Epilepsy Talk

Heat Is Not Our Friend

June 26, 2016
38 Comments

Heat is not our friend.

And it can trigger some pretty awful consequences.

Like the time I was gardening at high noon. (What was I thinking about?) I fell backwards, hitting my head on the walkway. And I couldn’t ask for help because I was out cold. Baking in the sun.

And I’m sure you have your own stories. About passing out, puking or just feeling like you’re as dizzy as if you were on a roller coaster ride.


Epilepsy Advocacy Letter

November 3, 2015
8 Comments

Dear Friend / Neighbor,

This isn’t a note asking for money. (Although feel free to donate if you want to!)

It’s about epilepsy. Because even though over 3 million Americans have it (more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined), no one seems to want to talk about it.


12 Epilepsy Travel Tips

July 8, 2014
10 Comments

Traveling has never been easy, and people with epilepsy have always had to think twice about safety and managing medications while traveling. Since September 11, 2001, taking a trip has become even more difficult for people with epilepsy and their family members…


Epilepsy in School

September 2, 2013
12 Comments

The most important word here is education. Not only for your child but for all those around him/her.

Because without education and awareness, the school experience can be a disaster for your child.


New Epilepsy Diagnosis — Now What?

April 30, 2012
14 Comments

You’ve just been diagnosed with epilepsy…

YOU’RE SCARED. Who wouldn’t be? THE DOCS. There are lots of terrific ones. THE TESTS. They can actually help to correctly diagnose your epilepsy. I’LL DIE. Not very likely. MY LIFE IS OVER. No, it’s not, but it will change…


Popular TV Dramas Portray First Aid For Seizures Inaccurately

March 29, 2010
3 Comments

New research from Canada shows that almost half of the time, doctors and nurses on popular TV medical dramas respond inappropriately to seizures, suggesting that watching TV is not the best way to learn what to do if you are present when someone has a seizure.


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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