Epilepsy Talk

When Your Meds Cost More Than You Can Afford — AED Drug Assistance Programs

April 27, 2021
9 Comments

Today, things are constantly changing.

Especially when it comes to epilepsy medications and resources.

Some companies have expanded their programs or even offer new ones.

Others have cut their funds, and sadly others have ceased to exist.

Here’s a new and comprehensive list…


Combined Meds — What They Are Doing to Your Body

April 9, 2021
24 Comments

For many of us, monotherapy just doesn’t work.

However adjunct therapy has its dangers.

And both treatments carry their own interactive risks – even with things as innocent as aspirin.


Anti-Epilepsy Drugs and Osteoporosis – It’s Not Just a Women’s Disease

February 24, 2021
17 Comments

A research team consisting of epilepsy specialists and epidemiologists (persons who study the causes and control of diseases) reports on a study that answered an important but simple question:

Do anti-seizure drugs cause reductions in bone density?

Why ask this question?


Brave New Cures for the Future — Epilepsy and Neuroengineering

February 8, 2021
5 Comments

It’s only recently that Neuroengineering first appeared.

Neuroengineering is a discipline at the frontier between neuroscience and engineering.

It encompasses experimental, computational, theoretical, clinical and applied aspects of research areas at the molecular, cellular and systems levels.

The emergence of this new field focuses on a multi-science combination of engineers, neuroscientists and clinicians using their combined knowledge and talent, working co-operatively to address the complexity of the brain and nervous system.


The Trouble with AEDs…

February 2, 2021
17 Comments

At the very best, finding the right anti-epilepsy drug is a crap shoot. There’s always the hope that this one will do it.

Or maybe adjunct therapy will work. Or, sigh, the side-effects derail you and you’re on to the next.

Is asking for seizure control too much?


Epilepsy and Memory…

January 30, 2020
25 Comments

To say that lack of memory is a major worry for those of us with epilepsy is hardly a surprise.

In fact, it’s the number one concern.

Simply put, memory is our brain’s ability to store information and find it again later.

Chemical and electrical changes happen in your brain when new memories are made.

It’s a natural brain process that requires continuing attention and recording by parts of your brain.

Seizures interfere with your memory by interfering with attention or input of information.

Confusion often follows a seizure, and during this foggy time, new memory traces aren’t being laid down in the brain.


If You’re Thinking Of Getting Pregnant…

November 3, 2019
3 Comments

Years ago, women who had epilepsy were often discouraged from getting pregnant. Today, that’s no longer the case.

Thanks to early and regular prenatal care, more than 90 percent of pregnant women who have epilepsy deliver healthy babies, according to the Epilepsy Foundation.


Suicide and Epilepsy

August 23, 2019
58 Comments

UPDATE: According to a new peer reviewed Journal, the statistics for epilepsy and suicide are alarmingly high. Depressing, to say the least. Frightening to consider the facts.


Zinc Can Help You Think!

April 4, 2018
19 Comments

Researchers at Duke University Medical Center, published the results of a collaboration with a Massachusetts Institute of Technology research study, which found that zinc plays a key role in signal transmission between neurons in the hippocampus — a zinc enriched region of the brain responsible for learning and memory — and where disrupted communication may contribute to epilepsy.


Sex and Epilepsy — The Ultimate Challenge

May 8, 2017
4 Comments

It’s the $64,000 question.

Can I have sex with epilepsy, all the AEDs, and side-effects?

The answer is yes.

If you’re willing to be flexible.


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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