Epilepsy Talk
What Is the FDA Thinking?
3 Comments
Getting the FDA to retract a decision is like getting the toothpaste back into the tube, once it’s been squeezed out.
Take the current all-star Alzheimer’s drug aducanumab. It’s not a proven but it IS approved. To the hefty price tag of $56,000 a year!
Vagus Nerve Stimulation…Is it for YOU?
12 Comments
Having a Vagus Nerve Stimulator implanted can be a tough decision. Is it right for you? Will it work? What are the side effects and consequences?
I did some research and got the low-down on what it is, how it works and some interesting statistics.
Tags: brain, depression, electrical pulses, improvement, memory, mood swings, refractory, setting, signals, vagus nerve stimulator
$112 billion new Alzheimer’s drug in question
4 Comments
Getting the FDA to retract a decision is like getting the toothpaste back in the tub, after it’s been squeezed out…
Whether it’s “yes” or “no,” there is no “maybe so”.
A good example is the new all star Alzheimer’s drug aducanumab.
Tags: $112 billion costs, &56000 a year, alzheimer's, FDA, Medicare, not proven, side effects
The Perils of Discontinuing Your Meds
21 Comments
One of the most common questions is “when can I stop taking my meds?”
Especially for those whose seizures have been under good control.
It makes sense. Because if you’re doing well, you start to wonder: “Why do I need these meds anymore”?
Epilepsy Generics: Yes, No or Maybe So?
17 Comments
Almost everybody considers generic drugs a no-brainer. You get significant savings without any (noticeable) change in your treatment.
But they’re not epileptic. And they don’t walk the tightrope of a delicate neurological balance.
The first new Alzheimer’s drug in 18 years may not work.
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Getting the FDA to retract a decision is like getting the toothpaste back in the tub, after it’s been squeezed out…
Whether it’s “yes” or “no,” there is no “maybe so”.
A good example is the new all-star Alzheimer’s drug aducanumab.
Tags: $5600 a year, aducanumab, Alzheimer's drug, amyloid plaque, billions of dollars, caregiver, FDA, Medicare, not proven
Why Your Pharmacist is Your Best Friend
14 Comments
Your pharmacist is the least expensive and most accessible health resource you have. They fill prescriptions and provide expert information about medications — a very important role, considering the prominent use of seizure medications to treat epilepsy.
You can see the pharmacist anytime you want, without an appointment, and all consultations are free. In medicine, that’s extraordinary.
Tags: access, benefits, costs, Epilepsy, expert information, free consultations, interactions, knowledge, pharmacists, prescription, risks, seizure medications
When Your Meds Cost More Than You Can Afford — AED Drug Assistance Programs
9 Comments
Today, things are constantly changing.
Especially when it comes to epilepsy medications and resources.
Some companies have expanded their programs or even offer new ones.
Others have cut their funds, and sadly others have ceased to exist.
Here’s a new and comprehensive list…
Tags: AEDS, assistance programs, discount, low-cost, no cost, prescription drugs, resources
Marijuana has won…
22 Comments
In the span of two decades, marijuana legalization has gone from a fringe issue to one the vast majority of Americans embrace.
In 2000, just 31 percent of the country backed legalization while 64 percent opposed it, according to Gallup’s public surveys.
By 2020, the numbers flipped: The most recent Gallup poll on the topic showed that 68 percent supported legalization and 32 percent were against it.
Tags: Biden, legalization, majority of states, marijuana, politics, Trump
Medical Marijuana — What the Experts are Saying
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“It doesn’t have a high potential for abuse, and there are very legitimate medical applications. In fact, sometimes Marijuana is the only thing that works… It is irresponsible not to provide the best care we can as a medical community, care that could involve Marijuana. We have been terribly and systematically misled for nearly 70 years in the United States, and I apologize for my own role in that.” — Dr. Sanjay Gupta — Neurosurgeon.
Tags: age-old remedy, alternative, anecdotal evidence, DEA restrictions, Dr. Orrin Devinsky, Dr. Sanjay Gupta, Dravet Syndrome, help relieve pain and suffering, legitimate medical applications, medical marijuana, non toxic, relief, Research, safe, scientific evidence
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Epilepsy Talk 