Epilepsy Talk

SUDEP — Who’s at Risk?

August 18, 2018
27 Comments

When people with epilepsy are told about Sudden Unexpected Death, they naturally wonder “Will it happen to me?”

But actually, the chances of dying from SUDEP are remote.


Who’s at Fault?

May 29, 2018
21 Comments

Instead of humane and compassionate treatment, doctors, hospitals and the legal system are treating epilepsy patients with little or no regard for their condition.

Here are some chilling examples:


Doctors behaving badly…

May 23, 2018
39 Comments

We all have had at least one experience when a doctor either behaved badly or treated us in a way we didn’t feel we deserved.

“He could have spoken in a nicer tone,” you might mumble to your mother.

But what do you do when the experience with a doctor takes a sharper turn?

What if he doesn’t believe your symptoms or validate your experience?


NEWS: Drug Companies Hire Troubled Doctors As Experts

May 20, 2018
15 Comments

An investigation by ProPublica has uncovered hundreds of doctors receiving company payments who had been accused of professional misconduct, were disciplined by state boards or lacked credentials as researchers or specialists.


Treating Seizures — 7 Amazing New Breakthroughs

April 27, 2018
16 Comments

What if you could predict an oncoming seizure in time for you stop it? Or even prevent it?

That day may be coming sooner than you think, thanks to these seven new technologies.

You’ll learn what they are, how they work and how far along they are.

There’s a lot of new and exciting research going on — all over the world — about predicting and preventing seizures. 

The latest research combines scientists who excel in engineering, math, physics and technology in a dedicated collaborative effort.

And even though most the actual technology isn’t here yet, the future holds promise for us all.


Science Daily: Glucosamine dampens the brain hyperexcitability seen in seizures or epilepsy

March 15, 2018
18 Comments

Researchers have found that inducing a biochemical alteration in brain proteins via the dietary supplement glucosamine was able to rapidly dampen that pathological hyperexcitability in rat and mouse models.

These results represent a potentially novel therapeutic target for the treatment of seizure disorders, and they show the need to better understand the physiology underlying these neural and brain circuit changes.

Seizure disorders — including epilepsy — are associated with pathological hyperexcitability in brain neurons.


The Scandal of Aspartame

March 4, 2018
16 Comments

You probably already know that aspartame is a no-no.  But just in case you weren’t sure why, here are the reasons and the scandal…

For 16 years, the FDA refused to approve aspartame.  In fact, the FDA’s own toxicologist told Congress that: “Without a shadow of a doubt, aspartame can cause brain tumors and brain cancer and violated the Delaney Amendment, which forbids putting anything in food that is known to cause cancer.” — FDA Toxicologist, Dr. Adrian Gross


Where’s The Funding? Epilepsy As An Orphan

February 27, 2018
30 Comments

Here are the facts, unhappy though they may be…

Epilepsy is the 4th most common neurological problem – only migraine, stroke, and Alzheimer’s disease occurs more frequently.

Its prevalence is greater than autism spectrum disorder, cerebral palsy, multiple sclerosis and Parkinson’s disease combined…


SeizAlarm — Apple’s New Seizure Detector — Help is Always Just a Button Press Away

February 10, 2018
13 Comments

Greg Pabst and his neurologist were trying to get a handle on his adult onset epilepsy when the doctor’s mention of the newly announced Apple Watch gave Pabst an “ah-hah” moment.

The doctor was discussing tools for Pabst to chart his seizures and send alerts to emergency contacts.

“Then he said, ‘It’s only a matter of time before somebody does that for the Apple Watch,’ ” Pabst, 38, recalled.

“Then I thought maybe it should be me.”


Move Over VNS…There’s A New Guy in Town!

January 28, 2018
21 Comments

What if I were to say there’s a new nerve stimulation therapy that requires NO SURGERY and reduces seizures among those who are drug resistant by about 40 percent?

SAY HELLO TO TRIGEMINAL NERVE STIMULATION!

The difference between this experimental device and the VNS is that the skin is never penetrated and the TNS is powered by an external device about the size of a large cell phone.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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