Epilepsy Talk

Why Won’t You Play With Me?

February 19, 2021
9 Comments

Once upon a time there was this girl named Ellen.

She had epilepsy and she hated the world.

So the world hated her back.

She had no friends and didn’t speak to anybody.

In turn, nobody spoke to her. Except the occasional bully.


The Best of Wishes…

December 27, 2020
4 Comments

“Open the door and come on in,

I’m so glad to see you my friend…”


Explaining Epilepsy to a Friend

May 7, 2020
26 Comments

Explaining epilepsy to a friend is no easy matter. Sometimes they may be scared. Some may be curious. Some may want to help. Some may want to flee.

But, obviously, those who care will want to understand you. For those friends, here are some brief epilepsy facts:


Epilepsy Advocacy Letter

November 3, 2015
8 Comments

Dear Friend / Neighbor,

This isn’t a note asking for money. (Although feel free to donate if you want to!)

It’s about epilepsy. Because even though over 3 million Americans have it (more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined), no one seems to want to talk about it.


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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