Epilepsy Talk

Seizures won’t wait — even during COVID-19

November 20, 2020
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COVID-19 seems to be knocking on everybody’s door. Along with the peril and the terror.

And the possibility of seeing your doctor during these dangerous times seems risky, at best.

So, you can’t see the doctor and they can’t see you.

Except in a hospital setting, critical care or a clinic.

That could means more exposure. More jeopardy. Is it really worth the exposure?


Who’s at Fault?

October 26, 2020
18 Comments

Instead of humane and compassionate treatment, doctors, hospitals and the legal system are treating epilepsy patients with little or no regard for their condition.

Here are some chilling examples:


Gaslighting — What to Do When It Happens To You

October 15, 2020
39 Comments

Is your doctor making you feel crazy? Like it’s all in your head? Could you be a hypochondriac?

You must be imagining your symptoms. Of maybe you’re just in a panic.

“Go home and take two Advil. Or maybe two Xanax. You’ll feel fine when this blows over. I assure you.”

Maybe you should have gone to Google first.


Hope for Drug Resistant Epilepsy

October 6, 2020
17 Comments

Drug-resistant epilepsy with uncontrolled severe seizures — despite state-of-the-art medical treatment — continues to be a major problem for up to 30% of patients with epilepsy.

Although drug resistance may fluctuate in the course of treatment, for most patients, drug resistance seems to be continuous.

Unfortunately, traditional antiepileptic drugs (AEDs) don’t seem to prevent or reverse drug resistance in most patients.

However, some new add-on AED therapies have shown as much as 50% in seizure reduction.

This research concerns the structural brain lesions that have been associated with drug resistance in epilepsy.


An Earbud to Predict Seizures?

October 4, 2020
32 Comments

Imagine a tiny, unobtrusive brain monitor — like an earbud or a hearing aid — that could read brainwaves through the ear.

Amazing as it sounds, this tiny device could help predict seizures and track daily seizures in people with uncontrolled epilepsy, according to a small pilot study.

Engineers at Imperial College in London have developed exactly that.

An EEG device that can be worn inside the ear, like a hearing aid.


Violence and Epilepsy

September 10, 2020
32 Comments

No question about it. Epilepsy’s been the victim of bad press since ancient Greece. There, it was sometimes called the “Herculean Disease” because Hercules was thought to have murdered his family in a fit of uncontrollable rage.

Two thousand years later, Michael Crichton wrote in The Terminal Man, “Epileptics are predisposed to violent, aggressive behavior during their attacks.”

Which didn’t exactly help.


Where’s The Funding? Epilepsy As An Orphan

August 19, 2020
23 Comments

Here are the facts, unhappy though they may be…

Epilepsy is the 4th most common neurological problem – only migraine, stroke, and Alzheimer’s disease occurs more frequently.

Its prevalence is greater than autism spectrum disorder, cerebral palsy, multiple sclerosis and Parkinson’s disease combined.

As many people die from epilepsy as from breast cancer.

There are 150,000 new cases of epilepsy diagnosed each year, and a total of more than 2 million Americans are affected by it.

Yet, public and private funding for epilepsy research lags far behind other neurological afflictions, at $35 a patient (compared, for instance, with $129 for Alzheimer’s and $280 for multiple sclerosis).


Will that antidepressant work for you?

July 26, 2020
11 Comments

The answer may be in your brain waves.

“Scientists have taken a small step toward personalizing treatment for depression.


Who’s Profiting From Your Outrageous Medical Bills?

July 19, 2020
20 Comments

This is from the NEW York Times, February 14, 2020.

It speaks of the secret methods of billing. Who pays and who does not. (A precious few.)


Stimulus Cash Payments May Take Up To 20 Weeks To Reach Some Americans

April 3, 2020
8 Comments

People who do not have direct deposit information on file with the Internal Revenue Service may have to wait up to 20 weeks to receive cash payments included in the $2 trillion coronavirus relief legislation, according to a memo drafted by House Democrats.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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