Epilepsy Talk
Dilantin – What People Are Saying…
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When I was first diagnosed with epilepsy back in 1969, the availability of AEDs was limited.
Phenobarbital or Dilantin.
Pick your poison.
I chose Dilantin. It was not a pretty picture.
I was a walking zombie, constantly keeling over, and the final insult was when I went into a coma because of toxic blood levels. (No brain, no pain?)
But many have their own serious tales to tell. Here are some of their experiences. And some advice…
Dilantin – Hero or Horror?
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Since it first came out, Dilantin has always had its fans and its detractors.
Who can forget Jack Nicholson’s out-of-control behavior as the “crazy” in Ken Kesey’s “One Flew Over the Cuckoo’s Nest”!
Tags: Birth Defects, bone weakening, Brain Atrophy, dangers, Dilantin, FDA, Gingivitis, Neuropathy, Purple Glove Syndrome, risks, seizures, side-effects, Stevens-Johnson Syndrome
$56,000 a year for an unproven drug!
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Getting the FDA to retract a decision, is like getting the toothpaste back in the tube, after it’s been squeezed out…
Whether it’s “yes” or “no,” there is no “maybe so”.
A good example is the new all star Alzheimer’s drug aducanumab.
Whether it’s “yes” or “no,” there is no “maybe so”.
Tags: $56000 a year, aducanumab, Alzheimer’s, efficiency, FDA, not proven, patients, risk, side-effects
The Trouble with AEDs…
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At the very best, finding the right anti-epilepsy drug is a crap shoot. There’s always the hope that this one will do it.
Or maybe adjunct therapy will work. Or, sigh, the side-effects derail you and you’re on to the next.
Is asking for seizure control too much?
Tags: AEDS, anti-epilepsy drugs, benefits, dangers, seizures, side-effects, uses
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Epilepsy Talk 