Epilepsy Talk
If you knew someone who had just been diagnosed with epilepsy, what would you advise?
15 Comments
I’d advise them to advocate for themselves.
What Most Offends YOU About How People Treat Epilepsy?
33 Comments
I call epilepsy the “stealth condition,” because most people don’t actually witness a seizure.
Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.
Tags: achievement, advocate, behavior, discrimination, Epilepsy, ignorance, misinformation, oblivious, pariah, seizures, slurs, stigma
Who is Your Personal Hero?
6 Comments
For me, it was my Grandfather, who believed in me completely and thought that I could accomplish anything I set out to do.
At the age of 14, I said I wanted to be a writer.
“Fine,” he said. “You’ll go to the Columbia School of Journalism.”
Exciting Stuff!
34 Comments
A Facebook follower suggested today that I apply to the International Bureau for Epilepsy for one of their Global Teams.
Yee-Haa! I’m officially an author
47 Comments
You probably remember that my introduction to epilepsy wasn’t a rosy one. (Whose is?)
It really wasn’t until once I was older and came out of the closet that I was willing to share my “dirty little secret”.
And now look where I am…
Special Education — Expectations and the Law
16 Comments
Special educational ensures that your child needs are met (legally) if they have learning difficulties that need special help at school.
Technically, it’s called a special education provision.
And there may be a special educational needs coordinator (SENCO) at the school who can look at your child’s needs, alongside the school’s governing body (often the local authority’s education department).
Tags: additional provisions, advocate, Americans with Disabilities Act, anti-discrimination laws, consistency, educational needs statement, Epilepsy Foundation, Epilepsy Foundation's "Legal Rights of Children with Epilepsy in School & Child Care: An Advocate's Manual", expected goals, federal funds, federal law, Individuals with Disabilities Education Act, Parent Partnership Services, reasonable accommodations, resources, services, special education provision, standards, structured environment, The Individualized Education Program, The Rehabilitation Act
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Epilepsy Talk 