Epilepsy Talk

How to Start Your Own Adult Epilepsy Support Group

August 14, 2019
2 Comments

One thing I’ve discovered is the search for support groups is endless — and seldom successful.

Especially now that charitable contributions are tight and epilepsy centers have had to cut expenses. (Yes, our support is considered an “expense”.)

That’s why I’ve put together this short guide on how to form your own Epilepsy Support Group.


Epilepsy at the Movies — Don’t Believe What You See or Hear!

July 10, 2019
18 Comments

I bet you won’t be surprised to hear that epilepsy is most often depicted in sci-fi and horror films.

Just think of “The Andromeda Strain”, “Crazed”, “Deadwood”, “The Exorcist”, “The Exorcism of Emily Rose”, “Frankenstein”, “The Garden State”, “Lighthouse” and “The Terminal Man” to name a few.

DEMONIC = EPILEPTIC!


Epilepsy and Education…Coming Out Of The Shadows

December 6, 2018
10 Comments

It starts in the playground.  A kid has a seizure and everybody freaks out. 

Nobody knows what to do.  Maybe not even the school nurse. 

Even though epilepsy first aid is a cinch.

It’s frightening to see a child seize and then, based on that fright, they think:

“I can’t deal with this.”


Gratitude is the Attitude…

November 21, 2018
16 Comments

Sometimes, I get into a funk so bad that it’s like a black hole. 

Until I remember the safety ladder that I always carry in my pocket.

I think of at least five things I’m grateful for.

Or if I’m down there awhile, I stretch it to ten.

Here are the top five on my gratitude list:


If You DON’T Have Epilepsy, Then WHAT Is It???

September 11, 2018
15 Comments

You might call them “imitators” of epilepsy, but that’s kind of extreme. You might say “similar” or you might say “confused”, which I think they are.

In a previous article titled “Conditions Commonly Misdiagnosed as Epilepsy”,  I thought I had it all covered.

But, believe it or not, that was just the tip of the iceberg.

I dug deeper and researched further and here is what I learned about signs and signals which might cause epilepsy, might show the same symptoms of epilepsy, or might be masquerading in their own way as epilepsy…


Pregnancy with Epilepsy — Medication Dangers

July 1, 2017
4 Comments

According to the Epilepsy Foundation, mothers taking seizure medication, risk birth defects of 4 to 8 percent — compared with 2 to 3 percent for all babies. Not much of a difference.

But the risk seems to be highest when multiple seizure medications are taken. Yet, without medication, uncontrolled seizures may deprive the baby of oxygen. Seizures can also increase the risk of miscarriage or stillbirth.

So, it’s important, as you know, to get the right balance.


Sex and Epilepsy — The Ultimate Challenge

May 8, 2017
4 Comments

It’s the $64,000 question.

Can I have sex with epilepsy, all the AEDs, and side-effects?

The answer is yes.

If you’re willing to be flexible.


For those of you who have been wondering…

June 8, 2016
31 Comments

What is Epilepsy Talk and who is that masked lady behind it?

Epilepsy Talk is a website that I created after 35 years of being a copywriter. And decades of having epilepsy myself.


Clinical Trials Explained

May 7, 2016
8 Comments

New therapies, including medications, medical devices and surgical procedures, are evaluated in research studies known as clinical trials.

Often these new therapies are investigational, which means they are not yet approved by the U.S. Food and Drug Administration for general use.

Participation in clinical trials offers the potential for new treatment options and allows patients to participate with researchers in driving the discovery of effective therapies for epilepsy…


Epilepsy College Scholarships

December 12, 2015
4 Comments

When I first started this article, I thought I was whistling in the wind. But I was happily surprised. Epilepsy scholarships do exist!

Some foundations and businesses award thousands of dollars towards your college education, others provide a few hundred. But the sooner you apply, the better chances you’ll have of getting at least some kind of assistance with your college tuition.

For five good epilepsy scholarship sponsors click on: http://www.collegescholarships.org/health/epileptic-students.htm and you’re off to a really good start!


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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