Epilepsy Talk

How were YOU first diagnosed with epilepsy?

February 10, 2019
53 Comments

I almost drowned in the shower.

It had three round shower heads on the wall with one more huge one overhead. And a heavy plate-glass door that was like trying to get out of a vault!

All of a sudden, I felt the blood rush through my toes (that’s what it felt like) and I knew I had to get out. Or drown.

Posted in Epilepsy
Tags: "crooked brain waves", clumsy, denial, diagnosed, died, get up, go down, stupid

I Am Not a Camel … but I Do Have Epilepsy

February 14, 2013
5 Comments

Here’s an excerpt of a successful woman’s odyssey through the world of epilepsy… It’s riveting.

Posted in Epilepsy
Tags: afraid, Epilepsy, invalid, professional world, stupid, weirdo, workplace hazard

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Phylis Feiner Johnson

I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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