Epilepsy Talk

Who is Your Personal Hero?

September 15, 2020
6 Comments

For me, it was my Grandfather, who believed in me completely and thought that I could accomplish anything I set out to do.

At the age of 14, I said I wanted to be a writer.

“Fine,” he said. “You’ll go to the Columbia School of Journalism.”


Exciting Stuff!

September 12, 2020
34 Comments

A Facebook follower suggested today that I apply to the International Bureau for Epilepsy for one of their Global Teams.


Yee-Haa! I’m officially an author

January 15, 2020
47 Comments

You probably remember that my introduction to epilepsy wasn’t a rosy one. (Whose is?)

It really wasn’t until once I was older and came out of the closet that I was willing to share my “dirty little secret”.

And now look where I am…


What Most Offends YOU About How People Treat Epilepsy?

August 29, 2019
48 Comments

I call epilepsy the “stealth condition,” because most people don’t actually witness a seizure.

Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


Special Education — Expectations and the Law

September 8, 2013
16 Comments

Special educational ensures that your child needs are met (legally) if they have learning difficulties that need special help at school.

Technically, it’s called a special education provision.

And there may be a special educational needs coordinator (SENCO) at the school who can look at your child’s needs, alongside the school’s governing body (often the local authority’s education department).


“Epilepsy Smart” Schools

September 2, 2013
23 Comments

The most important word here is education. Not only for your child but for all those around him/her.

Because without education and awareness, the school experience can be a disaster for your child.


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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