Epilepsy Talk

Clinical Trials — International Database

January 28, 2017
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There’s a whole treasure trove of clinical trials information now available as a free service of the National Institutes of Health, developed by the National Library of Medicine (NLM).

ClinicalTrials.gov is a web-based resource that provides patients, family members, health care professionals, researchers, and the public with easy access to information on publicly and privately supported clinical studies on a wide range of diseases and conditions.

Presently, there are 131,167 studies with locations in 179 countries, including the U.S. Studies are easy to search for by topic and location.


2017 Top-Ranked Pediatric Hospitals for Neurology & Neurosurgery

January 25, 2017
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The U.S. News & World Report’s annual survey of hospitals is considered the pre-eminent source for excellence.

For the 2017 evaluations, 50 pediatric centers were ranked for serious neurological problems…


2017 Top-Rated Hospitals for Neurology and Neurosurgery

January 22, 2017
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Every year, patients and potential patients alike, look forward to the U.S. News & World Report’s list of top- ranking hospitals.

Attached is a link to their most current list for Neurology and Neurosurgery.

You can find information here about 1,349 hospitals in Neurology and Neurosurgery. All treat significant numbers of difficult patients…


Responsive Neurostimulation (RNS) Shown to Reduce “Untreatable” Seizures

January 12, 2017
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The idea that we can implant a Star Trek-type device that will detect seizures and interrupt them without causing injury is entirely new. And exciting. And scary.

Especially for those people with epilepsy that have seizures that begin at one focal point in the brain, but aren’t appropriate for epilepsy surgery.


Laser Surgery — Breakthrough Epilepsy Treatment!

December 23, 2016
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“Based on our experience, we believe the use of MRI-guided laser surgery will change the face of epilepsy treatment and provide a life-changing option for many epilepsy surgery candidates — both children and adults”…


Who’s at Fault?

December 16, 2016
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Instead of humane and compassionate treatment, doctors, hospitals and the legal system are treating epilepsy patients with little or no regard for their condition.

Here are some chilling examples:


Treating Seizures — 7 Amazing New Breakthroughs

December 10, 2016
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What if you could predict an oncoming seizure in time for you stop it? Or even prevent it?

That day may be coming sooner than you think, thanks to these seven new technologies.

You’ll learn what they are, how they work and how far along they are.

There’s a lot of new and exciting research going on– all over the world – about predicting and preventing seizures.

The latest research combines scientists who excel in engineering, math, physics and technology in a dedicated collaborative effort.

And even though most the actual technology isn’t here yet, the future holds promise for us all.


Move Over VNS…There’s A New Guy in Town!

November 27, 2016
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What if I were to say there’s a new nerve stimulation therapy that requires NO SURGERY and reduces seizures among those who are drug resistant by about 40 percent?

SAY HELLO TO TRIGEMINAL NERVE STIMULATION!


An Earbud to Predict Seizures? The Future is Here!

October 28, 2016
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Imagine a tiny, unobtrusive brain monitor — like an earbud or a hearing aid — that could read brainwaves through the ear.

Amazing as it sounds, this tiny device could help predict seizures and track daily seizures in people with uncontrolled epilepsy, according to a small pilot study.

Engineers at Imperial College in London have developed exactly that. An EEG device that can be worn inside the ear, like a hearing aid.


The Stigma of Epilepsy

October 12, 2016
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The stigma is ancient and it still remains today.

Laws in the United States and Great Britain that prohibited epileptic people to marry were just repealed in the late 1980s and early 1990s.

Until the late 1970s, legislations in the United States also prevented epileptic people from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]

Although these laws are no longer in effect, the underlying social divisions that they have created in the past thirty years are still present today.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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