Epilepsy Talk

Epilepsy Stigma and Awareness

June 17, 2017
18 Comments

Until the late 1970s, legislation in the United States prevented people with epilepsy from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]

“Most of my life, I have been scared to talk about my epilepsy. Why? Because I was scared what others would think. Society does isolate, even discriminates against people with epilepsy.” — Louis S.


Epilepsy Advocacy Letter

November 3, 2015
8 Comments

Dear Friend / Neighbor,

This isn’t a note asking for money. (Although feel free to donate if you want to!)

It’s about epilepsy. Because even though over 3 million Americans have it (more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined), no one seems to want to talk about it.


Epilepsy in School

September 2, 2013
12 Comments

The most important word here is education. Not only for your child but for all those around him/her.

Because without education and awareness, the school experience can be a disaster for your child.


Groundbreaking Report: A Giant Step for Epilepsy

May 16, 2012
6 Comments

In a special presentation from the Institute of Medicine (IOM), a groundbreaking report was released with 13 recommendations that the IOM designed to help improve care for all people with epilepsy…


There IS Hope!

November 15, 2010
7 Comments

There IS Hope!

Here is an encouraging letter I received from the Department of Health & Human Services:

Thank you for your personal message regarding the training of law enforcement officers and other public safety personnel who respond to people experiencing epileptic seizures…


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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