Epilepsy Talk

A BIG Mistake!

October 20, 2023
8 Comments

I know it’s happened to many of you, but this was the first time for me.

I forgot to take my nighttime meds.


Epilepsy Bill Of Rights

October 16, 2023
5 Comments

The Bill of Rights for People Living with Epilepsy was created for people living with epilepsy by people living with epilepsy and was spearheaded by The Epilepsy Foundation in conjunction with many concerned contributors.

If you don’t know about these rights, please read on…


Laughter IS the best medicine!

October 8, 2023
7 Comments

And, believe it or not, it’s good for your health.

Laughter can even help your EEG results!


Heat is not our friend!

July 23, 2023
9 Comments

And it can trigger some pretty awful consequences.

Like the time I was gardening at high noon. (What was I thinking about?) I fell backwards, hitting my head on the walkway. And I couldn’t ask for help because I was out cold. Baking in the sun.

And I’m sure you have your own stories. About passing out, puking or just feeling like you’re as dizzy as if you were on a roller coaster ride.

An epileptologist explained that heat can trigger a seizure for some people because it’s firing up the neurons in the brain which can cause a seizure.

Some examples:


Vagus Nerve Stimulation — The Secret Is In Your Breathing!

May 26, 2023
1 Comment

Several components contribute to the profound influence of deep breathing upon the nervous system.

Deep breathing improves VNS results!


Before you agree to surgery… 

May 18, 2023
16 Comments

How many times have you heard: “Well, it isn’t exactly brain surgery.” Well this time it is.

And it’s your brain.

It’s a scary trip into the unknown. Thoughts are swirling around in your head: What will happen to me? Is this the right thing to do? Is this really the best surgeon for the job? What if it doesn’t work? Maybe I should put it off…

It’s really hard to be prepared for something as radical as brain surgery – either physically or emotionally. That’s why it’s important to gather all the information you can, before hand.

Remember: Knowledge is power.

Here some things to consider and ask your neurologist/neurosurgeon team before surgery.


What 2/3 of doctors don’t want you to see…

April 22, 2023
5 Comments

When asked if they’d like to see their doctor’s notes, patients in two new studies overwhelmingly said yes.

But doctors aren’t nearly as enthusiastic.

The idea of opening up doctor’s notes has been around for decades.

Advocates figure that patient oversight will reduce medical errors and help patients be more engaged.

Patients have a legal right to see their records.

But actually getting those notes — especially those that doctors take during a visit, can be painfully slow (and expensive!)


Brain Surgery — Questions to Prepare Yourself

April 11, 2023
6 Comments

How many times have you heard: “Well, it isn’t exactly brain surgery.” Well this time it is.

And it’s your brain.

It’s a scary trip into the unknown. Thoughts are swirling around in your head: What will happen to me? Is this the right thing to do? Is this really the best surgeon for the job? What if it doesn’t work? Maybe I should put it off…

It’s really hard to be prepared for something as radical as brain surgery – either physically or emotionally. That’s why it’s important to gather all the information you can, before hand.

Remember: Knowledge is power.

Here some things to consider and ask your neurologist/neurosurgeon team before surgery.


How to stay forever young… 

March 2, 2023
3 Comments

Here are some inspired ideas by George Carlin on how to stay young. I think they’re brilliant. Now if we could all manage to do this, maybe we would live a little longer!


Posted in Epilepsy, Tips
Tags: , , ,

12 sleep tricks…

February 27, 2023
6 Comments

We all know that sleep deprivation can trigger seizures.

Some people’s seizures are tied very closely with their sleep. You may have all of your seizures while sleeping, when falling asleep or waking up.

Lot of things can affect your sleep and make you more likely to have seizures. Here are a few factors to consider:


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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