Epilepsy Talk

For those of you who have been wondering… | June 8, 2016

What is epilepsytalk.com and who is that masked lady behind it?

Epilepsytalk.com is a website that I created after 35 years of being a copywriter. And decades of having epilepsy myself.

My last client — before I chucked advertising for this labor of love — was a Health & Wellness company where I learned to research, research, research.

That’s the basis of my articles. Think of a subject, then research it to death (not literally), write, edit, double-check my facts and then release it for the public to read.

You can find the actual resources at the bottom of each article, with a hotlink which will take you there.

I hope you enjoy reading the articles and that you can take away a little more knowledge and understanding after reading them.

 


30 Comments »

  1. You do a great job!

    Like

    Comment by Kate jacques — June 8, 2016 @ 9:08 AM

  2. Good Morning Phylis,

    You have done an OUTSTANDING job of research & then reporting your findings for those that are afflicted with epilepsy or are family members or friends of these folks.

    I did post an email awhile back seeking anyone out there that would like to communicate via your web site to assist me coping with the loss of my Fraternal Twin Brother Allan, but as of this posting no response. My email is : ajgolfnut5@gmail.com

    Have a Wonderful day Phylis & many thanks again for your tireless reporting…it is very meaningful !

    AL “AJ” Johnson – Ontario, California

    P.S. The Support Groups you kindly shared with me previously…for the most part charge a fee & unfortunately our household budget is too tight to afford even the sliding scale being offered.

    Like

    Comment by AL "AJ" Johnson — June 8, 2016 @ 9:30 AM

  3. You have done an awesome job and I’m really grateful to have found this because it’s helped with a lot of questions thankyou!

    Liked by 1 person

    Comment by Kathy — June 8, 2016 @ 9:43 AM

  4. Did a good job over the years and it has helped me out a lot.

    Liked by 1 person

    Comment by Corina — June 8, 2016 @ 9:56 AM

  5. You do a great job and I always enjoy your research! Thanks!!

    Like

    Comment by Karen Hall — June 8, 2016 @ 10:03 AM

  6. Thank you, Karen. The research part is the most difficult, but the most rewarding part of my job.

    It’s the hardest I’ve ever worked, and the most rewarding!

    Like

    Comment by Phylis Feiner Johnson — June 8, 2016 @ 10:31 AM

  7. Happy Anniversary Epilepsy talk!!

    Al, you might try looking for a local hospital that treats brain tumors patients. Sometimes there are free support groups there. Many people dealing with brain tumors also, suffer from frequent seizures.Topic of epilepsy or seizure prevention is often discussed and they are usually free. You might even just start your own meeting at your local library Its all about volunteering your time for the good of humanity. As you do this you will find the joy and comfort YOU need in helping and giving to others. Now, I just need to practice what I preach a little better. Regarding your brother

    Like

    Comment by ala — June 8, 2016 @ 11:38 AM

    • Adult Epilepsy Support Groups — Updated

      https://epilepsytalk.com/2013/11/02/adult-epilepsy-support-groups-updated-2/

      Like

      Comment by Phylis Feiner Johnson — June 8, 2016 @ 11:56 AM

    • Good morning or afternoon Phylis wherever you might be in the U S.

      Appreciate your reply & recommendation to contact a local hospital or library to possibly formulate a support group.

      I was just hoping that someone out there would see my email address & we could communicate via this means to help support one another….namely a surviving Twin that is faced with the day in & day out memories of both the good & not so good times spent together.

      I will leave my email address once again in the event someone would like to email me: ajgolfnut5@gmail.com

      Thanks again for being there Phylis.

      AJ Ontario, California

      P.S. I am also trying to be strong for my wife who is still not out of the woods with have 2 breast cancer surgeries.. We just celebrated our 40th. Wedding Anniversary this past Saturday.

      Like

      Comment by AL "AJ" Johnson — June 8, 2016 @ 12:08 PM

      • I’m sorry no one has reached out to you Al.

        And I know it must be very tough going through your wife’s cancer.

        Nonetheless, Happy Anniversary and know that my heart is with you.

        Like

        Comment by Phylis Feiner Johnson — June 8, 2016 @ 3:51 PM

  8. When my seizure doctor, wanted to know what I meant when I was talking about my seizure warning. I wrote down what you said they were I wrote it down ,took it to him, and he agreed and said that is true. I learned a lot from being on here.

    Like

    Comment by michele metzger — June 8, 2016 @ 12:04 PM

  9. Great, Michele! Knowledge truly is power! 🙂

    Like

    Comment by Phylis Feiner Johnson — June 8, 2016 @ 3:53 PM

  10. You have been such a help to me. I could not believe some of the things that were happening to me after my stroke and before I knew it I realized I was normal. I was having psychic seizures constently. I was not having some new weird panic attacks that my psychiatrist and therapist thought They needed to treat. One day I had one and went unconscence and GP sent me to a Nuero and they immediately did EEG and MRI and all was picked up. Not only that but thyroidectomy 6 months after stroke now on thyroid meds for life. I can no longer eat Gluten either as of 2 years. So weight loss even though Depakote is drug of choice and for the first time even controlling my moods (I am Bipolar 1, on Disability because of). I also have to be cautious of cholesterol as that is what caused stroke. On meds for that too. I make all meals at home now. No going out to eat. It’s a different life now. I bought an Adult Trike 2 months ago so I can get around now too! 🙂

    Like

    Comment by Penny — June 8, 2016 @ 3:59 PM

  11. I forgot to mention my stroke was July 2012. That is when all this started. My Bipolar1 was diagnosed on 2000, years before. My memory and putting things on paper is hard. I go back and look at it later and see what I forgot. lol

    Like

    Comment by Penny — June 8, 2016 @ 5:07 PM

  12. At least you remember where it is to look at later!!! 🙂

    Like

    Comment by Phylis Feiner Johnson — June 8, 2016 @ 5:31 PM

  13. If you’d like to see a lot of information on the RNS, got to http://www.neuropace.com Then click on How the RNS System Works. there they have videos and a bunch of things to read.

    Like

    Comment by Shawn Wittman — June 8, 2016 @ 8:24 PM

  14. Hey Phylis,

    You are a light in a dark world.

    Cheers,
    Zolt

    Like

    Comment by Zolt — June 9, 2016 @ 7:39 PM

  15. And that coming from you Zolt, means the world to me.

    Like

    Comment by Phylis Feiner Johnson — June 10, 2016 @ 10:36 AM

  16. Thanks for all you do Phylis! Together we can help each other and raise awareness

    Like

    Comment by Freya Symes — July 17, 2016 @ 11:38 PM

  17. Thanks for the compliment Freya. Hopefully, as our own advocates, we can educate and make people aware of just what epilepsy is.

    Like

    Comment by Phylis Feiner Johnson — July 18, 2016 @ 10:01 AM

  18. I wanted to Thank-You for helping me understand more of this.

    Like

    Comment by Gail Paul — August 5, 2016 @ 5:23 PM

  19. Thank YOU, Gail!

    Welcome to the family…

    Like

    Comment by Phylis Feiner Johnson — August 5, 2016 @ 5:35 PM

  20. Im so happy tou do this Phyllus. You have become my “go to” person. I feel like I finally have a hand to hold onto in this journey.

    Like

    Comment by Bonnie Bond — December 20, 2016 @ 12:02 PM

  21. Bonnie, I’m glad I can help. And there are many hands here to hold through this difficult journey.

    Like

    Comment by Phylis Feiner Johnson — December 20, 2016 @ 4:12 PM


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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