Epilepsy Talk

28 New Epilepsy Medicines In Development

April 17, 2017
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A newly-released report from Pharmaceutical Research and Manufacturers of America (PhRMA) has revealed that 28 new medications are in development to treat epilepsy and seizures.

But that’s just the tip of the iceberg.

These 28 new drugs are among nearly 420 new ground-breaking medicines in progress to treat neurological disorders.


Where’s The Funding? Epilepsy As An Orphan

April 12, 2017
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There are 200,000 new cases of epilepsy each year, and a total of more than 3 million Americans are affected by it.

Yet, public and private funding for epilepsy research lags far behind other neurological afflictions, at $35 a patient (compared, for instance, with $129 for Alzheimer’s and $280 for multiple sclerosis).


Embrace — A Seizure Smartwatch With Style

April 6, 2017
16 Comments

Embrace makes it very easy to monitor physiological stress, sleep and physical activity.

You can check your entire day in a glance in a way that is easy to understand.

If you push yourself too much, the Embrace will gently remind you with a vibration that you need some time to recover. You can customize it to suit your behavior and needs.


I Just Had To Share This…

March 26, 2017
8 Comments

No, this is not an advertisement. Nor is it an endorsement.

But I just read this article about Direct Primary Care by Lydia Ramsey, reporter for the Business Insider’s Science Section and thought you should know about it. Because it’s a real break-through in medical care.

Especially in reference to your choice of a Personal Care Physician.

Perhaps “Direct Primary Care” sounds too general and is not specific enough for those of us who have epilepsy. But for those who have “healthy” family members, it sounds like a real “find”.


Clinical Trials — International Database

January 28, 2017
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There’s a whole treasure trove of clinical trials information now available as a free service of the National Institutes of Health, developed by the National Library of Medicine (NLM).

ClinicalTrials.gov is a web-based resource that provides patients, family members, health care professionals, researchers, and the public with easy access to information on publicly and privately supported clinical studies on a wide range of diseases and conditions.

Presently, there are 131,167 studies with locations in 179 countries, including the U.S. Studies are easy to search for by topic and location.


2017 Top-Ranked Pediatric Hospitals for Neurology & Neurosurgery

January 25, 2017
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The U.S. News & World Report’s annual survey of hospitals is considered the pre-eminent source for excellence.

For the 2017 evaluations, 50 pediatric centers were ranked for serious neurological problems…


2017 Top-Rated Hospitals for Neurology and Neurosurgery

January 22, 2017
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Every year, patients and potential patients alike, look forward to the U.S. News & World Report’s list of top- ranking hospitals.

Attached is a link to their most current list for Neurology and Neurosurgery.

You can find information here about 1,349 hospitals in Neurology and Neurosurgery. All treat significant numbers of difficult patients…


Responsive Neurostimulation (RNS) Shown to Reduce “Untreatable” Seizures

January 12, 2017
14 Comments

The idea that we can implant a Star Trek-type device that will detect seizures and interrupt them without causing injury is entirely new. And exciting. And scary.

Especially for those people with epilepsy that have seizures that begin at one focal point in the brain, but aren’t appropriate for epilepsy surgery.


Who’s at Fault?

December 16, 2016
12 Comments

Instead of humane and compassionate treatment, doctors, hospitals and the legal system are treating epilepsy patients with little or no regard for their condition.

Here are some chilling examples:


Treating Seizures — 7 Amazing New Breakthroughs

December 10, 2016
12 Comments

What if you could predict an oncoming seizure in time for you stop it? Or even prevent it?

That day may be coming sooner than you think, thanks to these seven new technologies.

You’ll learn what they are, how they work and how far along they are.

There’s a lot of new and exciting research going on– all over the world – about predicting and preventing seizures.

The latest research combines scientists who excel in engineering, math, physics and technology in a dedicated collaborative effort.

And even though most the actual technology isn’t here yet, the future holds promise for us all.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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