Epilepsy Talk

Bullied because of epilepsy…  | February 2, 2026

Like lions, they smell the difference…

Like hawks, they sweep down on you…

And like hyenas, they laugh and eat your heart out.

I guess Robert Drucker never heard the saying “don’t hit a man when he’s down.”

Because even though I wasn’t a man, I was surely down on the ground with a seizure. Lend me a hand to get up?

Hell no.

He kicked me in the face and broke my nose.

But no pity parties here.

I’m sure you’re not new to the bullying game.

Where ignorance rules and mean is cool.  Just ask:

Paul, taunted as the “seizure boy” throughout school…

Gemma, gang raped by three boys as a teen…

Troy, whose (former) best friend beat him up…

Sarah, mugged by a man pretending to be her date while she was seizing…

Olivia, whose classmates called her “retard” and dragged her backpack through mud…

Jonathan’s teacher didn’t believe he was having a seizure and pulled the chair from under him, just to see if it was “real”…

Chris’ parents threatened him with a vasectomy, if he dared to have another child…

Tim was repeatedly beat by the police, who accused him of being high on cocaine…

Corinne committed suicide at 13, after her (former) best friends taunted her for two years and finally told her “You should just die”…

And at a State Hospital in Michigan, when Mike had a seizure, they would lock him in the seclusion room.

If he had another seizure there, a nurse or attendant would come in and slap him or literally “belt him”, where nobody could see…

I’m sure you have your own story too.

Will you tell it or stay silent, as so many victims do?

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7 Comments »

  1. Zolt's avatar

    These types of people are SADIST !!!

    Liked by 1 person

    Comment by Zolt — February 2, 2026 @ 12:30 PM

  2. Phillip Sanders's avatar

    I had an unaware focal seizure when I was coaching and teaching last year. The seizure was during athletics when I was coa

    Liked by 1 person

    Comment by Phillip Sanders — February 2, 2026 @ 1:59 PM

  3. PhillipSanders's avatar

    I am a teacher/ athletic coach at a high school. I had an unaware focal seizure during an athletic workout I was supervising. The athletic trainer restrained me, grabbing me and moving me to another area. I was unaware that I had hit him. The school would not allow me to coach after this incident. I had no choice but to retire.

    Liked by 1 person

    Comment by PhillipSanders — February 2, 2026 @ 2:03 PM

    • Phylis Feiner Johnson's avatar

      When people get violent during or after a seizure, it’s named all kinds of derogatory things.

      Psychotic, violent, uncontrollable, to name just a few.

      And they’re often ridiculed – the subject of smears or just unceremoniously dragged away.

      Very “educational”.

      I had a friend who WAS a minister and had a seizure delivering a sermon.

      He was quickly removed and fired.

      Because the powers that be didn’t want the congregation “upset” by such behavior.

      Very Christian. Just like your removal was such an educational exercise.

      Like

      Comment by Phylis Feiner Johnson — February 2, 2026 @ 4:00 PM

  4. Ed Lugge's avatar

    I grew up in grade school with two things: epilepsy and strength. I received a lot of insults and threats because of my epilepsy but I was strong enough to convince other people if they go any further, they’ll regret it.

    Liked by 1 person

    Comment by Ed Lugge — February 3, 2026 @ 3:17 PM

    • Phylis Feiner Johnson's avatar

      Sadly, I did not have your resolve and took every jab as a personal insult.

      Well, they were personal, weren’t they?

      Like

      Comment by Phylis Feiner Johnson — February 3, 2026 @ 3:25 PM


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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