Epilepsy Talk

The Hill-Burton Act: The Government’s Best-Kept Secret

September 15, 2019
1 Comment

Years ago, two men with the last names of Hill and Burton created a bill which assists people with medical expenses, unable to pay them.

It’s only for people of limited financial means. 

However, if you Google “Hill-Burton Act” or go to https://www.hrsa.gov/get-health-care/affordable/hill-burton/facilities.html you’ll find a gold mine of information about who qualifies, which facilities are obligated to provide free or reduced-cost health care and how to apply.


How to Start Your Own Adult Epilepsy Support Group

August 14, 2019
2 Comments

One thing I’ve discovered is the search for support groups is endless — and seldom successful.

Especially now that charitable contributions are tight and epilepsy centers have had to cut expenses. (Yes, our support is considered an “expense”.)

That’s why I’ve put together this short guide on how to form your own Epilepsy Support Group.


FREE Legal Resources

March 27, 2019
28 Comments

I think that pro bono legal aid is perhaps more difficult to find than almost anything else in this country, except perhaps, FREE medical care. 

But here are six resources where you can find FREE legal aid and assistance.

It’s tricky, because each state has its own laws. 

But these organizations can help guide you to the resources available in your area.  (The other option is to Google your local Legal Aid office.)


Epilepsy — Top Financial and Medical Assistance Programs

March 19, 2019
5 Comments

With so many people at the end of their resources, we could all use a helping hand.

Below is my attempt to research viable resources for financial and medication aid.


The Embrace2 – Newly Cleared by the FDA – with New Advantages for You

March 5, 2019
11 Comments

The fear, the anxiety, the anticipation of another seizure.

Coupled with the dread that you won’t be able to tell. When it’s coming. IF it’s coming.

The triggers, the reasons, the causes.

Peace of mind is difficult to come by for — you and for your loved ones.

It’s worry all the time. Every day. Does it always have to be this way?


11 Companies Hiring for Jobs You Can Do at Home

December 12, 2018
16 Comments

These companies have remote jobs that may be great for people with chronic illnesses or disabilities.


Epilepsy and Education…Coming Out Of The Shadows

December 6, 2018
10 Comments

It starts in the playground.  A kid has a seizure and everybody freaks out. 

Nobody knows what to do.  Maybe not even the school nurse. 

Even though epilepsy first aid is a cinch.

It’s frightening to see a child seize and then, based on that fright, they think:

“I can’t deal with this.”


Gratitude is the Attitude…

November 21, 2018
16 Comments

Sometimes, I get into a funk so bad that it’s like a black hole. 

Until I remember the safety ladder that I always carry in my pocket.

I think of at least five things I’m grateful for.

Or if I’m down there awhile, I stretch it to ten.

Here are the top five on my gratitude list:


Secrets to Better Care from Your Doctor…

August 15, 2018
6 Comments

When you go to see a doctor, often the visit seems to be over in a flash and you leave wondering exactly what it was the doctor wanted you to do.

Doctors are often quite busy and may not present you with all the necessary information so it is your responsibility to take steps to get the most out of your visit.

If regular visits with your neurologist seem short, and taken up with medical details like seizure control and medication issues, ask in advance for a longer time to be scheduled to deal with other issues that are important to you.

Be prepared…


Is it Organic?

April 7, 2018
14 Comments

For quite some time, there’s been an explosion of health food products on the market, specifically advertised as either “organic foods” or “natural” foods.

Most people don’t know that there is a major difference between “organic” and “natural” foods, believing that the two are interchangeable.

But there’s a huge difference between a food labeled “natural” and one that is labeled “organic.”


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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