Epilepsy Talk

Epilepsy Stigma and Awareness

June 17, 2017
18 Comments

Until the late 1970s, legislation in the United States prevented people with epilepsy from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]

“Most of my life, I have been scared to talk about my epilepsy. Why? Because I was scared what others would think. Society does isolate, even discriminates against people with epilepsy.” — Louis S.


Epilepsy and Education…Coming Out Of The Shadows

February 2, 2011
29 Comments

It starts in the playground. A kid has a seizure and everybody freaks out. Nobody knows what to do. Maybe not even the school nurse. Even though epilepsy first aid is a cinch.

It’s frightening to see a child seize and then, based on that fright, they think “I can’t deal with this.” Some people still think epilepsy is contagious!


Prison Abuse

January 25, 2010
4 Comments

This is a story of a staggering atrocity by both police officers and prison officials committed to a person with epilepsy upon arrest. His mother wrote to me here…


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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