Epilepsy Talk

Where’s The Funding? Epilepsy As An Orphan

November 25, 2018
17 Comments

Here are the facts, unhappy though they may be…

Epilepsy is the 4th most common neurological problem – only migraine, stroke, and Alzheimer’s disease occurs more frequently.

Its prevalence is greater than autism spectrum disorder, cerebral palsy, multiple sclerosis and Parkinson’s disease combined.

As many people die from epilepsy as from breast cancer.

There are 200,000 new cases of epilepsy each year, and a total of more than 3 million Americans are affected by it.

Yet, public and private funding for epilepsy research lags far behind other neurological afflictions, at $35 a patient (compared, for instance, with $129 for Alzheimer’s and $280 for multiple sclerosis).


Autoimmune Epilepsy — Cause of Previously Unexplained Seizures?

November 7, 2018
2 Comments

Antiepileptic drugs (AEDs) are the mainstay of treatment for epilepsy, but seizures continue in one-third of patients despite appropriate AED therapeutic trials.

Even in the current era, the etiology of epilepsy often remains unclear.

Some patients with unexplained partial seizures which are medication resistant may have “autoimmune epilepsy” — epilepsy characterized by autoimmune antibodies.

Although autoimmune epilepsy is still rare, it’s become an increasingly recognized cause of epilepsy, which might have been previously thought to be of unknown cause.

What is the immune system and what are the types of immune disorders?


Marijuana by the Numbers

October 16, 2018
14 Comments

The world is going cannabis crazy.

Canada is set to legalize recreational use of marijuana on Oct. 17.

And spending on recreational pot will surge to $32 billion globally by 2022 — triple its current size — U.S. Research firms Arcview Market Research and BDS Analytics say.

At least three Canadian pot companies have stock market values of more than $10 billion each.

And new companies are popping up by the day.

Yup. It’s turned into an investor’s market.

Coming soon to a neighborhood near you.


Medical Marijuana — What the Experts are Saying

October 13, 2018
19 Comments

“It doesn’t have a high potential for abuse, and there are very legitimate medical applications. In fact, sometimes Marijuana is the only thing that works… It is irresponsible not to provide the best care we can as a medical community, care that could involve Marijuana. We have been terribly and systematically misled for nearly 70 years in the United States, and I apologize for my own role in that.” — Dr. Sanjay Gupta / Neurosurgeon.


The Great Debate — Medical Marijuana

October 9, 2018
17 Comments

Even though the cannabis plant has a long history of medicinal use, with evidence dating back to 2,737 BCE, it’s still a subject of hot controversy. 

It appears to be a standing battle between politics and science.

The legality requires proof of medical marijuana’s effectiveness.

Reports of success are anecdotal.

Yet there are no funds for clinical trials and it remains on a back burner for further NIH funding and research.

(Wow. What a surprise!)

Dr. Ben Whalley, who is leading the research at the department of pharmacy at the University of Reading, said: “There was a stigma associated with cannabis that came out from the 60’s and 70’s associated with recreational use, so people have tended not to look at it medicinally as a result.”

But now, some experts are calling for fresh research into the potential of cannabis-like compounds to help alleviate seizures.

Because further evidence has emerged that an ingredient of cannabis could help prevent epileptic seizures.


AEDs…Surgery…and Alternative Treatments…

September 18, 2018
14 Comments

The saying “there’s something for everyone” may be true.

But with epilepsy, it’s often a dicey proposition — not to mention frustrating — to determine what that “something” is for you.


Daily, Weekly Seizure Cycles More Common Than Previously Thought

September 14, 2018
20 Comments

Seizures cycles occurred in more than 80% of people with epilepsy, a retrospective analysis found.

These cycles most often were circadian, but also included weekly and longer periods, reported Mark Cook, MD, of the University of Melbourne in Australia, and co-authors in The Lancet Neurology.


3 Revolutionary Epilepsy Watches!

September 13, 2018
7 Comments

They’re, attractive, efficient and a boon to the monitor market.

Meet the Smart Watches…


Autopsies – Where Did They Go?

August 22, 2018
12 Comments

50 years ago, it was pretty easy to find out the cause of a loved one’s death.

Not so anymore.

An investigation published by ProPublica shows that hospital autopsies have become a rarity…


SUDEP — Who’s at Risk?

August 18, 2018
37 Comments

When people with epilepsy are told about Sudden Unexpected Death, they naturally wonder “Will it happen to me?”

But actually, the chances of dying from SUDEP are remote.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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