Epilepsy Talk

Shit happens… | March 4, 2022

It was a normal day at the ice rink.

My friend and I were speed skating.

Then we started to tease her younger brother.

He simply retaliated by sticking out his foot and tripping us.

Into the boards I went. Head first.

The next thing I knew, I was in the lap of the very handsome skating coach.

I thought I was in heaven.

Little did I know, I was entering hell.

And the beginning of my first seizure.

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  1. Dancing was how I and my mum were shocked to see my first Epileptic seizure. I stepped hard on one movement and It was the scariest moment for both of us.

    Half a year later when I found a Neurologist I was diagnosed with Epilepsy.
    My family in another country were helping us with the “I have Epilepsy, what do I do now?! Is something that I can talk about or something to keep the dirty little secret(as you stated before)?”
    Some neighbors found out the hard way seeing me on our front yard unconscious with the help of their dog, others gossiped about me being dropped off at home or at my apartment by police because of Epileptic seizures..

    Power consumers and ignorance grows with or without education, that is the scariest thing that I have learned being diagnosed with Epilepsy. It’s still as “Be better than the Joneses! Or you can’t get anywhere!”

    Why can’t we be comfortable with ourselves the way we live/d and we do better so be it Congratulations to us!!

    Not one person is perfect. If were we would be plugged into the wall for our batteries to charge at night and if it were Sci-Fi recycle and upgrade before our warranty was up!

    I know I am not a plug in to the wall person that loves Cats, music, tv, that guy Mark, who made Squirrel climbers to collect their rest and nuts of varied kind on YouTube (I’m jealous I never thought Of that when I lived at home! I let my Squrriels pick Raspberries and Acorns that I collected for them💖)

    Anyway I degress…

    Liked by 1 person

    Comment by T — March 4, 2022 @ 2:16 PM

    • You’re such a good, strong person. (Not just because of the squirrels!)

      But the strength, humanity and humor that you show is so generous and forgiving.


      Comment by Phylis Feiner Johnson — March 4, 2022 @ 2:38 PM

  2. International Women’s Day is coming as of Tuesday March 8….

    I really would like to be able too have this nightmare over…
    Being in the hospital where I wasn’t “allowed” to walk to the washroom by myself without a nurse around… Then when I finally try and successfully defend myself and do what I have to go to do, the nurse is constantly knocking on the door putting stress on me.
    Is that normal for a nurse who wasn’t there to begin with to show up when you’ve already locked the door to continuously knock on the door while you hear someone flip out as you’ve heard the same voice do that 2+ years ago except that person attached to the voice would manage to open the door whether or not you were “Occupied” or not (big hint! hint!)
    Even washing my hands she continued to knock on the door, not say a thing!

    Then I was lucky to not have any Epileptic seizure but where I returned to I heard odd as it has been that I don’t have Epilepsy and that I really do have addictions to drugs and alcohol. I lost a lot of blood and then the hospital took even more two days in a row!
    Then gave me a riot speech about “well if you do have an addiction there are many places that we can you attached to and there are help lines as well for if you need someone to talk to about your problems with your addictions!”

    I was brought in to 2 separate hospitals in 24hrs for Epileptic Seizures! They took my blood the technology didn’t test to tell the doctor’s (including my own) and those damn nurses that I wasn’t lying neither were the Firefighters or paramedics who were first responders, after the first people?!

    Enough with the nightmares!!

    My stress level hasn’t gone down for reasons I know why and so do the people who caused this horror story- tragedy that still doesn’t know how to stop!

    If I had an advocate long ago maybe yet I would still be taken advantage of!
    People are to cruel!

    That is the only way that I can put it without using “P’s & Q’s” and a lot more choice vocabulary!!

    I smashed my head twice and bled the second time a hell of a lot more than “normal”.

    What can I get to say that I can be near illicit drugs because they trigger my Epileptic Seizures, that I have not said out loud in over a decade or more?!

    People love the fact that they connected their cellphones to mine without asking consent or asking “hey ____ can we switch phone numbers?!”
    Like normal people do or did.

    I used to be able to switch phone numbers with people face to face before some @ss locked my internet connection years ago and deleted my music all 64Gs of it too😡😭🤕!!

    People keep talking….


    Comment by T — March 7, 2022 @ 5:33 AM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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