Epilepsy Talk

Dravet Syndrome — New Hope Through Research

August 25, 2013
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Severe Myoclonic Epilepsy of Infancy was first described by Dravet in 1978.

In 1992, Dravet and colleagues found at least 172 published cases. Since then there have been numerous new cases.

Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable epilepsy that begins in infancy.

Posted in Epilepsy, Medication Issues, Research
Tags: anticonvulsant drugs, clinical trials, Dravet Syndrome, gene mutation, intractable seizures, Ketogenic Diet, no brain biopsy needed, Severe Myoclonic Epilepsy of Infancy (SMEI), stem cell based

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Phylis Feiner Johnson

I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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