Epilepsy Talk

When Your Meds Cost More Than You Can Afford — AED Drug Assistance Programs | April 27, 2021

Today, things are constantly changing. Especially when it comes to epilepsy medications and resources.

Some companies have expanded their programs or even offer new ones.

Others have cut their funds, and sadly others have ceased to exist.

Here’s a new and comprehensive list…

Patient Drug Assistance Programs

www.DepakoteER.com or
(800) 222-6885
Medications covered: Depakote and
Depakote ER

Teva Cares Foundation Patient
Assistance Program
www.tevacares.org or www.rxassist.org
(877) 237-4881
Medication covered: Gabitril
Eisai Banzel & Fycompa

Patient Assistance Program
www.rxassist.org or
(855) 347-2448
Medication covered: Banzel and

GlaxoSmithKline Bridges to Access
(866) 728-4368
Medications covered: Lamictal,
Lamictal XR and Potiga

Johnson & Johnson Patient
Assistance Foundation
(800) 652-6227
Medication covered: Topamax

Onfi Patient Assistance Program
(855) 345-6634
Medication covered: Onfi

Lundbeck’s SHARE Call Center
(888) 457- 4273
Medication covered: Sabril

Meda Patient Assistance Program
(800) 593-7923
Medication covered: Felbatol

Novartis Patient Assistance
(800) 277-2254
Medications covered: Tegretol, Tegretol
XR and Trileptal

Superus Pharmaceuticals Patient Assistance Program
www.oxtellarxr.com and www.trokendixr.com
(866) 398-0833
Medication covered: Oxtellar XR and Trokendi XR

Pfizer, Inc.
www.dilantin.com or www.pfizer.com
(800) 972-9226 or (866) 590-9400
Dilantin (extended phenytoin sodium Capsules)
$4 co-pay Card

Pfizer RxPathways
(866) 706-2400
Medications covered:
Celontin, Dilantin, Lyrica,
Neurontin and Zarontin

Questcor Pharmaceuticals
Acthar Support & Access
Program (A.S.A.P.)
(888) 435-2284
Medication covered: Acthar Gel (ACTH)

Recordati Rare Diseases
Reimbursement Hotline
(866) 209-7604
Medications covered: Peganone

Shire Cares Patient Assistance & Support
(888) 227-3755
Medication covered: Carbatrol

UCB Patient Assistance Program
(866) 395-8366
Medications covered: Keppra, Keppra XR, Vimpat

Valeant Patient Assistance Program
(800) 511-2120 or (866) 268-7325
Medications covered: Diastat AcuDial
and Mysoline

VNS Therapy Access Program
(877) 610-1180


Access 2 Wellness — designed to assist people with limited or no health insurance get the help they need to lead healthier lives.  People can learn about a variety of assistance programs that, combined, offer more than 1,000 prescription medicines and medical products for free or at a discount to qualified individuals. http://www.access2wellness.com/a2w/index.html

BlinkHealth — can save you up to 95% on your prescriptions at your local pharmacy, with no membership fees. Pay online and pick up at over 40,000 pharmacies, nationwide. If you have a high deductible plan, expensive co-pay or are currently uninsured, this is a great solution. https://www.blinkhealth.com/

Epilepsy Foundation Medication Coverage — 25 prescription med links, plus links for generics and Veteran’s benefitshttp://www.efwp.org/programs/pap_list.shtml

The HealthWell Foundation — committed to addressing the needs of individuals with insurance who cannot afford their co-payments, co-insurance, and premiums for important medical treatments. http://healthwellfoundation.org/

Free Medicine Program — established by volunteers, the Free Medicine Program helps patients substantially reduce or completely eliminate their prescription drug costs. http://www.freemedicineprogram.org/

Needymeds — a list of programs that assists people who cannot afford medicine or healthcare costs. This information is available anonymously and free of charge. http://www.needymeds.org/

Partnership for Prescription Assistance — helps qualifying patients without prescription drug coverage get the medicines they need through the program that is right for them. Many will get their medications free or nearly free. http://www.pparx.org/

Patient Assistance Program — a free resource created by Volunteers in Health Care, is a national, nonprofit resource center designed to help connect patients who cannot afford their prescription medications with patient assistance programs.    www.rxassist.org

Prescription Assistance U.S. — a free online resource for anyone looking for free prescription and RX programs. This is not a discount card program or a paid service. It is a user-contributed database of local government or non-profit agencies that provide people with medical needs drug assistance of different types. http://www.prescriptionassistance.us/ar/about

Pharmaceutical Company Patient Assistance Programs — many pharmaceutical companies offer Patient Assistance Programs to those who cannot afford the cost of their medications but are ineligible for Medicaid due to their income. Click here for a list of each company’s contact information:   http://www.efwp.org/programs/pap_list.shtml

RxSavingsPlus — a free drug/prescription discount card, to help lower the price for medication. It can be used at CVS Pharmacy, Target, Rite Aid and 60,000 participating pharmacies nationwide. And offers an average of 20% off the retail price of drugs.  (Kind of skimpy, but one-stop shopping.) http://www.rxsavingsplus.com/

SelectCare Benefits Network — over 1400 brand name and many generic medicines for a net cost of only $20 per month. By becoming a member of SelectCare Benefits Network you will be assigned a Personal Care Advocate who will simplify the process of applying for Patient Assistance Programs and make it easy for you to get your medications for very little out-of-pocket cost.  http://www.myrxadvocate.com/

Together Rx Access — individuals and families without prescription drug coverage can gain access to immediate savings on hundreds of brand-name and generic prescription products right at their neighborhood pharmacies. Also connects you with resources about access to coverage options and more. http://www.togetherrxaccess.com/

Epilepsy Foundation’s Veterans Outreach Program — social and supportive services resources as well as information and assistance with the VA Health Services Registration process. (Bottom half of page.) http://www.epilepsy.va.gov/index.asp 

VA Epilepsy Centers of Excellence  –16 sites that are linked to form 4 regional centers for diagnosis, clinicalcare, information and research. http://www.epilepsy.va.gov/

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Epilepsy Education and Support


  1. Thank you. I shared this on our blog, facebook and my twitter. We have had great insurance all these years, but when my husband retires and Rose gets a job, this will be her concern.

    Liked by 1 person

    Comment by Flower Roberts — April 27, 2021 @ 9:05 AM

  2. …and I printed it for Rose.

    Liked by 1 person

    Comment by Flower Roberts — April 27, 2021 @ 9:13 AM

  3. Great! I’m glad it was of use, Flower.


    Comment by Phylis Feiner Johnson — April 27, 2021 @ 9:14 AM

  4. I was on 3 meds at the beginning of the year and because I had not had a seizure for over a year, my neurologist reluctantly agreed to let me try CBD. She wrote a Rx for my State’s Dispensary for a CBD:THC 20:1 ratio. I tried it for 3 months as I was reducing my Keppra until my doctor said I could always try getting it from another source without a Rx. So I ordered from a company in Colorado that a friend recommended. They use an entirely different extraction process which doesn’t destroy any of the cannabinoids. My regular D.O. called them and was so impressed with them that he is referring his other CBD patients to them. And it is working for me! I’m down to 1000 mg of Keppra and will reduce further next week. I feel like my old self again, I didn’t remember what that felt like. My point is this…. what a pity that insurance will not cover CBD that has no detrimental side effects yet I pay $5 a month for Keppra that who knows what it does long term to my brain. People who have been on Keppra know the short term side effects. What an upside down system we have. Hmmmm, could it have anything to do with the pharmaceutical industry?!!

    Liked by 2 people

    Comment by Betsy West — April 27, 2021 @ 9:40 AM

  5. Right Betsy. Follow the money. It leads to BIG Pharma.

    They’re even trying to develop their own formularies to patent. (And prosper.)

    What they don’t realize is that one size does not fit all. Even with CBD and/or THC.

    There is no magic bullet.

    Liked by 1 person

    Comment by Phylis Feiner Johnson — April 27, 2021 @ 9:55 AM

  6. Reblogged this on Disablities & Mental Health Issues.

    Liked by 1 person

    Comment by Kenneth — April 27, 2021 @ 11:34 AM

  7. Aptiom not mentioned. Not going generic until 2026. Sunovion will help you but has limitations. Caremark also will only fill 30 days at a time with extra authorization from MD. Caremark (CVS) does not recognize Sunovion discount.

    Liked by 2 people

    Comment by Kerri Keating — May 3, 2021 @ 5:30 PM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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