Epilepsy Talk

Tell us about your first seizure…

October 30, 2023
23 Comments

All of a sudden, it felt like my blood was rushing out of my toes. As all of my energy drained out of me, I thought: “I’m going to drown.” 

Then, as I fought with the locked door handle to get out, I realized: “I’m going to die.”


Can You Believe It? 

February 28, 2022
4 Comments

Just when you thought the modern world was becoming enlightened, there are still a whole lot of myths and fears about epilepsy — fueled by ignorance and misinformation.

These fears might sound ridiculous to you…but they’re real for those who don’t know better.


Tell us about your first seizure…

October 14, 2021
27 Comments

All of a sudden, it felt like my blood was rushing out of my toes. As all of my energy drained out of me, I thought: “I’m going to drown.” Then, as I fought with the locked door handle to get out, I realized: “I’m going to die.”


What was your first seizure like?

April 4, 2020
38 Comments

I can remember being in the shower, washing my very long hair. It was one of those old-fashioned showers with a heavy plate-glass door and a stainless steel  handle that you had to turn to get in and get out. There were 4 water jets…three coming from the side wall…and a shower head in the ceiling.


Can You Believe It?

January 20, 2020
13 Comments

Just when you thought the modern world was becoming enlightened, there are still a whole lot of myths and fears about epilepsy — fueled by ignorance and misinformation.

These fears might sound ridiculous to you…but they’re real for those who don’t know better.


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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