Epilepsy Talk

Dating Disasters and Epilepsy

May 7, 2019
14 Comments

When I was a teen I fell down, walked into walls, bumped into virtually everything in my path, and almost drowned in the shower.

So, you can imagine what a disaster dating was.

Of course, in my infinite wisdom, I would never tell my dates that I had epilepsy. 

My parents wouldn’t even utter the word, so rather than become a pariah, I kept my mouth shut.

Bad idea…


Anger and Epilepsy: WHY ME?

April 8, 2019
30 Comments

Suddenly, you’re feeling edgy.

Lashing out at loved ones for no reason at all.

It’s not anybody’s fault. It’s that old familiar enemy.

Epilepsy. Again.

Why me? Why now?

It’s not fair.


What Most Offends YOU About How People Treat Epilepsy?

September 1, 2018
66 Comments

I call epilepsy the “stealth disease,” because most people don’t actually witness a seizure. Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


Confessions of 30 years with epilepsy…

October 27, 2017
37 Comments

When I was first diagnosed as a teen, no one knew what to do with me.

My parents refused to use the “E” word. People treated me like I was some kind of pariah (which didn’t make me feel warm and fuzzy either).


What’s YOUR Story?

January 15, 2013
41 Comments

When did you find out that you had epilepsy?

How?

What did you do after being diagnosed? 

How do you cope with it now?


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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