Epilepsy Talk

The Stigma of Epilepsy

September 17, 2017
34 Comments

The stigma is ancient and it still remains today.

Laws in the United States and Great Britain that prohibited epileptic people to marry were just repealed in the late 1980s and early 1990s.

Until the late 1970s, legislations in the United States also prevented epileptic people from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]

Although these laws are no longer in effect, the underlying social divisions that they have created in the past thirty years are still present today.

In most states, having a seizure is technically illegal, and while prosecutions are rare, they do happen.


What Most Offends YOU About How People Treat Epilepsy?

August 28, 2017
93 Comments

I call epilepsy the “stealth disease,” because most people don’t actually witness a seizure. Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


Epilepsy Stigma and Awareness

June 17, 2017
18 Comments

Until the late 1970s, legislation in the United States prevented people with epilepsy from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]

“Most of my life, I have been scared to talk about my epilepsy. Why? Because I was scared what others would think. Society does isolate, even discriminates against people with epilepsy.” — Louis S.


Epilepsy in School

September 2, 2013
12 Comments

The most important word here is education. Not only for your child but for all those around him/her.

Because without education and awareness, the school experience can be a disaster for your child.


Epilepsy in Twitter Times

June 4, 2012
10 Comments

Twitter is not our friend.

And the misconceptions and stigma of epilepsy live on.

A revealing study published in Epilepsy & Behavior provides evidence that the perception of epilepsy is not faring well in social media. Kate McNeil and colleagues from Dalhousie University in Canada analyzed data collected from Twitter to provide a snapshot of how epilepsy is portrayed within the twitter community…


Dating Disasters and Epilepsy

May 12, 2012
62 Comments

When I was a teen I fell down, walked into walls, bumped into virtually everything in my path, and almost drowned in the shower.

So, you can imagine what a disaster dating was. Of course, in my infinite wisdom, I would never tell my dates that I had epilepsy. My parents wouldn’t even utter the word, so rather than become a pariah, I kept my mouth shut.

Bad idea…


Epilepsy Lags in Research and Funding…Even as Stigma Abates

November 7, 2010
10 Comments

From http://www.boston.com, November 6, 2010

“While advances have been made in Parkinson’s and Alzheimer’s diseases, research into another neurological disease, epilepsy, has proceeded more slowly. And funding lags well behind.”


The Isolation of Epilepsy

July 9, 2010
20 Comments

Fear, misunderstanding and the resulting social stigma surrounding epilepsy can result in social, and sometimes even legal, discrimination. All over the world, the social consequences of epilepsy are often the cause of more suffering than the seizures themselves.


Epilepsy Hall of Fame

September 13, 2009
20 Comments

Since the dawn of time, epilepsy has affected millions of people — from beggars to kings. It’s one of the oldest conditions and also one of the most misunderstood, although legions of accomplished people have shared the stigma.


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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