Epilepsy Talk

Epileptic Synesthesia: What Is It?

September 7, 2019
47 Comments

A friend of mine with TLE, told me he had synesthesia and I didn’t have a clue what he was talking about. And so, I set to find out exactly what this mysterious sounding condition was…

First of all, Epileptic Synesthesia is pretty rare.

It occurs in 4% of temporal lobe seizures and is theoretically caused by the actual electric discharge or abnormal stimulation of the brain in a seizure.

Sight, sound, touch, taste (and, much less often, your sense of smell) sensations can occur simultaneously and also involve involuntary movement.


Epilepsy Studies: True or False?

July 20, 2019
13 Comments

There’s a “Golden Rule” which says: “He who has the most gold makes the rules.”

And who might that be? And what are the methods used?

Some are simply amazing. (Or at least I thought so.)

But they all follow the “Golden Rule.”


Medical Marijuana — It’s Here to Stay…

May 19, 2019
53 Comments

Let’s face it. The time has come.

Even the FDA has opened its eyes with new clinical trials.

Although the AMA chooses to keep their heads in the sand. For now.

It used to be popular to debate the merits and dangers of medical marijuana.

For example, it could lead to addiction. Like cocaine. (Oh please!)

But now, there’s clinically proven scientific proof, with more to come…

“After 4,000 years of humans taking cannabis for epilepsy, we have scientific evidence it works.” — Orrin Devinsky MD, Harvard University, on results from his team’s late-stage clinical trial of cannabidiol to treat Dravet syndrome.

And that’s just the tip of the iceberg…


The Great Debate — Medical Marijuana

May 15, 2019
18 Comments

Even though the cannabis plant has a long history of medicinal use, with evidence dating back to 2,737 BCE, it’s still a subject of hot controversy.

It appears to be a standing battle between politics and science.

The legality requires proof of medical marijuana’s effectiveness.

Reports of success are anecdotal.

Yet there are no funds for clinical trials and it remains on a back burner for further NIH funding and research.

(Wow. What a surprise!)


Who’s at Fault?

April 13, 2019
63 Comments

Instead of humane and compassionate treatment, doctors, hospitals and the legal system are treating epilepsy patients with little or no regard for their condition.

Here are some chilling examples:


Why You Should AVOID Going To The Hospital… (If You Can!)

March 8, 2019
25 Comments

Medical mistakes are the third leading cause of death in the United States, after heart disease and cancer.

A recent Johns Hopkins study claims more than 250,000 people in the U.S. die every year from medical errors.

Other reports claim the numbers to be as high as 440,000.


The Embrace2 – Newly Cleared by the FDA – with New Advantages for You

March 5, 2019
10 Comments

The fear, the anxiety, the anticipation of another seizure.

Coupled with the dread that you won’t be able to tell. When it’s coming. IF it’s coming.

The triggers, the reasons, the causes.

Peace of mind is difficult to come by for — you and for your loved ones.

It’s worry all the time. Every day. Does it always have to be this way?


Traumatic Brain Injury and Epilepsy

February 16, 2019
29 Comments

In a fraction of a second, head trauma can dramatically change a person’s life.

Head trauma caused by falls, physical abuse, violence, vehicle crashes and sporting accidents, not to mention modern warfare.

However, it’s important to realize that not all head injuries, even severe ones, result in seizures. And seizures frequently occur in people who haven’t experienced head trauma.

But close associations do exist between head trauma and seizures — as much as twelve times as opposed to someone without a head trauma.


Scientists Find a Possible Link Between Gut Health and Depression

February 8, 2019
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New research has identified a possible link between gut health and brain function.

Building on this work, the study reveals that clinical depression could also be affected by the amounts of certain bacteria in the gut.

For all of us with depression, this could be a real breakthrough.


2019 Top-Ranked Pediatric Hospitals for Neurology & Neurosurgery

January 8, 2019
4 Comments

The U.S. News & World Report’s annual survey of hospitals is considered the pre-eminent source for excellence.

For the 2019 evaluations, fifty pediatric centers were ranked for serious neurological problems. 


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    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

    View Full Profile →