Epilepsy Talk

In Tribute to Charlie Petersen

August 9, 2015
15 Comments

Charlie Peterson was a man who suffered from epilepsy for decades. He had one unsuccessful brain surgery, then another, which was successful, ten years later.

Since that time, he had risen to be an active advocate and to give back by helping all those in need.

He was my friend and a friend to the world. Starting a support group where there was none. Counseling others with epilepsy and those who had a loved one with epilepsy.

He was generous to a fault, giving back in turn for the “miracle” that had saved his life.

He was patient, kind, generous and giving. He was my #1 hero.


Relax!

July 5, 2014
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Many studies have found that greater than 50% of people experienced declines in seizure frequency just by using relaxation techniques!

Here are a few suggestions…


A Caregiver’s Guide to Survival…

May 29, 2012
18 Comments

It’s called “burn out.” Because, let’s face it, being a caregiver is exhausting. You may feel guilt, resentment, anger, anxiety or helplessness. You may have to give up your income and career prospects to care for someone. Even if you love the person very deeply, it can feel as though the focus is always on them and your needs and wishes go unnoticed. Often you deal with the situation alone and feel very isolated. (My mother-in-law didn’t leave the house for two years when my father-in-law was dying.)

But you can’t do anything to help another person if you’re a basket case yourself. To be the best caregiver possible, you need to be physically and emotionally well, yourself…


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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