Epilepsy Talk

What was your first seizure like?

October 22, 2022
27 Comments

I can remember being in the shower, washing my very long hair.

It was one of those old-fashioned showers with a heavy plate-glass door and a stainless steel handle that you had to turn to get in and get out.

There were 4 water jets…three coming from the side wall…and a shower head in the ceiling.

All of a sudden, it felt like my blood was rushing out of my toes.

As all of my energy drained out of me, I thought: “I’m going to drown.”


Shit happens…

March 4, 2022
3 Comments

It was a normal day at the ice rink.

My friend and I were speed skating.

Then we started to tease her younger brother.

He simply retaliated by sticking out his foot and tripping us.

Into the boards I went. Head first.


Tell us about your first seizure…

October 14, 2021
27 Comments

All of a sudden, it felt like my blood was rushing out of my toes. As all of my energy drained out of me, I thought: “I’m going to drown.” Then, as I fought with the locked door handle to get out, I realized: “I’m going to die.”


What was your first seizure like?

April 4, 2020
38 Comments

I can remember being in the shower, washing my very long hair. It was one of those old-fashioned showers with a heavy plate-glass door and a stainless steel  handle that you had to turn to get in and get out. There were 4 water jets…three coming from the side wall…and a shower head in the ceiling.


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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