Epilepsy Talk

What Most Offends YOU About How People Treat Epilepsy?

August 28, 2017
93 Comments

I call epilepsy the “stealth disease,” because most people don’t actually witness a seizure. Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


FREE Prescription Drugs

March 17, 2017
26 Comments

With drugs costs and insurance costs rising every day, it’s often difficult to get the meds you need. Below is a guide to no-cost or low-cost prescription programs. Pass the word along…


In Tribute to Charlie Petersen

August 9, 2015
15 Comments

Charlie Peterson was a man who suffered from epilepsy for decades. He had one unsuccessful brain surgery, then another, which was successful, ten years later.

Since that time, he had risen to be an active advocate and to give back by helping all those in need.

He was my friend and a friend to the world. Starting a support group where there was none. Counseling others with epilepsy and those who had a loved one with epilepsy.

He was generous to a fault, giving back in turn for the “miracle” that had saved his life.

He was patient, kind, generous and giving. He was my #1 hero.


Special Education — Expectations and the Law

September 8, 2013
16 Comments

Special educational ensures that your child needs are met (legally) if they have learning difficulties that need special help at school.

Technically, it’s called a special education provision.

And there may be a special educational needs coordinator (SENCO) at the school who can look at your child’s needs, alongside the school’s governing body (often the local authority’s education department).


Epilepsy in School

September 2, 2013
12 Comments

The most important word here is education. Not only for your child but for all those around him/her.

Because without education and awareness, the school experience can be a disaster for your child.


Cheers for Charlie!

March 5, 2011
12 Comments

A Story of Hope

“If this letter helps just one person, it will be worth the months of indecision and silence of our media.”

Charles Peterson, East Quogue


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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