Epilepsy Talk

What’s one of the most wonderful things your mother did for you? 

March 24, 2022
6 Comments

When I was in fifth grade, I got sent home with a note to my parents, accusing me of plagiarism.

My parents called me into their room that evening (which was always a bad sign when you were signaled out from your sibs), and they asked me about the poem and where I found it.

I told them I found it in my heart and recited it.


Epilepsy, Anxiety and Depression 

March 21, 2022
18 Comments

One study stated that 80% of the patients with epilepsy were also diagnosed as having a depressive disorder.

Upwards of 60% of these individuals had a history of significant episodes of depression.

And 10-32% experience symptoms of anxiety.


Exercise for your mind and body

March 14, 2022
10 Comments

Many people with epilepsy, especially those with uncontrolled seizures, live a sedentary life and have low physical fitness.

Because they’ve been told that exercise can trigger seizures.

Not necessarily so. At least for a large population of those with epilepsy.


How were YOU first diagnosed with epilepsy?

March 7, 2022
16 Comments

I almost drowned in the shower.

It had three round shower heads on the wall with one more huge one overhead. And a heavy plate-glass door that was like trying to get out of a vault!

All of a sudden, I felt the blood rush through my toes (that’s what it felt like) and I knew I had to get out. Or drown.


Shit happens…

March 4, 2022
3 Comments

It was a normal day at the ice rink.

My friend and I were speed skating.

Then we started to tease her younger brother.

He simply retaliated by sticking out his foot and tripping us.

Into the boards I went. Head first.


Confessions of 30 Years with Epilepsy… 

March 2, 2022
28 Comments

When I was first diagnosed as a teen, no one knew what to do with me.

My parents refused to use the “E” word. People treated me like I was some kind of pariah. (Which didn’t make me feel warm and fuzzy either).


Can You Believe It? 

February 28, 2022
7 Comments

Just when you thought the modern world was becoming enlightened, there are still a whole lot of myths and fears about epilepsy — fueled by ignorance and misinformation.

These fears might sound ridiculous to you…but they’re real for those who don’t know better.


Super Seizure De-Stressor  

February 16, 2022
13 Comments

We all know that stress is a super trigger for seizures. Whether it’s family, friends, frustrations, conflict, work, school, fear, anger, anxiety, depression. The list is almost endless.

While nobody can say there’s a magic formula for de-stressing, you might give Progressive Muscle Relaxation a try. It’s a pretty powerful tool.


Medication Reminders You Won’t Forget… 

February 3, 2022
4 Comments

When I was on vacation, I was so relaxed that I kept on forgetting to take my meds. More than once. So when I got home (when I was less relaxed), I looked into some things that might help.

Because, let’s face it. We all forget to take our meds. One time or another. No matter what we have to take or when we have to take them. No matter how hard we try.


Hidden hospital bill gouging…gone!

January 30, 2022
5 Comments

In April 2017, a man named Drew Calver thought he was dying. A heart attack had pinned him to the floor of his bedroom. His neighbor took him to St. David’s Medical Center in Austin, where he was successfully treated.

Weeks later, he received a bill from the hospital: That’ll be $108,951.31, please. St. David’s was out of network on his insurance, and Aetna had only paid $55,840 of the total $164,941 bill for his treatment. 


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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