Epilepsy Talk

What most offends YOU about how people treat epilepsy?

April 14, 2023
19 Comments

I call epilepsy the “stealth condition,” because most people don’t actually witness a seizure.

Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


Brain Surgery — Questions to Prepare Yourself

April 11, 2023
6 Comments

How many times have you heard: “Well, it isn’t exactly brain surgery.” Well this time it is.

And it’s your brain.

It’s a scary trip into the unknown. Thoughts are swirling around in your head: What will happen to me? Is this the right thing to do? Is this really the best surgeon for the job? What if it doesn’t work? Maybe I should put it off…

It’s really hard to be prepared for something as radical as brain surgery – either physically or emotionally. That’s why it’s important to gather all the information you can, before hand.

Remember: Knowledge is power.

Here some things to consider and ask your neurologist/neurosurgeon team before surgery.


More people are smoking marijuana than cigarettes!

April 8, 2023
5 Comments

Surprised?

With the legalization of smoking cannabis both for medical and recreational use, it’s clear marijuana’s time has come.

The jury is no longer out. States have been weighing in. And the answer has been a resounding : “Yes”.

Nearly half of U.S. adults have tried marijuana. A massive shift that took place over just a few years.


Did you know Snow White’s “Dopey” had epilepsy?

March 31, 2023
3 Comments

No he wasn’t dumb…slow…or retarded. “Dopey” had a condition known as Angelman syndrome (AS).


Weird epilepsy triggers…

March 28, 2023
13 Comments

Here’s a list of uncommon epilepsy triggers you may have experienced or know about.

Feel free to add to this list of the weird and the unknown…


Common epilepsy triggers…

March 27, 2023
7 Comments

Epilepsy affects each person differently. Below is a guide to some common seizure triggers. You may not feel or notice anything in particular. Or you may have triggers which are not mentioned here. Keeping a seizure diary is the most effective way of keeping track of what triggers your seizures.


A menu of epilepsy auras… 

March 23, 2023
10 Comments

One of the good thing about auras, is that if you’re aware of them, they’re effective (if unpleasant) warning signals of an oncoming seizure.

I didn’t learn to identify mine (mouth filling up with saliva and disgusting metallic taste) until I was well into my 20’s.


Seniors — Alzheimer’s, Epilepsy or Seizures?

March 13, 2023
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The question of whether a person has epilepsy or Alzheimer’s can be a tough one.

Take those “senior moments” — memory lapses, zoning out and other temporary confusion. These seemingly harmless incidents may actually be a sign of epilepsy. Roughly 1-2 percent of seniors develop epilepsy — and that rate is rising.

But experts at the U.S. National Council on Aging warn that often epilepsy goes undetected in seniors.


How are your meds affecting you? 

March 10, 2023
4 Comments

They’re necessary, but not necessarily nice. And every med has its own side-effects. Just as different people experience different difficulties.

Here‘s the low-down on the possible side-effects of your drugs and the secrets they may hold.

Some might sound painfully familiar…


The Stigma of Epilepsy…

March 5, 2023
10 Comments

The stigma is ancient and it still remains today.

Laws in the United States and Great Britain that prohibited epileptic people to marry were just repealed in the late 1980s and early 1990s.

Until the late 1970s, legislations in the United States also prevented epileptic people from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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