“I feel like I’m burning the candle at both ends.” All burned out.
Is it epilepsy? Is it chemistry?
It’s more than that. It’s resignation. Depression. No way out.
So, it should be no surprise that studies show:
Fatigue was more frequent in epilepsy patients than controls or general population.
Depression and sleep-related problems affected fatigue in epilepsy patients.
And the frequency of fatigue was 47.1% in adult patients with epilepsy.
WHAT DO I DO?
Feeling stressed, overwhelmed, and under water? Frazzled to the max?
You’re certainly in good company!
The challenges and demands of day-to-day life are overwhelming. Not to mention the triggers and seizures that can be a consequence.
So what can we do about it?
I know it’s happened to many of you, but this was the first time for me.
I forgot to take my nighttime meds.
The Bill of Rights for People Living with Epilepsy was created for people living with epilepsy by people living with epilepsy and was spearheaded by The Epilepsy Foundation in conjunction with many concerned contributors.
If you don’t know about these rights, please read on…
And, believe it or not, it’s good for your health.
Laughter can even help your EEG results!
And it can trigger some pretty awful consequences.
Like the time I was gardening at high noon. (What was I thinking about?) I fell backwards, hitting my head on the walkway. And I couldn’t ask for help because I was out cold. Baking in the sun.
And I’m sure you have your own stories. About passing out, puking or just feeling like you’re as dizzy as if you were on a roller coaster ride.
An epileptologist explained that heat can trigger a seizure for some people because it’s firing up the neurons in the brain which can cause a seizure.
Some examples:
Several components contribute to the profound influence of deep breathing upon the nervous system.
Deep breathing improves VNS results!
When asked if they’d like to see their doctor’s notes, patients in two new studies overwhelmingly said yes.
But doctors aren’t nearly as enthusiastic.
The idea of opening up doctor’s notes has been around for decades.
Advocates figure that patient oversight will reduce medical errors and help patients be more engaged.
Patients have a legal right to see their records.
But actually getting those notes — especially those that doctors take during a visit, can be painfully slow (and expensive!)
How many times have you heard: “Well, it isn’t exactly brain surgery.” Well this time it is.
And it’s your brain.
It’s a scary trip into the unknown. Thoughts are swirling around in your head: What will happen to me? Is this the right thing to do? Is this really the best surgeon for the job? What if it doesn’t work? Maybe I should put it off…
It’s really hard to be prepared for something as radical as brain surgery – either physically or emotionally. That’s why it’s important to gather all the information you can, before hand.
Remember: Knowledge is power.
Here some things to consider and ask your neurologist/neurosurgeon team before surgery.