Epilepsy Talk

Epilepsy and Education…Coming Out Of The Shadows

December 6, 2018
10 Comments

It starts in the playground.  A kid has a seizure and everybody freaks out. 

Nobody knows what to do.  Maybe not even the school nurse. 

Even though epilepsy first aid is a cinch.

It’s frightening to see a child seize and then, based on that fright, they think:

“I can’t deal with this.”


What Most Offends YOU About How People Treat Epilepsy?

September 1, 2018
66 Comments

I call epilepsy the “stealth disease,” because most people don’t actually witness a seizure. Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


Bullied Because of Epilepsy…

August 29, 2018
31 Comments

Like lions, they smell the difference…

Like hawks, they sweep down on you…

And like hyenas, they laugh and eat your heart out.


The Stigma of Epilepsy…

January 14, 2018
34 Comments

The stigma is ancient and it still remains today.

Laws in the United States and Great Britain that prohibited epileptic people to marry were just repealed in the late 1980s and early 1990s.

Until the late 1970s, legislations in the United States also prevented epileptic people from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]

Although these laws are no longer in effect, the underlying social divisions that they have created in the past thirty years are still present today.


What’s YOUR Story?

January 15, 2013
41 Comments

When did you find out that you had epilepsy?

How?

What did you do after being diagnosed? 

How do you cope with it now?


New Epilepsy Diagnosis — Now What?

April 30, 2012
14 Comments

You’ve just been diagnosed with epilepsy…

YOU’RE SCARED. Who wouldn’t be? THE DOCS. There are lots of terrific ones. THE TESTS. They can actually help to correctly diagnose your epilepsy. I’LL DIE. Not very likely. MY LIFE IS OVER. No, it’s not, but it will change…


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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