Epilepsy Talk

Heat Is Not Our Friend…

July 3, 2020
26 Comments

And it can trigger some pretty awful consequences.

Like the time I was gardening at high noon. (What was I thinking about?) I fell backwards, hitting my head on the walkway. And I couldn’t ask for help because I was out cold. Baking in the sun.

And I’m sure you have your own stories. About passing out, puking or just feeling like you’re as dizzy as if you were on a roller coaster ride.

An epileptologist explained that heat can trigger a seizure for some people because it’s firing up the neurons in the brain which can cause a seizure.

Some examples:


Epilepsy Drug Side-Effects…

April 22, 2020
78 Comments

They’re necessary, but not necessarily nice.

And every med has its own side-effects.

Just as different people experience different difficulties.

But here‘s the low-down on the possible side-effects.


Death, Depression and AEDs

March 3, 2020
23 Comments

“Suicide Risk from 11 Anti-Epilepsy Drugs,” headlines blared across the country.

But we’re still here.

Was it sensationalism by the journalists, irresponsibility by the pharmaceutical industry or laxness of the FDA?


Epilepsy & Migraines — Kissing Cousins

March 18, 2019
17 Comments

A strong relationship between migraines and epilepsy has long been suspected.

But now it is fact, according to extensive research cited by Steven Karceski, MD in Practical Neurology Magazine.

The International Headache Society (IHS) criteria divides headache disorders into two main groups, with similarities to groups of epilepsies:


Pregnancy with Epilepsy — Medication Dangers

July 1, 2017
4 Comments

According to the Epilepsy Foundation, mothers taking seizure medication, risk birth defects of 4 to 8 percent — compared with 2 to 3 percent for all babies. Not much of a difference.

But the risk seems to be highest when multiple seizure medications are taken. Yet, without medication, uncontrolled seizures may deprive the baby of oxygen. Seizures can also increase the risk of miscarriage or stillbirth.

So, it’s important, as you know, to get the right balance.


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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