Epilepsy Talk

Who’s at Fault?

April 13, 2019
59 Comments

Instead of humane and compassionate treatment, doctors, hospitals and the legal system are treating epilepsy patients with little or no regard for their condition.

Here are some chilling examples:


Why You Should AVOID Going To The Hospital… (If You Can!)

March 8, 2019
25 Comments

Medical mistakes are the third leading cause of death in the United States, after heart disease and cancer.

A recent Johns Hopkins study claims more than 250,000 people in the U.S. die every year from medical errors.

Other reports claim the numbers to be as high as 440,000.


The Embrace2 – Newly Cleared by the FDA – with New Advantages for You

March 5, 2019
10 Comments

The fear, the anxiety, the anticipation of another seizure.

Coupled with the dread that you won’t be able to tell. When it’s coming. IF it’s coming.

The triggers, the reasons, the causes.

Peace of mind is difficult to come by for — you and for your loved ones.

It’s worry all the time. Every day. Does it always have to be this way?


Traumatic Brain Injury and Epilepsy

February 16, 2019
20 Comments

In a fraction of a second, head trauma can dramatically change a person’s life.

Head trauma caused by falls, physical abuse, violence, vehicle crashes and sporting accidents, not to mention modern warfare.

However, it’s important to realize that not all head injuries, even severe ones, result in seizures. And seizures frequently occur in people who haven’t experienced head trauma.

But close associations do exist between head trauma and seizures — as much as twelve times as opposed to someone without a head trauma.


Scientists Find a Possible Link Between Gut Health and Depression

February 8, 2019
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New research has identified a possible link between gut health and brain function.

Building on this work, the study reveals that clinical depression could also be affected by the amounts of certain bacteria in the gut.

For all of us with depression, this could be a real breakthrough.


2019 Top-Ranked Pediatric Hospitals for Neurology & Neurosurgery

January 8, 2019
4 Comments

The U.S. News & World Report’s annual survey of hospitals is considered the pre-eminent source for excellence.

For the 2019 evaluations, fifty pediatric centers were ranked for serious neurological problems. 


2019 Top-Rated Hospitals for Neurology & Neurosurgery

January 5, 2019
4 Comments

Every year, patients and potential patients alike, look forward to the U.S. News & World Report’s list of top-ranking hospitals.

Attached is a link to their most current list for Neurology and Neurosurgery.


2019 Patient Recommendations for TOP Neurologists…Epileptologists…Neurosurgeons…and Pediatric Doctors

January 3, 2019
14 Comments

Below is a compilation by website forum members who have had positive personal experiences with docs over the years.

This list is based on recommendations and, of course, is purely subjective. But it might be helpful for anyone looking for a good Neurologist…Epileptologist…Neurosurgeon…or Pediatric Doctor.


Where’s The Funding? Epilepsy As An Orphan

November 25, 2018
17 Comments

Here are the facts, unhappy though they may be…

Epilepsy is the 4th most common neurological problem – only migraine, stroke, and Alzheimer’s disease occurs more frequently.

Its prevalence is greater than autism spectrum disorder, cerebral palsy, multiple sclerosis and Parkinson’s disease combined.

As many people die from epilepsy as from breast cancer.

There are 200,000 new cases of epilepsy each year, and a total of more than 3 million Americans are affected by it.

Yet, public and private funding for epilepsy research lags far behind other neurological afflictions, at $35 a patient (compared, for instance, with $129 for Alzheimer’s and $280 for multiple sclerosis).


Autoimmune Epilepsy — Cause of Previously Unexplained Seizures?

November 7, 2018
2 Comments

Antiepileptic drugs (AEDs) are the mainstay of treatment for epilepsy, but seizures continue in one-third of patients despite appropriate AED therapeutic trials.

Even in the current era, the etiology of epilepsy often remains unclear.

Some patients with unexplained partial seizures which are medication resistant may have “autoimmune epilepsy” — epilepsy characterized by autoimmune antibodies.

Although autoimmune epilepsy is still rare, it’s become an increasingly recognized cause of epilepsy, which might have been previously thought to be of unknown cause.

What is the immune system and what are the types of immune disorders?


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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