Epilepsy Talk

Truth is stranger than fiction | May 28, 2022

I call epilepsy a “stealth disease”, because it’s difficult to imagine how so few people know about a “silent” condition that affects so many.

For example, few people know:

* Epilepsy affects over 3.4 million Americans of all ages – more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined.

* In America, Epilepsy is as common as Breast Cancer, and takes as many lives.

* It’s the third most common neurological disorder after Alzheimer’s and stroke.

*Almost 500 new cases of epilepsy are diagnosed every day in the United States.

* Epilepsy affects 50,000,000 people worldwide.

* One in 100 people will develop epilepsy.

* One in 10 people will suffer a seizure in their lifetime.

* This year another 200,000 people in the U.S. will be diagnosed with epilepsy.

* Children and seniors are at higher risk.

* 30% of those diagnosed are children.

* Epilepsy can develop at any age and can be a result of genetics, stroke, head injury, and many other factors.

* There are 40+ different types of seizures.

* For many soldiers suffering traumatic brain injury on the battlefield, epilepsy will be a long-term consequence.

* In two-thirds of patients diagnosed with epilepsy, the cause is unknown.

* In over 30% of patients, seizures cannot be controlled with treatment.

* Uncontrolled seizures may lead to brain damage and death.

* Up to 50,000 Americans die each year from seizures and related causes.

* The mortality rate among people with epilepsy is two to three times higher than the general population.

* Risk of sudden death among those with epilepsy is twenty-four times greater.

* Epilepsy results in an estimated annual cost of $15.5 billion in medical costs and lost or reduced earnings and production.

* The Federal Government spends much less on epilepsy research compared to other diseases, which affect fewer people.

* Each year the National Institute of Health (NIH) spends $30 billion of medical research, but just ½ of 1% is spent on epilepsy.

* St Valentine is the patron saint of people with epilepsy!

To subscribe to Epilepsy Talk and get the latest articles, simply go to the bottom box of the right column, enter your email address and click on “Follow.”

Resources:

http://www.newsweek.com/id/193586

https://www.cdc.gov/epilepsy/data/index.html

https://www.who.int/news-room/fact-sheets/detail/epilepsy

https://neurology.ufl.edu/2019/10/30/november-is-epilepsy-awareness-month-2/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3265048/


13 Comments »

  1. Reblogged this on Disablities & Mental Health Issues.

    Like

    Comment by Kenneth — May 28, 2022 @ 12:31 PM

  2. I didn’t know this about epilepsy. Wow. Awareness is so vital to educate those that don’t know.

    Liked by 1 person

    Comment by S.Z. Estavillo — May 28, 2022 @ 6:06 PM

    • Yup. As I say: Educate and advocate!

      Like

      Comment by Phylis Feiner Johnson — May 28, 2022 @ 6:08 PM

      • I often write about various awareness stuff, too and equally am a huge advocacy proponent. Feel free to check out my post, it’s about subjectivity and egos and why we can learn as creative professionals to learn from rejection. Not entirely related to your post subject, but I do also write about mental health subjects as well. So great that you’re an advocate. Education is key in teaching others. If you have time to read my blog, the link is below. Have a lovely day, Phylis! ❤

        Subjectivity & Why #CreativeProfessionals Should Leave Their Egos Behind

        Liked by 1 person

        Comment by S.Z. Estavillo — May 28, 2022 @ 6:45 PM

  3. Ah. Revise, reject, revise. How well I remember that from my last life as a DM copywriter.

    Now the difference is I revise, revise but with much research in between. It’s a refreshing difference. 😉

    Like

    Comment by Phylis Feiner Johnson — May 28, 2022 @ 7:25 PM

  4. In 2000 I was told at the NIH that 50 MILLION had epilepsy. & between 10 to 15 years later that number increased to 65 MILLION, and they stopped counting if you ask me. How many more now are getting the DX of epilepsy, since year 2020, when all these shots have been forced on most of us to take & get ? Not me, as I will never chance the high risk of having STATUS EPILEPTICUS and then death is more possible to happen.

    Liked by 1 person

    Comment by James D — May 28, 2022 @ 8:49 PM

    • I’ve had status epilepticus, which left me almost speechless for months, but I’ve had a few seizures where only my head and throat convulse, I’m still aware, I can’t breathe with my throat closed over, thankfully I’ve survived so far, but that’s how epilepsy causes sudden death

      Liked by 1 person

      Comment by Gail Barry — May 29, 2022 @ 4:59 AM

  5. I posted on a FB group, Functional Neurological Disorder, that epilepsy is as you’ve said , far more common even than cancer doesn’t get funds or research, you wouldn’t believe the filth I got back from people thinking cancer patients are heroes suffering with pain, wouldn’t even believe that epilepsy can kill you, my aunt died from cancer, I know what it means, I’ll never say anything against cancer patients, but please, recognise our epilepsy! Though I will say something bad about our UK cancer charities, I’ve suffered the worst insults at their charity shops when I try to volunteer, did some work at one then got thrown out without even a thank you for what I’d done,which included having a focal seizure

    Liked by 1 person

    Comment by Gail Barry — May 29, 2022 @ 4:54 AM

    • People don’t believe what they can’t see, they’re that self-absorbed.

      As for charities, I once had a similar experience.

      A friend of mine said (in jest), “It’s sad when you can’t even give it away.” 😥

      Like

      Comment by Phylis Feiner Johnson — May 29, 2022 @ 9:20 AM

  6. dorod507@gmail.com

    Like

    Comment by Bomo bomo — May 29, 2022 @ 11:07 AM

  7. Sent from my iPad

    >

    Like

    Comment by Leonard Hamilton — June 4, 2022 @ 2:14 PM


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.

    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

    View Full Profile →

    Enter your email address to follow this blog and receive free notifications of new posts by email.

    Join 3,204 other followers

    Follow Epilepsy Talk on WordPress.com
%d bloggers like this: