Epilepsy Talk

“Epilepsy Smart” Schools

September 2, 2013
27 Comments

The most important word here is education. Not only for your child but for all those around him/her.

Because without education and awareness, the school experience can be a disaster for your child.


Dravet Syndrome — New Hope Through Research

August 25, 2013
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Severe Myoclonic Epilepsy of Infancy was first described by Dravet in 1978.

In 1992, Dravet and colleagues found at least 172 published cases. Since then there have been numerous new cases.

Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable epilepsy that begins in infancy.


A Little-Known Benefit for Aging Veterans

May 21, 2013
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Here’s a riddle: When is a government benefit that pays for caregivers, assisted living and a nursing home not a benefit? When hardly any people know they’re entitled to it.

That seems to be the story with a Department of Veterans Affairs benefit called the http://newoldage.blogs.nytimes.com/2012/09/19/few-know-of-benefit-to-help-aging-veterans/ known as A&A, which can cover the costs of caregivers in the home (including sons and daughters who are paid to be caregivers, though not spouses) or be used for assisted living or a nursing home.

The benefit is not insignificant: up to $2,019 monthly for a veteran and spouse, and up to $1,094 for the widow of a veteran.

Surprised that you’ve never heard of it? You’re not alone.


I Am Not a Camel … but I Do Have Epilepsy

February 14, 2013
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Here’s an excerpt of a successful woman’s odyssey through the world of epilepsy… It’s riveting.


Top Psychiatric Hospitals in the U.S.

January 10, 2013
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The U.S. News & World Report’s annual psychiatric hospital survey is valued for its integrity, its impartiality and the method by which each hospital is rated.

Criteria for the survey is: hospital reputation and satisfaction…details of the services provided…plus patients’ feedback about their experiences.

The 15 hospitals ranked in Psychiatry were named as among the best for challenging cases and procedures by at least 5 percent of the psychiatric specialists who responded to U.S. News surveys in 2010, 2011, and 2012. Another 167 hospitals received nominations from one or more physicians. They are listed alphabetically below the ranked hospitals.


Epilepsy — Preventing Depression — Project UPLIFT

December 18, 2012
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It’s called Project UPLIFT (Using Practice and Learning to Increase Favorable Thoughts). And eureka! It doesn’t include meds…

What’s more, this new study has proven successful in the prevention of depression in people diagnosed with epilepsy…


Only Days Left to Make Epilepsy Awareness a Reality — Take Action!

December 12, 2012
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Only Days Left to Make Epilepsy Awareness a Reality — Take Action!

Please call, email, Facebook, tweet and/or visit Speaker Boehner and Representative Upton. We need to ensure that RAISE is passed by the end of the year.

With 107 cosponsors, House Resolution 298 (the RAISE Resolution) has come a long way, but this important legislation is only a few days away from “dying in committee”. The bill needs to be released from committee before it can be voted on and passed…


When Will YOU Be Eligible For Medicare?

November 29, 2012
6 Comments

Whenever the discussion turns to saving money in Medicare, the idea of raising the eligibility age often comes up…


Three Things You Need To Know About The New Obamacare Rules

November 26, 2012
13 Comments

The Centers for Medicare and Medicaid Services (CMS) and the Department of Health and
Human Services (HHS) have outlined the new proposed rules, which instruct insurers, providers, and governmental institutions on how they must proceed in implementing Obamacare measures — ranging from a ban on discriminating against Americans with pre-existing medical conditions to public wellness initiatives such as coverage for employees’ gym use. Here are the three most important things you need to know about the new rules…


Perampanel — New Hope For Those With Uncontrollable Seizures

November 6, 2012
19 Comments

On October 24, 2012 the FDA approved Perampanel as an adjunct treatment for refractory partial-onset seizures in patients with epilepsy aged 12 years and older. A step forward for us all. Here’s why…


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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