One thing I’ve discovered is the search for support groups is endless — and seldom successful.
Especially now that charitable contributions are tight and epilepsy centers have had to cut expenses. (Yes, our support is considered an “expense”.)
That’s why I’ve put together this short guide on how to form your own Epilepsy Support Group.
I bet you won’t be surprised to hear that epilepsy is most often depicted in sci-fi and horror films.
Just think of “The Andromeda Strain”, “Crazed”, “Deadwood”, “The Exorcist”, “The Exorcism of Emily Rose”, “Frankenstein”, “The Garden State”, “Lighthouse” and “The Terminal Man” to name a few.
DEMONIC = EPILEPTIC!
It starts in the playground. A kid has a seizure and everybody freaks out.
Nobody knows what to do. Maybe not even the school nurse.
Even though epilepsy first aid is a cinch.
It’s frightening to see a child seize and then, based on that fright, they think:
“I can’t deal with this.”
Sometimes, I get into a funk so bad that it’s like a black hole.
Until I remember the safety ladder that I always carry in my pocket.
I think of at least five things I’m grateful for.
Or if I’m down there awhile, I stretch it to ten.
Here are the top five on my gratitude list:
You might call them “imitators” of epilepsy, but that’s kind of extreme. You might say “similar” or you might say “confused”, which I think they are.
In a previous article titled “Conditions Commonly Misdiagnosed as Epilepsy”, I thought I had it all covered.
But, believe it or not, that was just the tip of the iceberg.
I dug deeper and researched further and here is what I learned about signs and signals which might cause epilepsy, might show the same symptoms of epilepsy, or might be masquerading in their own way as epilepsy…
What is Epilepsy Talk and who is that masked lady behind it?
Epilepsy Talk is a website that I created after 35 years of being a copywriter. And decades of having epilepsy myself.
New therapies, including medications, medical devices and surgical procedures, are evaluated in research studies known as clinical trials.
Often these new therapies are investigational, which means they are not yet approved by the U.S. Food and Drug Administration for general use.
Participation in clinical trials offers the potential for new treatment options and allows patients to participate with researchers in driving the discovery of effective therapies for epilepsy…
When I first started this article, I thought I was whistling in the wind. But I was happily surprised. Epilepsy scholarships do exist!
Some foundations and businesses award thousands of dollars towards your college education, others provide a few hundred. But the sooner you apply, the better chances you’ll have of getting at least some kind of assistance with your college tuition.
For five good epilepsy scholarship sponsors click on: http://www.collegescholarships.org/health/epileptic-students.htm and you’re off to a really good start!