One thing I’ve discovered is the search for support groups is endless — and seldom successful.
Especially now that charitable contributions are tight and epilepsy centers have had to cut expenses. (Yes, our support is considered an “expense”.)
That’s why I’ve put together this short guide on how to form your own Epilepsy Support Group.
Dear Friend / Neighbor,
This isn’t a note asking for money. (Although feel free to donate if you want to!)
It’s about epilepsy. Because even though over 3 million Americans have it (more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined), no one seems to want to talk about it.
In a special presentation from the Institute of Medicine (IOM), a groundbreaking report was released with 13 recommendations that the IOM designed to help improve care for all people with epilepsy…
There IS Hope!
Here is an encouraging letter I received from the Department of Health & Human Services:
Thank you for your personal message regarding the training of law enforcement officers and other public safety personnel who respond to people experiencing epileptic seizures…