Epilepsy Talk
Truth is stranger than fiction
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I call epilepsy a “stealth disease”, because it’s difficult to imagine how so few people know about a “silent” condition that affects so many.
For example, few people know:
Tags: 50 million worldwide, epilepsy statistics, mortality rate, research underfunded
New hope for drug resistant epilepsy
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Drug-resistant epilepsy with uncontrolled severe seizures — despite state-of-the-art medical treatment — continues to be a major problem for up to 30% of patients with epilepsy.
Although drug resistance may fluctuate in the course of treatment, for most patients, drug resistance seems to be continuous.
Unfortunately, traditional antiepileptic drugs (AEDs) don’t seem to prevent or reverse drug resistance in most patients.
However, some new add-on AED therapies have shown as much as 50% in seizure reduction.
Tags: brain, chemical, connections, drug, electrical, faulty, lesions, resistance, structural, wiring
Is it a headache, an aura, a migraine, a seizure, or perhaps ALL four!
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If you’ve had a migraine with auras that triggered an epileptic seizure, you might have experienced migraine-induced epilepsy.
Another name for this phenomenon is migralepsy.
Scientists have debated the existence and terminology of this phenomenon for some time.
Cannabis for Better Sex? Here’s What the Science Says.
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Both men and women have long reported that cannabis alters their sexual experience.
Treating Seizures — 7 Amazing New Breakthroughs
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What if you could predict an oncoming seizure in time for you stop it? Or even prevent it?
That day may be coming sooner than you think, thanks to these seven new technologies.
You’ll learn what they are, how they work and how far along they are.
The Mystery of Epilepsy and Celiac Disease
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The relationship between celiac disease and epilepsy has been documented in medical journals for decades. Yet neurologists rarely consider it as an underlying possibility in cases of idiopathic epilepsy.
It never ceases to amaze me what an impact celiac disease can have on one’s life and quality of life, but there is no routine testing for it. Yet, I‘ve been told (and have read) that very few people with epilepsy are told of the possibility of celiac disease!
Tags: brain, celiac disease, Epilepsy, Folic Acid, gluten, malabsorption, nervous system, nutritional deficiency
$56,000 a year for an unproven drug!
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Getting the FDA to retract a decision, is like getting the toothpaste back in the tube, after it’s been squeezed out…
Whether it’s “yes” or “no,” there is no “maybe so”.
A good example is the new all star Alzheimer’s drug aducanumab.
Whether it’s “yes” or “no,” there is no “maybe so”.
Tags: $56000 a year, aducanumab, Alzheimer’s, efficiency, FDA, not proven, patients, risk, side-effects
A ‘Pacemaker’ for the Brain…Reducing Seizures by as Much as 50%…and Depression up to 30%
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Some people know Deep Brain Stimulation (DBS) as a treatment for epilepsy, reducing seizures by as much as 50 percent.
It’s designed for the considerable number of patients suffering from medically refractory epilepsy who are not candidates for for resective brain surgery.
This tiny pacemaker-like device, is implanted in the brain to deliver a small amount of electricity when it detects the onset of a seizure.
But, what most people DON’T know know is that Deep Brain Stimulation, can help depression by up to 30 per cent.
Tags: can help depression by up to 30%, DBS, Deep Brain Stimulation, emotions, individualized, nearly 1/3 of the more than 250 million people with depression, one size does not fit all, pacemaker-like device, reducing seizures bu as much as 50%, tiny
Vagus Nerve Stimulation…Is it for YOU?
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Having a Vagus Nerve Stimulator implanted can be a tough decision. Is it right for you? Will it work? What are the side effects and consequences?
I did some research and got the low-down on what it is, how it works and some interesting statistics.
Tags: brain, depression, electrical pulses, improvement, memory, mood swings, refractory, setting, signals, vagus nerve stimulator
Sleep and seizures…at what cost?
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Sleepless nights. Exhausted afternoons. Confusion. Memory loss. Trouble with concentration, mood swings and of course, seizures.
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Epilepsy Talk 