Epilepsy Talk

Yee-Haa! I’m officially an author

January 15, 2020
45 Comments

You probably remember that my introduction to epilepsy wasn’t a rosy one. (Whose is?)

It really wasn’t until once I was older and came out of the closet that I was willing to share my “dirty little secret”.

And now look where I am…


2020 Top-Ranked Pediatric Hospitals for Neurology & Neurosurgery

January 13, 2020
6 Comments

The U.S. News & World Report’s annual survey of hospitals is considered the pre-eminent source for excellence.

For the 2020 evaluations, fifty pediatric centers were ranked for serious neurological problems. 


2020 Top-Rated Hospitals for Neurology & Neurosurgery

January 11, 2020
19 Comments

Every year, patients and potential patients alike, look forward to the U.S. News & World Report’s list of top-ranking hospitals.

Attached is a link to their most current list for Neurology and Neurosurgery.


2020 Patient Recommendations for TOP Neurologists…Epileptologists…Neurosurgeons…and Pediatric Doctors

January 8, 2020
8 Comments

Below is a compilation by website forum members who have had positive personal experiences with docs over the years.

This list is based on recommendations and, of course, is purely subjective. But it might be helpful for anyone looking for a good Neurologist…Epileptologist…Neurosurgeon…or Pediatric Doctor.


Epilepsy in Twitter Times

December 17, 2019
14 Comments

Twitter is not our friend.

And the misconceptions and stigma of epilepsy live on.


Epilepsy Foundation Was Targeted in Mass Strobe Cyberattack

December 17, 2019
25 Comments

Hackers sent images of flashing strobe lights to the foundation’s thousands of Twitter followers in several attacks.


Hospitals Criticized For Keeping Quiet On Charity Care…

December 12, 2019
42 Comments

“Too many nonprofit hospitals fail to adequately publicize their charity-care programs, two advocacy groups say in a survey report…


Good news, there’s a new AED in town!

December 4, 2019
68 Comments

On November 19, 2019, the U.S. Food and Drug Administration approved cenobamate (XCOPRI®) for the treatment of focal epilepsy in adults. This medication will be available in the pharmacy by the spring or summer of 2020.


Blood Tests May Help Diagnose Epilepsy

December 4, 2019
33 Comments

A recent study shows that a simple blood test can determine whether or not someone has had an epileptic seizure.

Doctors at Stanford University, California, reveal that the level of the hormone prolactin may be indicative of the type of seizure and can be measured by this blood test.

The blood test which must be used within 10 to 20 minutes after a seizure, can identify generalized tonic-clonic seizures and complex partial seizures in both adults and older children, because the level of prolactin in the blood goes up.


Epileptic Synesthesia: What Is It?

September 7, 2019
47 Comments

A friend of mine with TLE, told me he had synesthesia and I didn’t have a clue what he was talking about. And so, I set to find out exactly what this mysterious sounding condition was…

First of all, Epileptic Synesthesia is pretty rare.

It occurs in 4% of temporal lobe seizures and is theoretically caused by the actual electric discharge or abnormal stimulation of the brain in a seizure.

Sight, sound, touch, taste (and, much less often, your sense of smell) sensations can occur simultaneously and also involve involuntary movement.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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