Epilepsy Talk

Epilepsy and Exercise

September 7, 2017
18 Comments

Many people with epilepsy, especially those with uncontrolled seizures, live a sedentary life and have low physical fitness.

Because they’ve been told that exercise can trigger seizures. 

Not necessarily so.  At least for a large population of those with epilepsy.

Clinical and experimental studies have analyzed the effect of physical exercise on epilepsy.

The result? Exercise can be beneficial.


The Trouble with AEDs

September 10, 2016
12 Comments

At the very best, finding the right anti-epilepsy drug is a crap shoot. There’s always the hope that this one will do it.

Or maybe adjunct therapy will work. Or, sigh, the side-effects derail you and you’re on to the next.

Is asking for seizure control too much?


Epilepsy — Top Financial and Medical Assistance Programs

May 15, 2016
23 Comments

With so many people at the end of their resources, we could all use a helping hand.

Below is my attempt to research viable resources for financial and medication aid…


Clinical Trials Explained

May 7, 2016
8 Comments

New therapies, including medications, medical devices and surgical procedures, are evaluated in research studies known as clinical trials.

Often these new therapies are investigational, which means they are not yet approved by the U.S. Food and Drug Administration for general use.

Participation in clinical trials offers the potential for new treatment options and allows patients to participate with researchers in driving the discovery of effective therapies for epilepsy…


The Miracle of the Coconut

May 12, 2015
26 Comments

Coconut oil is one of the few foods that can be classified as a “superfood.”

And there are plenty of reasons to love it: Health, healing, immunity. Liver, kidney and bone health. Energy, weight loss, hair and skin care…and that’s just scratching the surface.


Epilepsy: Meditation vs. Medication

December 21, 2013
29 Comments

You can have medication without meditation. Most of us do.

You can do meditation without medication. Most of us wouldn’t and shouldn’t take that risk.

But together, they can enhance one another.


Calcium — Friend or Foe?

June 16, 2013
33 Comments

After talking to a famous epileptologist, I learned that calcium is really a two-edged sword. Which surprised (and scared) me.

I’ve always read that calcium was imperative if you were taking antiepilepsy drugs — especially Dilantin. Even if your doc “forgot” to tell you!

Speaking of which, a survey found that fewer than one-third of neurologists routinely evaluated AED patients for bone disease. And fewer than 10% prescribed Calcium and Vitamin D.


Why Your Pharmacist is Your Best Friend

February 20, 2013
24 Comments

Your pharmacist is the least expensive and most accessible health resource you have. They fill prescriptions and provide expert information about medications — a very important role considering the prominent use of seizure medications to treat epilepsy.

While it might seem easier to forge a personal relationship with one pharmacist at a small mom-and-pop pill dispensary, smart patients can and do establish great relationships with superstore pharmacists, too.

You can see the pharmacist anytime you want, without an appointment, and all consultations are free. In medicine, that’s extraordinary.


Brain Surgery – Questions to Prepare Yourself

April 12, 2012
75 Comments

How many times have you heard: “Well, it isn’t exactly brain surgery.” Well this time it is. And it’s your brain.

It’s a scary trip into the unknown. Thoughts are swirling around in your head: What will happen to me? Is this the right thing to do? Is this really the best surgeon for the job? What if it doesn’t work? Maybe I should put it off…


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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