 Comments

You’re reluctant to go out. Because having a seizure can be so unpredictable and embarrassing.

You think: “What if I have a seizure? What will people do? What will they think of me?”


Why would a psychiatrist be embarrassed?

July 23, 2021
7 Comments

Pills. Medication. They’re a sign of mental illness.

Even if you take them for depression, stability, anxiety.

There must be something inherently wrong with you.

What does it mean if you do need medication?

Are you’re crazy? Mentally ill? Unstable? Unreliable?

What if you ARE a psychiatrist AND take medication?


A Neurologist Talks About His Own Epilepsy…

June 20, 2021
17 Comments

In this eye-opening article from the New York Times, a neurologist talks about his own journey with epilepsy: his perceptions, other people’s reactions (not good) and how he decided to become a neurologist.


The Stigma of Epilepsy…

May 5, 2021
43 Comments

The stigma is ancient and it still remains today.

Laws in the United States and Great Britain that prohibited epileptic people to marry were just repealed in the late 1980s and early 1990s.

Until the late 1970s, legislations in the United States also prevented epileptic people from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]

Although these laws are no longer in effect, the underlying social divisions that they have created in the past thirty years are still present today.


Dating Disasters and Epilepsy

February 5, 2021
15 Comments

When I was a teen I fell down, walked into walls, bumped into virtually everything in my path, and almost drowned in the shower.

So, you can imagine what a disaster dating was.

Of course, in my infinite wisdom, I would never tell my dates that I had epilepsy. 

My parents wouldn’t even utter the word, so rather than become a pariah, I kept my mouth shut.

Bad idea…


A Neurologist Talks About His Own Epilepsy…

August 12, 2020
15 Comments

In this eye-opening article from the New York Times, a neurologist talks about his own journey with epilepsy: his perceptions, other people’s reactions (not good) and how he decided to become a neurologist.


The Isolation of Epilepsy

April 4, 2019
29 Comments

You’re reluctant to go out.  Because having a seizure can be so unpredictable and embarrassing.

You think: “What if I have a seizure?  What will people do?  What will they think of me?”

Those and many other self doubting questions run through your mind.


Epilepsy in Twitter Times

June 4, 2012
10 Comments

Twitter is not our friend.

And the misconceptions and stigma of epilepsy live on.

A revealing study published in Epilepsy & Behavior provides evidence that the perception of epilepsy is not faring well in social media. Kate McNeil and colleagues from Dalhousie University in Canada analyzed data collected from Twitter to provide a snapshot of how epilepsy is portrayed within the twitter community…


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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