Epilepsy Talk

I Am Not a Camel … but I Do Have Epilepsy | February 14, 2013

Here’s an excerpt of a successful woman’s odyssey through the world of epilepsy… It’s riveting.

By Maya Schenwar, Truthout | Op-Ed

“Why am I telling you all this?

First of all, I really wanted to share this glamour shot I took of myself in the hospital with my head tangled in wires (see above). I think the cyborg-Medusa look could be the next runway hit.

More importantly, though: For a long time, I didn’t want to tell anyone in my professional world about this unique feature of my brain. On the topics-that-are-fun-to-disclose-in-the-workplace-o-meter, epilepsy ranks somewhere between ‘I’ve been embezzling candy from the vending machine for the past 15 years’ and ‘I am actually a camel.’ I was worried about being viewed as an invalid, a workplace hazard, a weirdo. But above all, I was afraid that people would see me as stupid.”

To continue, go to:



  1. Hay hay plz dont call urself that just because u have eperlescy i have it to so does that mean that i am as well as many others of us out there , of course not. Who has come up with this name ive never hever herd of this bfore in england whats going on just becouse we have to have test done have have this label so wrong ,.


    Comment by Wendy Mcnaughton — February 15, 2013 @ 8:57 AM

    • Read the whole article Wendy. It’s tongue-in-cheek, also written with a lot of knowledge.

      The lady is an editor-in-chief of an e-zine who also happens to have epilepsy. And she’s writing about HER experiences.


      Comment by Phylis Feiner Johnson — February 15, 2013 @ 10:51 AM

  2. Neat article and well written. She is right on the money about epilepsy and the workplace.


    Comment by Michelle Watts — February 17, 2013 @ 2:22 AM

  3. Eye opening article, I still fear some of the backward attitudes toward Epilepsy but I talk about it anyway. 🙂


    Comment by mickcgorman — February 17, 2013 @ 2:40 PM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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